Your Fisrt Gluten After Being So Careful

[tmbarke]

I did my first no no today - I allowed a coworker to make a pea salad gluten-free for our smorgasboard of comfort foods at work today......they checked with me on the cheese and sour cream.....but not any seasonings or ham (does anyone know about ham steaks and gluten?)

Anyhow - within an hour, I was feeling my neck swell a tad - more of an uncomfortable feeling so I knew it was the salad.

But then I got a strange one! I was a trigger to a bomb! I got so pi$$ed off that no one had a chance! and I felt like I was burning up - my skin was cool to the touch, but I was burning inside like I was in an oven.

My boss just wanted to make sure I hung a notice before I left and it took everything I had NOT to unload on him (and possibly lose my job)! OMG!!!! That is not the normal me before being gluten-free!

I didn't talk to anyone the rest of the day (for safety sake) and when I got home, other things started.

When I went to lay down (out of shame for the irratic attitude, or the loss of being gluten-free) I couldn't sleep and my light churning and cramps started - then nasty gas to follow.

I can't stand to be around myself!

The differences amaze me of before I was gluten-free and after 11 days of ingesting it again.

How different were your gluten-free reactions of being re-glutened.

[CGally81]

I did my first no no today - I allowed a coworker to make a pea salad gluten-free for our smorgasboard of comfort foods at work today......they checked with me on the cheese and sour cream.....but not any seasonings or ham (does anyone know about ham steaks and gluten?)

Anyhow - within an hour, I was feeling my neck swell a tad - more of an uncomfortable feeling so I knew it was the salad.

But then I got a strange one! I was a trigger to a bomb! I got so pi$$ed off that no one had a chance! and I felt like I was burning up - my skin was cool to the touch, but I was burning inside like I was in an oven.

My boss just wanted to make sure I hung a notice before I left and it took everything I had NOT to unload on him (and possibly lose my job)! OMG!!!! That is not the normal me before being gluten-free!

I didn't talk to anyone the rest of the day (for safety sake) and when I got home, other things started.

When I went to lay down (out of shame for the irratic attitude, or the loss of being gluten-free) I couldn't sleep and my light churning and cramps started - then nasty gas to follow.

I can't stand to be around myself!

The differences amaze me of before I was gluten-free and after 11 days of ingesting it again.

How different were your gluten-free reactions of being re-glutened.

Having gotten glutened somehow from rotisserie (sp?) chicken from ShopRite last night, I can tell you that within the hour, I felt like I was starting to get very hungry, losing the ability to concentrate, etc. But I didn't get the gastro symptoms. I rushed down and made popcorn and took 10 L-glutamine chewables. It's a day later and today, my hunger, which had been getting better, is just as bad as it was a few weeks ago.

So I didn't get the gastro, but I did get the same type of neurological nonsense as before, though I took the "antidote" to stop it from getting worse. And my hunger is disgustingly high again. That's my symptoms.

My advice, btw, is to buy some L-glutamine and quickly. Keep it around. If you get glutened, eat some immediately. It WILL reduce your symptoms. (btw, some L-glutamine contains gluten! The reason why is because bodybuilders use it mostly, and they're not necessarily Celiac. Look for gluten-free L-glutamine)

[DingoGirl]

In my experience, the difference was nothing short of astonishing, and not in a good way.

Before going gluten-free, I was soooooooooo sick.....but intestinal problems were the least of my concerns (it was the mental angst and physical weakness that really had me down). I had pretty much constant weird bowels for the four or five years prior, and a chronic dull ache in my abdomen - but I didn't really realize that until it went away.

AFTER gluten removal things were TERRIBLE with accidental glutenings, for the first year or two. A tiny crumb had me in ENORMOUS discomfort the next day, with the most painful and stinky diarrhea......a smell I'd never known before (sorry for the graphic info, but in my and many people's experience(s), there is a VERY distinct odor to glutened poop). I had to be near the toilet for half of the next day, after a glutening (my reactions were always the next morning). And I was very agitated, insomniatic - nervous and depressed for a day or two.

As our bodies begin to heal, and villi start to grow back, there can be very violent and sensitive reactions to gluten - this is normal.

It really does get better - at least for me it did.

Hang in there! It really does improve over time.

