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Depression, Bipolar And All Other Celiac Crazies


JamieSims

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JamieSims Newbie

First of all


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YoloGx Rookie

Don't have much time to deal with this today but yes a resounding yes!! One of the first places I noticed my "allergies" affecting me was my brain. Its also one of the first to go if I am at all off diet. EAting a basic whole foods diet without gluten or sugar seems essential for me. A paleo diet was very helpful with the addition of home made 24 hour yogurt using greek yogurt as a base. Can finally tolerate whole brown rice, but not tons of it due to candida overgrowth possibilties. Find olive leaf extract by the way a godsend--for getting rid of fibromyalgia/arthritic like symptoms especially with dandelion root. No alcohol extracts however. Boiling them up myself is best. I started a thread that might be useful to you called "Back to Basics". Most find eating more vegetables really helps, including the brain, emotions and the joints...

Bea

cat3883 Explorer

I was on anti-depressants and anti-anxiety meds for years and years. My celiac disease affected my brain more than any other part of my body. I had severe migraines (hospitalized because of them), constant brain fog, and of course the depression and anxiety I was being treated for. Let me just say this, after 13 months of a gluten free diet I am no longer on my meds, have no headaches whatsoever, and no brain fog. By the way, I am 50 years young. Make sure your meds are gluten free. Have your pharmacist contact the manufacturers. Don't forget to check your toothpaste, shampoo, anything that can touch your lips. Best of luck to you, but please please please be careful about stopping your meds. This can wreak havoc on your brain. Take care of yourself.

summerteeth Enthusiast

I just want to preface that this is my personal story and BY NO MEANS recommendation for others:

I was diagnosed with ADD at 8 years old. I was put on Concerta and took it religiously until the day I turned 18. I knew I did not have ADD, something else was wrong.

I was diagnosed bipolar just over two years ago. I was going through horrible things in my personal life that I will not go into on such a public forum. So August 2007, I lost about 20 pounds, fast. And I did not have much weight to lose. I dropped down to about 104 lbs (I am 5'6). I began "acting out" (doing things that I would not normally do, ie, heavy drinking, piercings, tattoos....). My mom and then-boyfriend (now fiance) made me see a doctor. I was an out patient and a mental facility for about two weeks, and was diagnosed bipolar. I was put on a slew of medications: lithium, depakote, xanax, seroquel, flexeril, etc. This made things WAY worse. I ballooned, weight wise. I think I gained 50 pounds. And it seemed like it was overnight. People at work would ask if I was pregnant, and in my fragile state, this made things worse. I was getting deeper and deeper into boughts of depression and anxiety.

May 2008 I decided to stop taking all of my medications, cold turkey. I stopped going to therapy. This was about two weeks before my 21st birthday. By June 2008, I felt two hundred times better (because I was no longer under a stupor from medication). The medicine made things drastically worse, but I was still getting the mild panic attacks and mild depression, similar to what I had before I was heavily medicated. I am not bipolar. I never was. I went to an AMAZING doctor, who was recommended by my mom, and she diagnosed me with celiac disease. I went gluten free November 2008, and now, the only times I get anxious/depressed is when I get glutened. I feel SO much better. One of the most detrimental effects of glutenings, to me, is extreme frustration/anxiety. I will be in a public place and, all of a sudden, feel a wave of panic (only after being glutened).

That being said, I am grateful for the therapist I saw throughout all of this. She helped me so much sort out the catalysts in my personal life.

Unfortunately, I too quickly got to the point that I would no longer listen to doctors. Medication was just pushed on me. And yes, I did need something to deal with the problems, at the time. But in retrospect, my problems had more to do with my diet than with my mental state.

That is just my two cents, though. And PLEASE PLEASE PLEASE do not pull stupid crap like I did: talk to your doctor before doing anything radical.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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