Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Genetic Testing Covered In Canada?


laughingduck

Recommended Posts

laughingduck Rookie

I want to get genetically tested for celiac, as my blood test came back negative but my doctor thinks I still may be celiac following an endoscopy. I would like to do the genetic testing and have seen that they cost around $400 yikes! Does anyone know if genetic testing is covered in Canada? I am from Ontario if that makes a difference. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JillianLindsay Enthusiast

Hi,

I'm originally from Ontario but currently in MB. I had genetic testing done in August and it was 100% covered. I'm not sure if it's any different in ON, but it's probably covered :) Just ask your DR or search http://www.health.gov.on.ca/en/default.aspx

Good luck,

Jillian

I want to get genetically tested for celiac, as my blood test came back negative but my doctor thinks I still may be celiac following an endoscopy. I would like to do the genetic testing and have seen that they cost around $400 yikes! Does anyone know if genetic testing is covered in Canada? I am from Ontario if that makes a difference. Thanks!
laughingduck Rookie
Hi,

I'm originally from Ontario but currently in MB. I had genetic testing done in August and it was 100% covered. I'm not sure if it's any different in ON, but it's probably covered :) Just ask your DR or search http://www.health.gov.on.ca/en/default.aspx

Good luck,

Jillian

thanks for the reply! I did a search but can't seem to find the info. I've got an appointment with my doctor in two weeks but if it's not covered then was going to go ahead and order the test. If it is I'd rather not waste my money though!

Has anyone here from Ontario had it covered?

JillianLindsay Enthusiast
  • 2 weeks later...
laughingduck Rookie

Well I saw the doc yesterday and he says OHIP does not cover genetic testing. He did however say he thought they might be changing that come the new year, so I will wait until then before I spend my money on the test! Just wanted to update this in the event that someone else from Ontario has the same question!

  • 1 year later...
milkmommy Apprentice

Just wondering if you ever found out about coverage??

  • 6 years later...
Shaun-M Newbie

I'm in Ontario as well, and am trying to find out if coverage is available for testing.    I've recently had our doctor fill out a blood work request for us, however I was told it comes at a cost of $125.    My benefits don't cover what they call "diagnostic tests" and I'm finding that OHIP doesn't cover it either.   

I'm open to any suggestions if there is somewhere I can go for my 5 year old


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
1 hour ago, Shaun_M said:

I'm in Ontario as well, and am trying to find out if coverage is available for testing.    I've recently had our doctor fill out a blood work request for us, however I was told it comes at a cost of $125.    My benefits don't cover what they call "diagnostic tests" and I'm finding that OHIP doesn't cover it either.   

I'm open to any suggestions if there is somewhere I can go for my 5 year old

 

Welcome! 

I can not answer your question, but genetic testing is used as a last resource for ruling OUT celiac disease.  Normally, while on a gluten diet, a person is tested for antibodies (just like you can test antibodies (different ones) for lupus, thyroid or type 1 diabetes (blood test).  That cost is around $125 for the screening TTG IgA and IgA.  Are you saying that Canada’s Healthcare system does not cover standard lab tests?  I can see why they would not cover genetic tests as they are costly and in the case of celiac disease, can not diagnose.  Some 35%  of the population carries the genes for celiac disease but only a tiny fraction actually goes on to develop celiac disease.  

There is a bio card in the U.K. at Boots drugstore.   Perhaps there is one in Canada?  It is a place to start.  

Open Original Shared Link

The first step is a blood test and then an endoscopy to confirm.  Learn more:

Open Original Shared Link

I hope some Canadians will chime in.  

 

GFinDC Veteran
45 minutes ago, Shaun_M said:

I'm in Ontario as well, and am trying to find out if coverage is available for testing.    I've recently had our doctor fill out a blood work request for us, however I was told it comes at a cost of $125.    My benefits don't cover what they call "diagnostic tests" and I'm finding that OHIP doesn't cover it either.   

I'm open to any suggestions if there is somewhere I can go for my 5 year old

There is a test called Biocard available in Canada.  It is a home test kit.  Should be cheaper than $125.  Biocard is NOT a genetic test though.  Genetic tests are of limited usefulness.

 

cyclinglady Grand Master
3 minutes ago, GFinDC said:

There is a test called Biocard available in Canada.  It is a home test kit.  Should be cheaper than $125.  Biocard is NOT a genetic test though.  Genetic tests are of limited usefulness.

 

Great minds think alike!  ?

GFinDC Veteran
21 hours ago, cyclinglady said:

Great minds think alike!  ?

Hmm, I wouldn't know... :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,661
    • Most Online (within 30 mins)
      7,748

    Suzanne W
    Newest Member
    Suzanne W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hope07
      Thank you for explaining! This makes sense. 
    • SophiesMom
      I have been looking for new dishes. I was surprised to find dishes made of wheat straw. Are these safe for us? I'm very careful to avoid products that may contain gluten. I never thought I might have to check for wheat in dishes.
    • trents
      Welcome to the forum, @Hope07! The reference range would refer to what is considered normal in healthy people. So, 7 or less would mean there is no indication of "active" celiac disease. Apparently, you are doing very will in avoiding gluten. The "Tissue Transglutaminase IGA" is the centerpiece antibody test that clinicians run when checking for celiac disease. My only reservation would be that whenever the TTG-IGA test is run, a "total IGA" test should also be run to check for IGA deficiency. When IGA deficiency is present, other IGA tests, such as the TTG-IGA can be artificially low and result in false positives. In the absence of any symptoms indicating your celiac disease is not under control, however, I would take the result you posted at face value.
    • StevieP.
      Going on a cruise next week and I’m a celiac. Bought a bottle of GliandinX. Should I just take two tablets per day as a precaution? Never tried this before!! Any help is appreciated!!
    • Hope07
      Hola! Not sure if I’m asking this in the right place so apologies if not! I just had a full blood count as part of my first check up after being diagnosed with celiac disease 7 years ago!! With Covid lockdowns then living in Spain for 3 years and now back in the UK, I kept getting missed in the system but finally I’ve had a check up! Does anyone know what this means?  Tissu transglutaminase IgA lev:  0.30 U/ml Reference range:  Below 7 Thank you!   
×
×
  • Create New...