[Wolicki]

I got accidently glutened last night at a cocktail party. I gobbled a stuffed mushroom that looked like crab and cheese. Just as I swallowed it, I realized there were bread crumbs in it. Duh.. I've had terrible heartburn all day,but thank God that's the only reaction.

My newly diagnosed 9 year old boy was given Red Vines yesterday at school and he didn't think to check his list of safe candy before he ate it. He's only been gluten-free for one week, and I was astonished that he spent the rest of the day with a headache and was throwing up for hours in the early evening. I don't think he will be eating any more candy without checking the list first

[tmbarke]

I can relate to the mental of it all - I need to wear a warning label to my coworkers when I feel it has happened again! I have the gurgling in my stomach - can't sleep (it's 1:13am now) - I wish I COULD have a bowel movement (it's been a couple days) - and I've managed to lose the swelling in the neck and the worst of the mood.......now I'm just feeling 'buzzed' like I smoked a joint....and I actually prefer that over the pyscho-jerk-from-hell with an itchy trigger finger. 'Just say anything and you're dead meat!'.......like turets even!

I'm hoping this doesn't affect the gluten free event at Meijers! I'm so looking forward to creating a more simpler task than the 3-1/2 hrs shopping trip last saturday.

Thanks for sharing! When I was told to go gluten free, I didn't exactly understand why except the doc told me to stick to this diet.......bye now - see ya!

Now that I have been gluten free for 11 days - and then experiencing THIS!.......I'm positive I'm never gonna be able to introduce anything back into my life again.....which is ok! But this is the proof I needed......to experience it one time on so little.

I'll stick to making my own food from here on out......no trust on good intentions......but the fact that they were thinking of me was priceless.

[ang1e0251]

I'm glad your improving and hope your shopping trip is fun. When I get the "mood" I give the warning out to anyone who has to spend time with me. Thank goodness I haven't had a bad glutening for awhile now. Also part of my symptoms are fatigue so I can actually sleep through part of my witch alter ego.

[tmbarke]

I'm glad your improving and hope your shopping trip is fun. When I get the "mood" I give the warning out to anyone who has to spend time with me. Thank goodness I haven't had a bad glutening for awhile now. Also part of my symptoms are fatigue so I can actually sleep through part of my witch alter ego.

Shopping trip wasn't exactly what I expected - sampled ginger snaps but they didn't know which aisle I was going to find them in (since I notice they scatter them at Meijers too).

I did however, get a list of the Meijers products that are gluten-free so I stuck to that list plus the mealbox coupons and added mfg coupons for more $$ off my purchase (was able to get 2 jars of classico for 2 bucks! sale 2 for $4.00 - $1.00 off 2 mealbox - and $1.00 off 2 mfg coupon!) So I didn't do too bad there.

It was busy and crowded but not for the gluten-free event. I found the shelves restocked this time tho so I got a Betty Crocker cookie mix gluten-free series...w/ coupon of course.

Sucks thos that Meijer doesn't have fresh ground sausage anymore - and I can't trust the pkg'd ones.

Anyone else have any luck today?

And yes, feeling close to normal again, but got a case of the F-it's! forcing myself thru it tho!

[nmlove]

Shopping trip wasn't exactly what I expected - sampled ginger snaps but they didn't know which aisle I was going to find them in (since I notice they scatter them at Meijers too).

I did however, get a list of the Meijers products that are gluten-free so I stuck to that list plus the mealbox coupons and added mfg coupons for more $$ off my purchase (was able to get 2 jars of classico for 2 bucks! sale 2 for $4.00 - $1.00 off 2 mealbox - and $1.00 off 2 mfg coupon!) So I didn't do too bad there.

It was busy and crowded but not for the gluten-free event. I found the shelves restocked this time tho so I got a Betty Crocker cookie mix gluten-free series...w/ coupon of course.

Sucks thos that Meijer doesn't have fresh ground sausage anymore - and I can't trust the pkg'd ones.

Anyone else have any luck today?

And yes, feeling close to normal again, but got a case of the F-it's! forcing myself thru it tho!

Glad you're getting back to your self. I went to Meijer today too. It was a bummer. They had three things to sample: Glutino's pretzel sticks and crackers and some vegetable soup. No coupons whatsoever. I did pick up the list of Meijer brand gluten-free foods. And already there was a mistake. The tator tots are coated in wheat. Oh well. Worth a shot.

