Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hashimoto's For 15 Years Now Celiac..where Do I Go From Here?


mechayamom

Recommended Posts

mechayamom Newbie

Hey everybody....this is a great website and I am new to it.

Thanks for all the support!

Question to throw out there.

I have had Hashimoto's thyroiditis for 15 years and I am on 200 mcg synthroid.

I was presenting with iron deficiency (actually iron depletion because it is so low), so my Dr. sent me for an endoscopy.

The GI said that it showed villous atrophy and ran the IGA and IGG and TTG blood tests which came back positive and off the charts high.

Am awaiting for the results of the biopsy to see what that says.

Here is the dilemma.

I have no iron in my system....what type of doctor do I go to for coordination of care now..I need an endocrinologist, celiac guy, and a nutritionist.

Should I be looking for an immunologist?

Any advice is greatly welcomed.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

Welcome!

Hashimoto's, Iron Deficiency and Celiac often go together so a GI (and/or endocrinologist) should be able to manage the iron deficiency. It's quite common for newly diagnosed celiacs to have anemia. The doctor who sent you for the endoscopy sounds like a good starting point for coordination of care.

GFinDC Veteran

Hang around here and read, read, read! You can learn an awful lot about the gluten-free diet right here on this forum. What you need to do is get on the diet and heal your gut. Once your gut heals your ability to absorb nutrients/vitamins should improve. Some people get shots for vitamins at the beginning, since the malabsorption can keep you from getting full benefit from vitamin pills. Also some liquid B-12 is a good idea, it is absorbed in the mouth.

A simple whole foods diet is a great way to start out. Avoid processed foods and make everything from scratch at home. Hashimoto's is not rare for the people on this board, we have several people with it. Some have reported their thyroid medication level went down after they were on the diet a while and healed up some. Keep that in mind over the next 12 months or so as you may need to adjust your meds also.

when thinking about gluten, remember it is used in many products as a stabilizer and a filler. So vitamin pills / meds may have it for that reason.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.