Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron Questions


Frances03

Recommended Posts

Frances03 Enthusiast

I had some blood tests run this morning and my doctor called to say my iron is low, that I dont have enough iron in my blood and something else I can't remember. the other tests aren't done yet. but my iron level was 37 with 50-170 being normal I guess. She said I need iron supplements. Is this normal with celiac disease, and are there any iron supplements you guys can recommend? I already have problems with constipation so I dont want to make that worse! She wanted to prescribe ferrous sulfate she said.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Raven's Mum Newbie

Raven was just prescribed an iron supplement as well. She's on the ferrous sulfate. Do you like prunes? lol

chatycady Explorer

Ferrous Gluconate - it's a little easier on the stomach. Iron supplements are very hard on a celiac stomach, it irrates instead of heals. If it were me I would avoid suplements and would eat more red meat (grill some hamburgers) and make a liver pate'. Drink orange juice or eat an apple with your meat or iron supplement so it's easily absorbed.

tarnalberry Community Regular

I was use SlowFe for a while, and that worked fine. When I got pregnant, my stomach went generally cranky, so I'm now using a liquid supplement (so I can vary the dose more easily) added to my morning orange juice (and my prenatal has another full dose as well).

Wolicki Enthusiast

Slow FE made me nausueous and C. Before gluten-free I had to get quarterly infusions. Now that I am healing, I can tolerate Ferrous Sulfate just fine, with no ill effects. My little boy, who has a delicate tummy, can also take it with no ill effects.

Raven's Mum Newbie

Raven's only been on it a few days and so far so good. The thought of constipaton makes me really nervous with her as she's had multiple bowel blockages already due to her CF. :( We do have some polyethylene glycol 3350 on hand as she was on it for while so if she starts to feel bunged up, I'll have to give her some. She really likes prune juice to. Go figure. :huh: I wish she wasn't so picky. She goes through phases and right now I can't seem to get her to eat any meat! :(

Roda Rising Star

Before diagnosis I couln't tolerate the ferrous sulfate or a rx cromagen. I had horrible acid reflux. I just started taking slow fe brand back in August. I was skepticle because of my other reactions. The good news is that I am tolerating it fine now that I'm gluten free. I just hope it works. My ferritin was 11 in April and that is the highest its been. I guess if the pills don't start working by Dec. I'm going to look at iron infusions. I take two of the slow fe a day when I remember. If you take thyroid meds just remember you have to space them out so long or the iron interfeeres with the absorption of the thyroid meds. I had constipation before gluten free and that of course is so much better. The iron does not bother me in that way either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Frances03 Enthusiast

Thank you guys! I guess my regular doc is going to call in the ferrous sulfate to walmart pharmacy, so we'll see what I get. I do take thyroid meds also, so thanks for that info! and I will try to take it with orange juice, tho I'm supposed to be careful with acidic foods until all my ulcerations heal. no idea how long that takes! the thing is I have been eating a LOT of red meat lately! I had steak like 4 times last week alone!

OptimisticMom42 Apprentice

If you're worried about iron causing C take mag also. It will help.

Frances03 Enthusiast

okay, I will try this. what is it, just over the counter magnesium? how much shoudl I take. I have constipation ALL the time, and I take miralax every night, it does nothing.

If you're worried about iron causing C take mag also. It will help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.