[tmbarke]

Glad you're getting back to your self. I went to Meijer today too. It was a bummer. They had three things to sample: Glutino's pretzel sticks and crackers and some vegetable soup. No coupons whatsoever. I did pick up the list of Meijer brand gluten-free foods. And already there was a mistake. The tator tots are coated in wheat. Oh well. Worth a shot.

Good to know! I'll cross that off of my list.......once it dries! Just spilled my coffee all over it!

Man, although I'm pulling thru......I still have the mishaps. Feel stiff and weak after nap....then realized I've only had a bowl of corn chex today.

Time to make something.

[MKat]

Good to know! I'll cross that off of my list.......once it dries! Just spilled my coffee all over it!

Man, although I'm pulling thru......I still have the mishaps. Feel stiff and weak after nap....then realized I've only had a bowl of corn chex today.

Time to make something.

I heard one of the Meijer sample ladies today tell someone "I don't even know what gluten is...where do you look for it on the box". YIKES!!! At least they could have trained their sample ladies so they would be somewhat helpful!!

BTW - once gluten how long to people normally have diarrhea??? I have a HARD time recovering from that part of being glutened!!

[Mey Marie]

I heard one of the Meijer sample ladies today tell someone "I don't even know what gluten is...where do you look for it on the box". YIKES!!! At least they could have trained their sample ladies so they would be somewhat helpful!!

BTW - once gluten how long to people normally have diarrhea??? I have a HARD time recovering from that part of being glutened!!

It took me about 3 days this last time. Still a little off but Now constipated.... What ever that's about. The three days wasn't as long as I thought it would be. Felt like forever though.

[GFinDC]

I was feeling my neck swell a tad - more of an uncomfortable feeling so I knew it was the salad.

I wonder if you have considered Hashimoto's Thyroiditis? Hashi's is an autoimmune reaction against the thyroid that people with celiac sometimes get. The effect can alternate between hyperthyroid and hypothyroid symptoms. Swelling in the throat could be a symptom of Hashi's is why I ask. Plus feeling hyper could be another possible link. Anyhow, it's something to read up on and think about.

After I went gluten-free I was suprised at how strong my reactions to gluten became. I reacted to very small amounts of the stuff after I had been off it for a while.

[tmbarke]

I wonder if you have considered Hashimoto's Thyroiditis? Hashi's is an autoimmune reaction against the thyroid that people with celiac sometimes get. The effect can alternate between hyperthyroid and hypothyroid symptoms. Swelling in the throat could be a symptom of Hashi's is why I ask. Plus feeling hyper could be another possible link. Anyhow, it's something to read up on and think about.

I didn't know anything about it until you mentioned it so I looked it up.

SHOOT!

I suppose there are 2 possibilities now.

When I read up on wheat allergy, anaphylactic was mentioned as a reaction so I thought no further.

My doctor did a swallow test with me during my physical and felt the glands too.

If being gluten free will avoid the attack on my thyroid, then I'm hoping that I can do that first and foremost.

If I have any more reactions knowing I'm gluten free - then I'll schedule the appt with my doctor and discuss this new possibility.

I do see with Hasimoto's where I should be concerned since coma can be a result.

But if I'm taking care of my autoimmune system, then it shouldn't attack my thyroid as mentioned in the article I read.

Thank You for your input - that is definitely something I'm going to keep an eye on.

Do you mention this from experience?

Enthrall me.

[haleym]

oh man... this kinda reminds me of how I get when Ive eaten something no-no. Wierd! I get a feeling like Ive swallowed some glass shards, and get spacey, moody and feel overall not well. And fatigued!

Im glad to know that not everyone has gastro sx right away... for me the glass shards feeling seems to come a few hours after the fact.

Good luck with hashi's by the way. I have that and it is a wierd one. The thyroid is not one to be trifled with... if you suspect, get it checked because it will make all the difference!

[GFinDC]

Nope, I don't have Hashimoto's at least that I know. I do have a thyroid cyst and a couple thyroid nodules though. There are several people around the board with Hashi's. They say Hashi's can cause your thyroid levels to swing back and forth between too low and too high. I am just a little hypo from thyroid problems. A little goes a long way with the thyroid though. Like HaleyM said, it is something to get checked for. Not everyone with celiac gets Hashimoto's. My hypo symptoms were joints getting sore, I didn't have any energy, couldn't sleep well, got lots of brain fog, digestion was bad. Some similar symptoms to gluten.