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Breathing Symptoms For Celiac

netteredl

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netteredl Newbie
netteredl
Posted

I am just curious if anyone ever experienced shortness of breath before they were diagnosed with Celiac disease? I have been recently diagnosed and It took well over two years to find out what was wrong. Finally a blood test showed that I am very anemic and deficient in iron, B, and D. The Doctors think that the shortness of breath was coming from being anemic. After being on the gluten free diet and Dairy free the shortness of breath has subsided. Just curious if anyone had this symptom also. Thanks

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soulcurrent Explorer
soulcurrent
Posted

I just posted about this very same issue, and found that lots of people experienced the shortness of breath. Mine hasn't gotten better but evidently it will!

Here's the other topic if you want to read through it: https://www.celiac.com/gluten-free/index.php?showtopic=63183

sbraden Newbie
sbraden
Posted

I'm not diagnosed celiac, but rather gluten intolerant. Yes, I had the shortness of breath and still do occasionally. My doctor says it's related to B deficiency (if I recall correctly). When I start having the issue again, I usually realize that I am out of my B complex. I'm one who believes I'll always need some supplementation. I don't think the malabsorption issues can ever be totally resolved for some people. But if I take my supplements and eat right, I feel great!

Shirley

Blog: gfe--gluten free easily at Open Original Shared Link

Leader, King George Gluten Intolerance and Celiac Group

ravenwoodglass Mentor
ravenwoodglass
Posted

Before diagnosis I had chronic bronchitis since childhood and was diagnosed with ashtma a couple years before I was diagnosed celiac and put on singulair and an inhalor. I was told these issues were directly related to my smoking and my mothers smoking when I was a child. I haven't had an asthma attack since I went gluten free nor have I had bronchitis. I had been an undiagnosed celiac since childhood and believe these both were related to the inflammation from the gluten. I had lung fuction testing done a couple years ago and the tech lectured me at length about my smoking and how much damage it was doing to my lungs. As the test went on he actually seemed to get angry the longer the testing went on the angrier he got until he was basically yelling at me by the end, and quite disrespectful. He refused to tell me anything about the tests but when I went to see the doctor he was quite shocked that the results were perfectly normal. In my particular case the lung issues do seem to have been directly a result of the gluten.

Roda Rising Star
Roda
Posted

Yes! My first symptoms were extreme tachycardia and sob. Did not find out until 10 months later that I was anemic and another 6 months to find out my ferritin was in the ditch. I believe my symptoms to be from this. I still have problems with it but not as severe now. I am still being treated for the anemia/low ferritin.

netteredl Newbie
netteredl
Posted
  • Author

Thank you for responding. I find that I still can not tolerate dairy products and if I eat something that has dairy, gluten or wheat the shortness of breath returns quickly. I am on a lot of vitamins and that seems to be helping with the shortness of breath. I find that on the gluten free diet I am not having allergy symptoms to the weather....amazing. Thanks again.

netteredl Newbie
netteredl
Posted
  • Author
I'm not diagnosed celiac, but rather gluten intolerant. Yes, I had the shortness of breath and still do occasionally. My doctor says it's related to B deficiency (if I recall correctly). When I start having the issue again, I usually realize that I am out of my B complex. I'm one who believes I'll always need some supplementation. I don't think the malabsorption issues can ever be totally resolved for some people. But if I take my supplements and eat right, I feel great!

Shirley

Blog: gfe--gluten free easily at Open Original Shared Link

Leader, King George Gluten Intolerance and Celiac Group

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      Positive biopsy

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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Fruits & Veggies

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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
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      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
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      26F!
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