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Chronic Prostatitis


Wendy Cohan, RN

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Wendy Cohan, RN Contributor

Hi,

I'm a nurse writing a book on the bladder and other uninary health areas. In my research I ran across a link between chronic prostatitis and gluten intolerance or celiac disease. I've also written extensively in the past on a link between gluten intolerance/celiac disease and bladder symptoms, and am including this informaiton in my book. Adding in some anecdotal evidence on another link, to chronic prostatitis, would strengthen this correlation. I've seen a post or two on the forum about chronic prostatitis, but what I'm really looking for is a first hand story or two or a hundred telling me that going gluten free helped your chronic prostatitis or other urinary problem, in men. I have lots of stories for the book regarding women.

Can you let me know what your experience has been? All confidentiality would be protected. I may not even "tell" your story, but just include it in the category of "anecdotal evidence" of a link.

Thanks a bunch in advance for anyone willing to tell me their story. It will have the potential to help a lot of other men.

Wendy Cohan, RN


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trents Grand Master

Wendy,

Thanks for your hard work with regard to this book. I am a 58-year-old male celiac but I do not suffer from prostititis that I know of.

I notice there are no other replys to your post. I think the overwhelming majority of participants on this forum are female and this could be the reason.

kyle1957 Newbie

Dear Wendy,

am a 52 year old male, one year post celiac dx. 2 years post colectomy. For the prior few years I would get low grade fever, lymphocytes and blood in urine, slightly elevated wbc. Regular doc assumed prostatitis, I was male and had lower quadrant and thigh pain. I would take cipro for a while and be ok. I Then ended up in hospital very ill. Gastro dx diverticulitis hospitalized 6 days, IV antibiotics and scheduled for colectomy in 1 month. Made it three weeks and was back in the hospital. I was given IV antibiotics for 5 days then surgery. I was going to be a new man. I never got completely healthy. I believe that I had both the prostatitis and diverticulitis because of the closeness of my bowel issue to my prostate. I defiantly displayed the symptoms of both issues. My wife is a Family Dr. and suggested that we run a celiac panel on a hunch. All came back positive. Gastro did an endoscopy and my biopsy showed flattening and destruction of the villa of the small intestine, barrettes (having a Laparoscopic Nissen in Dec), and pre cancers cells in stomach. He theorized that undigested food flowing to the large intestine contributed to the diverticulitis. Typical finding for someone of my age with long term celiac undiagnosed. This summer I had a serious case of Prostatitis. Received Outpatient IVs and am now on 90 days leviquin. (Good reason to marry a Doctor) Because of the celiac I have Malabsorption syndrome. Urologist ran test for zinc, b-12, vita D, folic acid ect... I was low on all the aforementioned even though I am taking b-12 shots and supplements. I asked him if there was a connection between Celiac and prostatitis. His answer was not that I am aware. He did state there is a connection between low zinc, magnesium and other vitamins along with the ph factor in urinary tract. Uro has me take a vitamin C 1000 and a cranberry tablet night and morning, along with zinc at lunch time. Seeing how a lot of celiacs have Malabsorption issues I would conclude that there is a connection whether directly or indirectly.

Strictly Anecdotally,

Kyle Johnson

lovegrov Collaborator

No urinary problems here.

richard

Wendy Cohan, RN Contributor

Thanks for your reply, Kyle. I'm sorry for all you've been through. My mother had colon cancer after years of having diverticulitis. Hopefully you've avoided any cancer, which does unfortunately occur at a higher rate in celiacs. I'm glad your wife is a doctor, too.

Wendy

Dear Wendy,

am a 52 year old male, one year post celiac dx. 2 years post colectomy. For the prior few years I would get low grade fever, lymphocytes and blood in urine, slightly elevated wbc. Regular doc assumed prostatitis, I was male and had lower quadrant and thigh pain. I would take cipro for a while and be ok. I Then ended up in hospital very ill. Gastro dx diverticulitis hospitalized 6 days, IV antibiotics and scheduled for colectomy in 1 month. Made it three weeks and was back in the hospital. I was given IV antibiotics for 5 days then surgery. I was going to be a new man. I never got completely healthy. I believe that I had both the prostatitis and diverticulitis because of the closeness of my bowel issue to my prostate. I defiantly displayed the symptoms of both issues. My wife is a Family Dr. and suggested that we run a celiac panel on a hunch. All came back positive. Gastro did an endoscopy and my biopsy showed flattening and destruction of the villa of the small intestine, barrettes (having a Laparoscopic Nissen in Dec), and pre cancers cells in stomach. He theorized that undigested food flowing to the large intestine contributed to the diverticulitis. Typical finding for someone of my age with long term celiac undiagnosed. This summer I had a serious case of Prostatitis. Received Outpatient IVs and am now on 90 days leviquin. (Good reason to marry a Doctor) Because of the celiac I have Malabsorption syndrome. Urologist ran test for zinc, b-12, vita D, folic acid ect... I was low on all the aforementioned even though I am taking b-12 shots and supplements. I asked him if there was a connection between Celiac and prostatitis. His answer was not that I am aware. He did state there is a connection between low zinc, magnesium and other vitamins along with the ph factor in urinary tract. Uro has me take a vitamin C 1000 and a cranberry tablet night and morning, along with zinc at lunch time. Seeing how a lot of celiacs have Malabsorption issues I would conclude that there is a connection whether directly or indirectly.

Strictly Anecdotally,

Kyle Johnson

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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