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Do Nerve Problems=healing?


hammer44

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hammer44 Newbie

Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.


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Wolicki Enthusiast
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

THe same thing happened to me! I developed neuropathy and restless legs AFTER going gluten-free. Doc is fairlysure thatthe neuropathy is from low B12 and RL from low Iron. Have you had yours checked?

Korwyn Explorer
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

I developed neuropathy and myoclonus after going gluten-free. Turned out I developed an allergy to Soy which was causing CNS inflammation and damage. Refined sugars in any form cause my RLS to reappear.

ravenwoodglass Mentor
For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

Have you made sure that all of those are for sure and for certain gluten-free?

hammer44 Newbie
Have you made sure that all of those are for sure and for certain gluten-free?

Absolutely, Im pretty careful now about what I feed my body. Many of the products do have soy in them.

Eric-C Enthusiast
Absolutely, Im pretty careful now about what I feed my body. Many of the products do have soy in them.

Same thing.

Take B12, D3, and Candex for yeast, all went away. I have no problems with soy or any other allergy thankfully.

Alphawave Rookie
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

The others are absolutely correct as to the B vitamins. I suggest that you try sublingual B-12 (you can get these anywhere, even Walgreens). You cannot overdose on B vitamins, and you are going to have trouble until you heal to absorb nutrients. By the way, a recent study, (the Haines Study), says 42% of Americans are vitamin b-12 deficient. Also, you MUST take Magnesium. Your "gut" won't handle much right now. I heartily suggest magnesium oils, gel, or even Epsom salt baths. I am an older nurse, and it used to be that epsom salt baths were ordered by doctors for anyone at risk for magnesium deficiency (Diabetes, thyroid issues, auto-immune diseases). A magnesium deficiency will NOT show up in regular lab work. Magnesium will draw from your bones and tissues to "go" to your bloodstream. Topical magnesium DOES work well. Without magnesium you cannot absorb calcium well and thus your bones will become porous (osteopenia). Magnesium also relaxes the muscles and arteries of the blood system. It helps you sleep and rest and prevent backaches, etc. Let me know how you are doing.


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Wolicki Enthusiast
The others are absolutely correct as to the B vitamins. I suggest that you try sublingual B-12 (you can get these anywhere, even Walgreens). You cannot overdose on B vitamins, and you are going to have trouble until you heal to absorb nutrients. By the way, a recent study, (the Haines Study), says 42% of Americans are vitamin b-12 deficient. Also, you MUST take Magnesium. Your "gut" won't handle much right now. I heartily suggest magnesium oils, gel, or even Epsom salt baths. I am an older nurse, and it used to be that epsom salt baths were ordered by doctors for anyone at risk for magnesium deficiency (Diabetes, thyroid issues, auto-immune diseases). A magnesium deficiency will NOT show up in regular lab work. Magnesium will draw from your bones and tissues to "go" to your bloodstream. Topical magnesium DOES work well. Without magnesium you cannot absorb calcium well and thus your bones will become porous (osteopenia). Magnesium also relaxes the muscles and arteries of the blood system. It helps you sleep and rest and prevent backaches, etc. Let me know how you are doing.

Alphawave,

This is interesting about magnesium. I stopped taking it because my blood levels were normal. Do you have any links to any articles on this? Thanks!

one more mile Contributor

soy makes me feel like crap, runs, restless leg, body achs. ( I no longer eat it)

Amber M Explorer
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

I have been gluten free for over a year now and still have problems with Gluten Ataxia which includes some of your stuff. After finally tapping into the "Candida" issue, thanks to you people, I have been on mega doses of probiotics and am getting some relief. I researched to discover that the outside of the cell of the yeast infection produces the exact same protien as gluten and will attack the same as gluten! Shock! I had a white tounge, thats it, but obviously (after several rounds of antibiotics), ya, I had an overgrowth. My Ataxia was at its worst during both of the last 2 rounds of atibiotic. But the overgrowth of yeast has been there for a lot longer than that. No wonder I haven't been well.

But another issue has cropped up. The Doc thinks there may be an "underlying" issue that brought the imulogical gluten issue out to begin with since I was genetically pre-disposed for it. Upon further research, I disscovered that they now think the over growth of yeast brings out our pre-dispossed for diseases! They are testing me for "Lymes" and "Heavy Metals" too (I work with 7 types). What ever brought the gluten issue to the surface, it is here for life now, just like diabetes, etc. I don't try to fool myself into to thinking I can eat the stuff again, but maybe corn?, or the many other food allergies that have cropped up since the gluten issue.

I guess also part of what I'm saying is this journey I have been on is sometimes a drag, but the one thing that has helped me the most is this sight. It leads me to go further researching every aspect of this gluten issue. It's the thing that has saved me because I have Doctors that know nothing about this. My PA is doing research now, thanks to the "mystry" I have presented to her.

Best of Luck, check out the "National Ataxia Foundation" as well as the neuropathy things.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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