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Hashimoto's For 15 Years Now Celiac..where Do I Go From Here?


mechayamom

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mechayamom Newbie

Hey everybody....this is a great website and I am new to it.

Thanks for all the support!

Question to throw out there.

I have had Hashimoto's thyroiditis for 15 years and I am on 200 mcg synthroid.

I was presenting with iron deficiency (actually iron depletion because it is so low), so my Dr. sent me for an endoscopy.

The GI said that it showed villous atrophy and ran the IGA and IGG and TTG blood tests which came back positive and off the charts high.

Am awaiting for the results of the biopsy to see what that says.

Here is the dilemma.

I have no iron in my system....what type of doctor do I go to for coordination of care now..I need an endocrinologist, celiac guy, and a nutritionist.

Should I be looking for an immunologist?

Any advice is greatly welcomed.

Thanks.


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MaryJones2 Enthusiast

Welcome!

Hashimoto's, Iron Deficiency and Celiac often go together so a GI (and/or endocrinologist) should be able to manage the iron deficiency. It's quite common for newly diagnosed celiacs to have anemia. The doctor who sent you for the endoscopy sounds like a good starting point for coordination of care.

GFinDC Veteran

Hang around here and read, read, read! You can learn an awful lot about the gluten-free diet right here on this forum. What you need to do is get on the diet and heal your gut. Once your gut heals your ability to absorb nutrients/vitamins should improve. Some people get shots for vitamins at the beginning, since the malabsorption can keep you from getting full benefit from vitamin pills. Also some liquid B-12 is a good idea, it is absorbed in the mouth.

A simple whole foods diet is a great way to start out. Avoid processed foods and make everything from scratch at home. Hashimoto's is not rare for the people on this board, we have several people with it. Some have reported their thyroid medication level went down after they were on the diet a while and healed up some. Keep that in mind over the next 12 months or so as you may need to adjust your meds also.

when thinking about gluten, remember it is used in many products as a stabilizer and a filler. So vitamin pills / meds may have it for that reason.

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    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
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      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
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