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Got Glutend Last Night Really Bad.

Mey Marie

By Mey Marie
in Coping with Celiac Disease

Recommended Posts

Mey Marie Explorer
Mey Marie
Posted

For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

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GottaSki Mentor
GottaSki
Posted

:(

Not sure what's making you sick. I do know that for my first few months most food still made me slightly ill -- this improved about month 5.

How long have you been healing?

Hope you feel better today!

cmg4835 Newbie
cmg4835
Posted

YOU CAN'T GIVE UP !!!! I feel the same way. I eat Cherrtos and M&M for lunch. As soon as my tummy bloats up I eat whatever I want - maybe not the best advice. But survive of the mind is most important....don't give up ....

Mey Marie Explorer
Mey Marie
Posted
  • Author
YOU CAN'T GIVE UP !!!! I feel the same way. I eat Cherrtos and M&M for lunch. As soon as my tummy bloats up I eat whatever I want - maybe not the best advice. But survive of the mind is most important....don't give up ....

It's just so hard because I am doing everything I am supposed to do. I have my kitchen set up just rite and now I don't know what else to give up. If I give up any more foods, I won't be eating any more.

ravenwoodglass Mentor
ravenwoodglass
Posted

I would start keeping a food and symptom diary. Gluten can be sneaky and the symptoms can sometimes be delayed. A diary will help you pinpoint what is getting you a bit easier. It is hard at first and we do have some ups and downs but hang in there and eat as much whole unprocessed foods as you can. I hope you feel better soon.

Mey Marie Explorer
Mey Marie
Posted
  • Author
I would start keeping a food and symptom diary. Gluten can be sneaky and the symptoms can sometimes be delayed. A diary will help you pinpoint what is getting you a bit easier. It is hard at first and we do have some ups and downs but hang in there and eat as much whole unprocessed foods as you can. I hope you feel better soon.

Thank you guys.

ang1e0251 Contributor
ang1e0251
Posted

You can do it! There are just a lot of ups and downs when you start out. I agree with the simple whole foods. The frozen prepared foods or mixes are hard on you in the beginning. Just simple foods you prepare yourself then note down in your food journal. If you have symptoms, then note them too. This seems simplistic but it really will help you pinpoint any problems.

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Northern Celiac Newbie
Northern Celiac
Posted
For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

Yup,

don't give up. But forget the prepackaged stuff like the amy's sheppards pie. The only safe prepackaged products I have found out there are GLUTINO. they are definately gluten free. Keep a diary tho, I have found that is a huge help. Also I live by a very simple motto"WHEN IN DOUBT, LEAVE IT OUT".

There's a couple of receipe site's out there as well

www.glutenfreeonashoestring.com

www.glutenfreegodess.blogspot.com

The big thing is that there's lots of hidden gluten out there and you need to take the time to read the labels. I know because I had problems this summer after my diagnosis. I glutened myself more than once.

Best wishes

Mike

P.S.

Stick it out you w2ill feel better and remember

"YOU ARE NOT ALONE"

ksymonds84 Enthusiast
ksymonds84
Posted
For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

Everything you ate (yes even the mayo) has soy except the artichoke. took me almost two years to discover soy was a problem too. Otherwise, my GI who is also gluten intolerant said that Amy's is notorious for cc (based on what patients tell him). Hope you figure it out, I know its frusterating!

AKcollegestudent Apprentice
AKcollegestudent
Posted

It will get better, but that's not to say it'll be fun getting there. Have you tried eating meat, vegetables, and carbs? (Quinoa as a grain/carb to replace rice comes to mind.) Eating unprocessed foods without any other possible allergens was how I survived on an elimination diet for months.

And I know that even if I didn't react violently to soy and dairy, I would recommend giving up both (I know; you've already done that for dairy) for a while. Even before we knew that I have severe reactions to the two, my nutritionist pointed out that gluten, soy, and dairy irritate the immune system in the same manner, especially when the body is still healing.

Good luck and hang in there.

Switch2GF Rookie
Switch2GF
Posted
It will get better, but that's not to say it'll be fun getting there. Have you tried eating meat, vegetables, and carbs? (Quinoa as a grain/carb to replace rice comes to mind.) Eating unprocessed foods without any other possible allergens was how I survived on an elimination diet for months.

This is how I stared out as I was learning, plus it is very healthy.

I would stick to: chicken, rice, corn chips, peanuts, fruits and veggies. Just make some really basic meals. Don't add anything like BBQ sauce, or anything processed that you are uncertain about. Keep it SIMPLE.

Then, expand from there. I would eat chicken and rice with some BBQ sauce, and it would bother me... so I cut out the BBQ sauce(and then found one that was 100% gluten-free).

Glamour Explorer
Glamour
Posted

I agree with the fact that the body must be super sensitive to many other things if one has been celiac for a while. The DH rash seems to react to the smallest amount of gluten (maybe the villi are damaged and the antibodies are concentrated in the skin to a point that set backs are frequent.

I am not giving up. I feel better. I am starting to sleep better. Brain fog and depression are lifting.

I am about to go all non-prepared/fresh/raw foods, because of CC. Maybe after being gluten-free for a while the body can handle small amounts of CC.

