Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Warning Label


jenvan

Recommended Posts

turtle99 Rookie

Question re: labels

Do you any of you eat products that do not specifically say "gulten free" ?

For example many corn chips, do not have gluten-typle ingredients, would you still eat them?

Do you consider it risky to eat products that are not labelled gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Most of us eat many products that aren't specifically marked gluten-free. In fact, large numbers of products that aren't marked gluten-free are indeed gluten-free.

richard

MySuicidalTurtle Enthusiast

I eat those kind if I call the company first.

KaitiUSA Enthusiast

There are some brands like Kraft who will not hide anything but they do not list gluten free on the label. They will however list wheat,rye,barley,oats right on the label if they contain any.

For other brands who do not have that policy and don't list gluten free on them the best thing is too call the company.

I eat alot of products that don't say specifically gluten free on them.

tarnalberry Community Regular

I'll definitely eat things that aren't specifically labeled gluten-free, if the ingredients are gluten-free.

Guest gillian502

I will absolutely not eat any products that have a warning label on them, no way. They are basically telling you point blank the item is cross contaminated. I will eat items only if I have called the company and they tell me that particular item is not run on the same lines with a gluten containing food.

As for eating items not labeled gluten-free, we have no other choice. Few foods are marked "gluten-free" even though they may be gluten-free.

phakephur Apprentice

I would assume the absence of a warning label would indicate lack of awareness of the gluten free lifestyle, not necessarily the lack of cross contamination.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lotusgem Rookie

Oh my! Assumptions can be very risky business. If there's one thing I've learned since going gluten-free, it is that you can not take anything for granted. Until we get actual legal guidelines for food labeling as regards gluten, it's always best to check and make sure that your "assumption" is accurate, lest you eat something unsafe. :rolleyes:

Paula

turtle99 Rookie

I hadn't realized that going gluten-free was such tricky business til I started. I ate a wonderfully yummy organic chocolate bar, when half way through , I read on the label that it was made in a facilitythat uses wheat! So I kinda lied to myself, thinking maybe this bar didn't come into contact with it......because it tastes soooo good. So I ate the rest of the chocolate bar, and my lethargic old self was returning. It wasn't as severe but I starting feeling off..... Ok, yeh , so I learned my lesson. I need to take these warnings seriously.

I think if we want to be absolutely sure we do need some kind of verification from the makers of the product. So that's a lot of companies to call! I'm starting to get so scared of what to eat, I'm just eating plain whole foods now like potatoes, cheese, rice, eggs, fruits, salad.

What about deli meats? sausages? Do they usually contain gluten?

Do any of you have bad reactions to preservatives and additives, and flavour enhancers, like MSG ?

baggotlane Rookie

I don't see how the defense could stand up! If they say 'gluten-free' then it must be gluten-free, no matter where or how it is produced. How can that statement mean anything else? What do they mea by facility?

It's all a farce. For me, if iIsee the warning I cannot trust the company. Therefore I will not buy it.

Andrew

Nadtorious Rookie

I'm not going to point fingers, but yes, there is at least one company that labels their products as gluten free on the front of the package, but has the CYA warning on the back about being produced in the same facility and that cross contamination may occur. I know a lot of people haven't reacted to these products, but I have, and I think its kind of shady that a company can get away with that. Many new celiacs, like me at one point, saw a gluten free label as worry free and don't bother to read the ingredients. It's scary to think that a company would want to take advantage of such a serious illness by marketing something this way. I never thought I'd say this, but maybe the FDA needs to get involved in this.

Peace-

Nadia

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,961
    • Most Online (within 30 mins)
      7,748

    Noa
    Newest Member
    Noa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.