Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Latest In Tsh Levels Controversy?

beanpot

By beanpot
in Related Issues & Disorders

Recommended Posts

beanpot Apprentice
beanpot
Posted

Does anyone have a handle on the latest ideas about what a person's tsh levels should be? Last I heard they were saying that the old lab standards .5 to 5.0 were too broad. My tsh levels are 4.31, and up from last year, but are considered normal because the lab my GP uses has a range from like .5 to 5.40 or something. I do have some mild symptoms, but don't want to take medicine unless necessary or unless recommended.

Bleh!

Thanks for any info!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

According to the American Endocrinology Association, TSH levels above 3.0 indicate Hypothyroid, which needs to be treated. Unfortunately, too many Endos look at the old levels. They need to be re-educated :blink:

Gemini Experienced
Gemini
Posted
According to the American Endocrinology Association, TSH levels above 3.0 indicate Hypothyroid, which needs to be treated. Unfortunately, too many Endos look at the old levels. They need to be re-educated :blink:

Agreed! The lab I am tested through is very progressive and they use an upper limit of 2.5 for the TSH. I would have to agree with them, judging from my symptoms when my TSH goes over 2!

Beanpot....you would not be taking medication for a low thyroid but a hormone replacement for what you are lacking. I don't consider that medication because thyroid hormone is supposed to be in your body, at the correct levels. If you have mild symptoms, you need to be treated for it. Your TSH is well into the hypo range.

Tigercat17 Enthusiast
Tigercat17
Posted
According to the American Endocrinology Association, TSH levels above 3.0 indicate Hypothyroid, which needs to be treated. Unfortunately, too many Endos look at the old levels. They need to be re-educated :blink:

Totally agree! My endo follows this new giudeline also.

Roda Rising Star
Roda
Posted

The reference range in the lab I get my blood work states "The TSH reference interval of 0.3 to 3.04 uIU/ml reflects the guidline recommendations from the American Association of Clinical Endocrinologists and many others because of the finding that repeated TSH levels above 3.0 may indicate the early stages of thyroid failure. In addition, a TSH level less than 2.5 uIU/ml is considered optimal in pregnancy." This is what is directly typed underneath my latest results. On 10/13 my TSH was 0.81, free T4 of 1.17ng/dl (0.58-1.64) and free T3 of 4.20 pg/ml (2.50-3.90). My doctor called me to tell me all looked good no dosage change. I take 112 mcg levothyroxine(T4) once a day and 5 mcg leiothyronine(T3-generic cytomel) twice a day. I function better with my free T3 in the upper limit if not slightly over.

Wolicki Enthusiast
Wolicki
Posted

My endo uses the old standards. I am waiting for an appointment with a new guy next month. In the meantime, I would love opinions about what treatment you are receiving. He wrote me a scrip for Levoxyl, 7mcg, which is WAY too low a dose, according to the package insert. I wonder if those of you with similar labs take Cytomel or other T3 scrips? Here are my labs:

Tsh 3rd gen 5.05 (.2-4.7)

t4 free 1.0 (.8-1.8)

t3 free 335 (230-420)

I can't find the antibody thyroid tests, but they were in the normal range. Thanks!

beanpot Apprentice
beanpot
Posted
  • Author

Okay, thanks everybody! I guess its worth calling and telling the doc then. Maybe I can find the new guidelines on the web to back myself up.

I am having a lot of the symptoms, and my mother and my aunt have it too. Oh well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MaryJones2 Enthusiast
MaryJones2
Posted

There is some good info on TSH in here: Open Original Shared Link

My Endo thinks that anything above 2 is cause for concern especially if you are exhibiting symptoms. I tend to agree with him.

  • 9 months later...
SaraKat Contributor
SaraKat
Posted

My endo likes to keep me at 2-2.5. I take 25 mcg of synthroid now. I just started this in April. I have to get my levels checked again soon. They were around 4.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    4. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    5. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac. (This was the same GP who said Dad didn't have dementia, when months before one of his colleagues suspected it and told me Dad must be diagnosed).  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.