Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Eat...


ciavyn

Recommended Posts

ciavyn Contributor

I posted this in the wrong spot! Sorry!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

I know - that's a broad and extreme question. But as I read more and more about people's experiences with this issue, I'm wondering what on earth is left to enjoy when it comes to food? I'm evaluating every bite I take, every meal possibility, and I'm just baffled at this point. How on earth do you get a menu, and how do you make food for your family? I'm new, I know that's a big part of it, and I'm still having symptoms, which doesn't help with the I-can't-eat-you-but-don't-feel-any-better frustration. When you don't have time to cook much, how do you do it? What does your meal menu look like, and how do you cope with losing out on the convenience and fun of eating?

I'm really not trying to be a negative nellie - just trying to find the right mindset.

Wolicki Enthusiast
I know - that's a broad and extreme question. But as I read more and more about people's experiences with this issue, I'm wondering what on earth is left to enjoy when it comes to food? I'm evaluating every bite I take, every meal possibility, and I'm just baffled at this point. How on earth do you get a menu, and how do you make food for your family? I'm new, I know that's a big part of it, and I'm still having symptoms, which doesn't help with the I-can't-eat-you-but-don't-feel-any-better frustration. When you don't have time to cook much, how do you do it? What does your meal menu look like, and how do you cope with losing out on the convenience and fun of eating?

I'm really not trying to be a negative nellie - just trying to find the right mindset.

e

Ok, so realizing that different people have different sensitivities, some will work for you, ignore the the others:

Breakfast

gluten-free rice cakes with nut butter/yogurt/apple butter

omelettes full of veggies

scrambled eggs with Udi's toast

fresh fruit sprinkled with nuts

yogurt- also comes in soy milk and coconut milk, topped with fruit and sliced almonds

snacks

string cheese, apples with peanut butter, rice cakes with a schmear, yogurt, fresh pieces of fruit, cherry tomatoes, veggie sticks with hummus or tzatziki , popcorn

Lunch

wraps made with homemade gluten-free crepes, lettuce wraps, or Sonoma Teff Wraps- add in some lean protein and fresh veg with a savory sauce- honey mustard, cilantro mayo

Salads with lost of veggies

Sandwich on Udi's bread

Leftover dinner from the night before

Dinner

Simply baked chicken with lemon and garlic, brown rice and asparagus

Lentil or split pea soup

shredded chicken enchiladas, corn tortillas, gluten-free sauce

simply grilled or sauteed fish, beans and rice or veg

The hardest lesson for me was to keep it simple. I stopped making a lot of complicated dishes, and just made a protein and a veg for awhile. Your family will be just as happy! It gets better, i promise!

l

missy'smom Collaborator

You start with what you CAN eat. Make a list if you have to. Start with very simple basic meats, fruit, gluten-free grains, dairy etc. Keep a variety of spices and seasoning blends to vary the flavor. Write up a menu for a weeks worth of meals. If you need to, repeat that week's menus the next week and the next until you are ready to add in new things. You'll easily get through a month that way. If you can get though a week, then you can get though a month and if you can get through a month then you can go far. If it is easier and less overwhelming start with one meal-just plan the breakfasts for the week or make a list of breakfasts. I have a notebook page on my laptop that is just a list of breakfasts and another that is a list of snacks that I used to refer to from time to time. Saved mental energy for me as I was not constantly re-inventing the wheel that way.

I keep a stash of homemade convenience foods on hand-in the freezer. Takes a bit of time on the front end but saves time later on in those busy moments/days. It's a trade off. A few canned soups in the pantry help too.

It seems so restrictive at first, but you will find in time that there really are SO many options available to us and you will find things that you really enjoy, especially if you keep your mind open to new things.

ciavyn Contributor

Thank you for your responses. It's a bit...much, that's all. I went to a healthy grocery store who said they had a great big section of gluten free foods...only to find they had less than the local grocery store (Wegmans). I tried one of their gluten free muffins...blech! The Red Mill cake mix tastes much, much better. But I think I'm also having issue with either dairy or chocolate (I can't figure out which it is), as I'm feeling a bit crappy tonight, which means I'm limited even more. I've got to figure out a way to get into a mindset of everything I CAN have. So thank you - and the food lists really help, as do the pep talks. It helps put me into a different vantage point.

Crayons574 Contributor

Have you heard of Open Original Shared Link ??

All her recipes are gluten free, most are dairy free, soy free, corn free, grain free. They are all delicious and super easy to make...not to mention they actually resemble the real-deals! She has a ton of recipes on her website, so there is plenty of variety. Hang in there--you'll realize sooner or later that there really are countless options of food you can eat and truly enjoy!

one more mile Contributor

When I feel good it is easier to look at what I can eat. Its been two July's since I gave up gluten and I have finely broken though were I feel like I have good choices of things to eat. Bit by bit I added to the list things I can eat. Right now I am actually cooking apple crisp. Dinner was Hillshire farms smoked sausage and herb, almond flour, spice and oil baked potatoes. Use the web to look up foods you miss. I have found awesome gluten-free recipes on here and often make adjustments for my own tastes. I have about 4 breakfast meals that I rotate based on my mood.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

Onemoremile: you are absolutely correct. My issue is that I'm impatient: I've gone off gluten yet haven't seen a big change in symptoms yet. It's better than before...yet not that much better that I think the lack of my favorite foods is worth it.

But it hit me over the weekend, as I was debating what to get at the store - I have a ton of choices. I just have to put the effort into the research and cooking. So I'm getting there. =) Helps when you turn around your attitude. And I am always interested in new recipes and ideas, and this is a great forum for that. Thank you for your thoughts.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.