Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Passenger On The Spousal Celiac Ride


mndtrp

Recommended Posts

mndtrp Newbie

Well, my fiancee just found out she has Celiac Disease. She was talking to her primary care physician about how she was feeling, describing how she was tired a lot, joint pain, getting sick more often than some other people. Her PCP ran some blood tests, which came back with higher levels of whatever the indicator. Her endoscopy showed the flattening, but the biopsy was inconclusive. She said goodbye to gluten.

I figured it would be easier for us to just get rid of everything with gluten in it from our house. Since we both do a lot of cooking, rarely eating out, we had several bags of stuff to remove. I had been seeing "gluten-free" popping up on products, but didn't really know why. Now, I do. Our neighbors were kind of surprised when I showed up with four of the cloth bags full of stuff we were giving away. They offered money, which we didn't take, but were kind enough to show up a couple of days later with a bunch of gluten free food. Quite nice.

Anyway, we removed everything except for the barbecue sauce and flour tortilla shells. She rarely eats the BBQ sauce, unless we make BBQ chicken, which we bought new sauce for when we do some grilling. I also eat a lot of turkey wraps when I get off of work at midnight, while she is asleep, and her tortilla shells are fairly expensive. If we make enchiladas, burritos, or quesadillas we'll use her tortillas. I also tend to make large pots of stew, spaghetti sauce, or taco meat, and then freeze them in ziplock bags. This makes it easy for us to grab a decent meal if we are in a hurry for work. Unfortunately, all of those things are made with my grandma's homemade tomato soup, which uses flour. We aren't going to toss those, I'll just put some red duct tape on them so she knows not to get into them. I'm going to get the recipe from my grandmother, and make our own tomato soup for the future.

We went to a few different stores, and some places are very organized with their products. Sprouts made it easy by having everything that is gluten free labeled with a green shelf marker. Their produce was cheaper, and in better shape, than most other places as well. I did buy some Sam's Club animal crackers, with wheat, because I like to have them with tea at work. She has her own crackers, so that won't be an issue. As far as crackers and whatnot, we didn't eat a whole lot of them anyway. We rarely had cookies, and the chips we like are already gluten free, so we are getting lucky there.

My family is ultra-supportive, and have been obtaining information and some staples for when we come visit. Her family, on the other hand, told her that they "didn't have time for this right now". They said they didn't have enough money to go out and by all new groceries. We kind of expected them to say that, so it didn't come as any surprise. I sent them, and my family, a rather long email telling them what the situation is, and how it won't be that difficult for them to cook something. Since we don't visit often, they won't even have to buy new groceries. We'll see what happens.

Now, I have a couple of questions:

1) Since she didn't have much in the way of symptoms, what do you think will be the reaction to any cross contamination in the future?

2) All this talk of separate utensils and everything; do dishwashers not do a sufficient job of cleaning?

3) I haven't given up beer. Will this send her into a reaction if I kiss her? (this is probably associated to the first question)

Good times. It doesn't bother me much, so we'll see what the future brings.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darn210 Enthusiast

mndtrp,

First of all, welcome to the forum . . . lots of great people here . . . lots of great information.

Second, I love your attitude.

Now, I have a couple of questions:

1) Since she didn't have much in the way of symptoms, what do you think will be the reaction to any cross contamination in the future?

2) All this talk of separate utensils and everything; do dishwashers not do a sufficient job of cleaning?

3) I haven't given up beer. Will this send her into a reaction if I kiss her? (this is probably associated to the first question)

Good times. It doesn't bother me much, so we'll see what the future brings.

Hard to tell what her reactions might be. Some people find that once they go gluten free, their reactions to cross contamination are much stronger and different than what they experienced before gluten free. There is just no way to really predict this. My daughter's reaction (acid reflux with regurgitation) is the same as her main symptom before going gluten free.

We have a mixed kitchen. The dishwasher does just fine for us. I will say that I have always been a very thorough pre-rinser though. The only thing we have separate is a toaster, a cutting board and a cookie sheet. We all eat the gluten free pasta so we don't need separate strainers. I also don't own any wooden utensils. Otherwise, I would have separate strainers and wooden utensils.

Thoroughly brush your teeth after eating/drinking gluten and you should be OK. If she's very sensitive, there are gluten free beers.

OptimisticMom42 Apprentice
Anyway, we removed everything except for the barbecue sauce and flour tortilla shells. She rarely eats the BBQ sauce, unless we make BBQ chicken, which we bought new sauce for when we do some grilling.

I agree with the answers Darn210 gave but want to add that CC from the grill has been a problem for alot of people. And my BF hasn't had a real kiss in ages because of beer.

Ahorsesoul Enthusiast

mndtrp,

You are another one of my heros for taking a stand with your celiac spouse! You'll need to decide if you like kissing your spouse or the (poisoned) beer better.

Just because someone does not show symptoms doesn't mean there isn't damage being done.

mndtrp Newbie

We'll be getting a new toaster shortly. I don't really eat toast, or bread for that matter, so that won't be an issue. During snowboarding season I usually have PB&H sandwiches, but I can probably just keep it in my boarding bag.

I'll only eat my BBQ sauce on things like corn dogs, which she doesn't eat anyway. Any grilling or BBQ sandwiches will be made with the new sauce.

We'll see how it goes with the beer. I usually have one when I get off of work, and she's already in bed. On my days off, I'll sometimes have a couple. She's not a huge fan of the smell of it, so she would probably prefer I brushed my teeth and cleaned up prior to kissing her anyway. As far as deciding which I like better, that may depend on the day.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    Bryan s
    Newest Member
    Bryan s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.