I need to find beans and rice that guarantee being gluten free, as well as corn grits.

I also think fresh raw fruits and vegetables and spices might help to flush the body, skin, organs and all and get digestive enzymes functioning again. I think out of balance yeast and other flora is most likely an issue with celiac .

eatingganesh Newbie
eatingganesh
Posted

Increasing sensitivity seems fairly common when a gluten-free diet is first adopted. ALOT of people complain about discovering new levels of sensitivity and new "intolerances" during the first few months (and up to a year and beyond). I've been gluten-free since the end of July and am now becoming more sensitive than ever before and to new and exciting things. Dairy is one... eggs... MSG is another.

I think there are a few things going on:

1. Increased awareness of your bodily functions is making you more sensitive to your responses to certain foods. Corn seems to mess me up now - it always had... but now I recognize that the reaction is not normal whereas before I would've just shrugged it off as 'bad gas'.

2. Once on a gluten-free diet, the intestinal tract is healing and as it does so it becomes more sensitive than usual... just like if you have a scrape, if you scrape the scrape it hurts like hell - way worse than the original scrape! My healer recommended a live culture yogurt to help speading that along... and I will attest that one Activia a day has helped me tremendously. See Open Original Shared Link for info on the utility of live culture for healing.

3. As the body withdraws and heals from gluten poisoning, it becomes more reactive to smaller and even diluted 'doses' of gluten. Other posts are pointing you in that direction, and its been my experience too. When I first started on this gluten-free diet I could handle soy sauce that had some wheat in it... I won't go near the stuff now. Over time and GFreeness we just get more sensitive.

I have recently found it very helpful to make a list of meals I can have, rather than focusing on what I cannot. When I find a meal that digests well with no symptoms, I add it to the list. The list is growing!

Mtndog Collaborator
Mtndog
Posted
For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

Hang in there! I got sick very easily at first. I had to eliminate dairy, soy and then eventually all legumes (including my beloved peanut butter) at first. Keeping a food journal was key in helping me identify what caused problems and then posting here helped me put it all together.

Some Amy's products ARE made on shared equipment (the Shepherd's Pie is) and they used to make me very sick. Now that I have healed I eat the rice crust pizza with no problem.

Another thing I wanted to ask you was is your mayo shared? If so, it could be contaminated and that would certainly cause a reaction.

Hang in there, keep asking questions and keep a food diary! You'll make it. The beginning is the hardest- now it's a piece of gluten-free cake (most of the time)!

eatingganesh Newbie
eatingganesh
Posted

Forgot to say that... after the body has healed and adjusted to the new diet, many people find that they become able to eat dairy etc again. I know soy is not dairy, but the point is that all manner of things will upset your stomach and GI tract while adjusting to gluten-free.

Try not to get discouraged! Many of us our basically following the paleolithic diet to get through this, so you are not alone in feeling like there will soon be nothing left that you can eat. Just give your body time to adjust and heal and all will be well.

Mey Marie Explorer
Mey Marie
Posted
  • Author
Hang in there! I got sick very easily at first. I had to eliminate dairy, soy and then eventually all legumes (including my beloved peanut butter) at first. Keeping a food journal was key in helping me identify what caused problems and then posting here helped me put it all together.

Some Amy's products ARE made on shared equipment (the Shepherd's Pie is) and they used to make me very sick. Now that I have healed I eat the rice crust pizza with no problem.

Another thing I wanted to ask you was is your mayo shared? If so, it could be contaminated and that would certainly cause a reaction.

Hang in there, keep asking questions and keep a food diary! You'll make it. The beginning is the hardest- now it's a piece of gluten-free cake (most of the time)!

You know?.... I have my own peanut butter in my special cupboard, But I never thought of the Mayo. Thank you. I can't believe I never thought about that.
momofcdson Rookie
momofcdson
Posted
For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

My son has been gluten free for nine months. He seems to get stomach aches and diarrhea every couple weeks or so. Is this cross contamination? He first started having the symptoms a year ago, and was diagnosed within six months! I feel very fortuante for that. He is 24 years old. He has noticed a huge improvement since going gluten free. He suffered from brain fog, hair loss, tired all the time. These have all improved.

ravenwoodglass Mentor
ravenwoodglass
Posted
My son has been gluten free for nine months. He seems to get stomach aches and diarrhea every couple weeks or so. Is this cross contamination? He first started having the symptoms a year ago, and was diagnosed within six months! I feel very fortuante for that. He is 24 years old. He has noticed a huge improvement since going gluten free. He suffered from brain fog, hair loss, tired all the time. These have all improved.

Hi and welcome to the board. It certainly could be CC depending on what he typically eats. If he eats out a lot that may be an issue. Does he go out with freinds for drinks? He needs to be careful with mixers and some of us have issues with distilled gluten grains also. Some of us also have other intolerances that come to the forefront once gluten is avoided. It can be hard to figure out.

He was diagnosed within 6 months! That is great as it often takes a while for us to get a diagnosis. I am glad he is improving. You might want to start a new topic and let us know what he is eating and perhaps we can assist a little better.

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