Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Timing With Symptoms


diesel

Recommended Posts

diesel Rookie

I think my dinner (7:00) had gluten, but I felt fine that night but started to get the bloating, crampy discomfort at noon the next day and it lasted for 12+ hours. Does anyone have delayed symptoms or do you get immediate discomfort?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



haleym Contributor
I think my dinner (7:00) had gluten, but I felt fine that night but started to get the bloating, crampy discomfort at noon the next day and it lasted for 12+ hours. Does anyone have delayed symptoms or do you get immediate discomfort?

Hmmm... when I first started gluten free I remember having a weak moment and eating a peanut butter brownie (well, I guess of all things to gluten yourself on, that would be a good one LOL). I was OK that night but then I think the next day I was having some symptoms. Same for a time I had beer... OK that night but then kinda icky the next day. I think its individual. I am also so new to gluten-free that it will probably take me a while to learn to predict myself.

cyoshimit Apprentice

Iv been glutened once since being gluten free and i reacted Immediately. Then the next couple days were really crappy for me.

ravenwoodglass Mentor

It is not uncommon for the reaction to be delayed. That's one factor in making intolerances hard to pinpoint. As for myself I notice some neuro symptoms within hours but the GI upset usually builds up for up to three days then hits full force with D and severe cramps. That ends in a day but for me the reactivation of my ataxia and arthritis and tendon problems continue for another 3 weeks.

summerteeth Enthusiast

I get a migraine almost immediately after being glutened, but the majority of the symptoms don't start until later. Gut pain, bloating, and brain fog are about 12 hours later, usually. For me it depends on the amount ingested, really. My reactions never seem to be quite the same and that is what made it difficult to diagnose.

SGWhiskers Collaborator

I get forehead tingles 45 minutes after ingestion, and a migraine progresses from there down my body, shoulders, and then hips over the next few hours. I really feel physically the worst 24-48 hours later as my body starts to ache/cramp/tingle/twitch all over. Lately, nausea (probably migraine/indigestion) have been bothering me on the subsequent days. On day 4-5, my BM's change from the celiac damage, and then I start recovering. Tylenol helps the pain. Tylenol PM helps me get through the roughest nights. Otherwise, I'm up with night sweats, night mares, and heart palpitations.

Kay-dee Newbie

I get really tired almost immedietly, about 12 hours later I get REALLY hungry, and the brain fog and depression kick in and hang around for 2 days. Day 3 usually feels like I've swallowed a horse and find it hard to actually eat anything, day 4 I get really itchy but generally feel a lot better.. by day 5 and 6 I usually start to feel "normal" again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wschmucks Contributor

I get no symptoms until the next day-- so youre not the only one :-)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 posted a topic in Related Issues & Disorders
      0

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    3. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    4. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

    5. - KelleyJo commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,373
    • Most Online (within 30 mins)
      7,748

    Alexis Parker
    Newest Member
    Alexis Parker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.