Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Big Mistake


positivenrgfairy

Recommended Posts

positivenrgfairy Apprentice

I have been so guilty lately, of not asking what I'm eating because I am too embarrassed. Even in Austin, a pretty cool city, when I do ask about it people stare at me like I'm an alien.

im def. having a reaction right now bc I was too ashamed to ask.

I don't really need advice, just wanted to talk it out. I know it's my own fault.

I have been telling restaurants that I'm allergic to wheat, which doesn't help anything bc there's gluten in stuff that is wheat free.

but you all know that.

This is not my forte in life, and I don't like being thrust into a situation when I have to stand out and demand special treatment. It's not my style, man. It makes me so uncomfortable asking people to make special preparations. and my husband and I go out a lot, or we used to. I guess we should just stay in. feels like im having a neverending reaction.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I was there once. I am not there anymore.

When you are at a restaurant, it is their job to prepare food according to your needs. That is what you are paying them for. They can only do this if you clearly tell them what those needs are.

I have found that it makes a difference how you communicate. Most people have no idea what "gluten" is--they confuse it with glucose or glutamate (both of which are gluten-free). I explain that I have a sensitivity (I sometime use the word "allergy" even though it is not correct) to wheat, rye and barley, and so must avoid all flours and breads. It amazes me how many people don't realize that flour is wheat, or who think that white bread is not made from wheat. :huh:

Having said all that, there is definitely a better chance of having your needs understood at an independent restaurant with a chef, or a celiac-aware chain like Outback, than at a low-end high-volume chain establishment.

You shouldn't need to be embarrassed, but you will need to be expressive about your needs.

Raven's Mum Newbie

Ugghh.... I hear ya. I'm the same way. I don't like buggin' people to go out of the way for our sake and even when we do, I still worry about the cross contamination. <_< We've just decided that on the rare occasion that we do go out, that we'll bring something for my daughter. I'm waiting for some restraunt to have an issue with us bring ''outside food''! lol

haleym Contributor
I have been so guilty lately, of not asking what I'm eating because I am too embarrassed. Even in Austin, a pretty cool city, when I do ask about it people stare at me like I'm an alien.

im def. having a reaction right now bc I was too ashamed to ask.

I don't really need advice, just wanted to talk it out. I know it's my own fault.

I have been telling restaurants that I'm allergic to wheat, which doesn't help anything bc there's gluten in stuff that is wheat free.

but you all know that.

This is not my forte in life, and I don't like being thrust into a situation when I have to stand out and demand special treatment. It's not my style, man. It makes me so uncomfortable asking people to make special preparations. and my husband and I go out a lot, or we used to. I guess we should just stay in. feels like im having a neverending reaction.

Im in the same boat as you now... I am SOOOOOO incredibly self conscious about my gluten intolerance! Do some role playing and eventually you will get the hang of it! I am finally getting up the nerve to tell my fellow employees at work the reason I dont eat the potluck food and the pizzas that they order! The more often you talk about it, the easier it gets.

Good luck!

Haley

mushroom Proficient
I am finally getting up the nerve to tell my fellow employees at work the reason I dont eat the potluck food and the pizzas that they order! The more often you talk about it, the easier it gets.

My goodness, yes, you must talk about it. It is not something to be ashamed of and keep to yourself. Yes, you are drawing attention to yourself, but you do have to get over it, and yourself, and just accept that that is the way it is. And with practice it does get easier.

nu-to-no-glu Apprentice

I know, I know...my husband and I went on a date last night and I had the manager and chef at the table, and I just kept saying, "I'm sorry". I hate all the attention and drama (and sending the waitress back and forth). I've been really researching the internet and finding all the local and chain restaraunts that offer specific menus. I've also called ahead when my team at work went out to eat to avoid making a scene, and the darn chef kept coming out to check on me and talk to me. I felt so embarassed, but he was really excited to accomodate me :) I think the more places we go, the easier it'll be. Finding those menus online has really helped a lot. It is really annoying, but I'd rather not be sick. And, I'm finding that a lot of the wait-staff at places we go are already knowledgeable... so, you aren't the first to ask...my biggest beef is that at a lot of places, they always recommend fish! Me no likey! (But, I almost didn't ask last night and ordered chicken I thought would be ok, until the chef told me the marinade had gluten in it. I'm glad I asked!)

momxyz Contributor

A month ago I went out with friends and I definitely did not want to draw atention or make a big deal! I didn't want to be different - I just wanted to have fun. I ended up studying their menu on line and contacting them a few days ahead of time. Basically I picked possible selections and reviewed these with the staff, to ensure all ingredients were gluten free. They were knowledgeable and helpful and by preparing ahead, I was able to relax and enjoy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laughingduck Rookie

I have a shellfish allergy and am also shy to bring this up and stand out at restaurants. What I often do is look over the menu and see what I want quickly, then get up to use the washroom and on the way stop the waitress to make her aware of my allergy and ask that she lets the chef know. This way I don't feel like I am making a big fuss in front of everybody, but I am still being safe. Don't worry you'll get used to it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.