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Timing With Symptoms

diesel

By diesel
in Coping with Celiac Disease

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diesel Rookie
diesel
Posted

I think my dinner (7:00) had gluten, but I felt fine that night but started to get the bloating, crampy discomfort at noon the next day and it lasted for 12+ hours. Does anyone have delayed symptoms or do you get immediate discomfort?

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haleym Contributor
haleym
Posted
I think my dinner (7:00) had gluten, but I felt fine that night but started to get the bloating, crampy discomfort at noon the next day and it lasted for 12+ hours. Does anyone have delayed symptoms or do you get immediate discomfort?

Hmmm... when I first started gluten free I remember having a weak moment and eating a peanut butter brownie (well, I guess of all things to gluten yourself on, that would be a good one LOL). I was OK that night but then I think the next day I was having some symptoms. Same for a time I had beer... OK that night but then kinda icky the next day. I think its individual. I am also so new to gluten-free that it will probably take me a while to learn to predict myself.

cyoshimit Apprentice
cyoshimit
Posted

Iv been glutened once since being gluten free and i reacted Immediately. Then the next couple days were really crappy for me.

ravenwoodglass Mentor
ravenwoodglass
Posted

It is not uncommon for the reaction to be delayed. That's one factor in making intolerances hard to pinpoint. As for myself I notice some neuro symptoms within hours but the GI upset usually builds up for up to three days then hits full force with D and severe cramps. That ends in a day but for me the reactivation of my ataxia and arthritis and tendon problems continue for another 3 weeks.

summerteeth Enthusiast
summerteeth
Posted

I get a migraine almost immediately after being glutened, but the majority of the symptoms don't start until later. Gut pain, bloating, and brain fog are about 12 hours later, usually. For me it depends on the amount ingested, really. My reactions never seem to be quite the same and that is what made it difficult to diagnose.

SGWhiskers Collaborator
SGWhiskers
Posted

I get forehead tingles 45 minutes after ingestion, and a migraine progresses from there down my body, shoulders, and then hips over the next few hours. I really feel physically the worst 24-48 hours later as my body starts to ache/cramp/tingle/twitch all over. Lately, nausea (probably migraine/indigestion) have been bothering me on the subsequent days. On day 4-5, my BM's change from the celiac damage, and then I start recovering. Tylenol helps the pain. Tylenol PM helps me get through the roughest nights. Otherwise, I'm up with night sweats, night mares, and heart palpitations.

Kay-dee Newbie
Kay-dee
Posted

I get really tired almost immedietly, about 12 hours later I get REALLY hungry, and the brain fog and depression kick in and hang around for 2 days. Day 3 usually feels like I've swallowed a horse and find it hard to actually eat anything, day 4 I get really itchy but generally feel a lot better.. by day 5 and 6 I usually start to feel "normal" again.

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wschmucks Contributor
wschmucks
Posted

I get no symptoms until the next day-- so youre not the only one :-)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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