Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hunger Slowly Getting Better, But Now A Different Symptom


CGally81

Recommended Posts

CGally81 Enthusiast

Okay, I first went "gluten-free" back in August. Except I continued to eat Fudgsicles, not realizing they contained gluten (malt powder, which is apparently less potent than, say, wheat, but was still causing damage without triggering my normal symptoms).

In early October, I began to have a strange and disturbing new symptom where whenever I ate food, ANY food, regardless of what type it was, I'd feel intensely fatigued and would get a headache. It was so bad I took two days off work. During that time, I took the advice of people here and stopped eating Fudgsicles. The problem became significantly (and I mean significantly!) reduced the next day.

It's still not totally gone though. Sometimes I feel the headache and fatigue after I eat, and sometimes I don't. No particular food seems to trigger it, as it's come after, or not come after, any snack or meal. It seems totally random. It can occur strongly after a simple popcorn or gluten-free Chex snack, or equally strong after a large dinner of a massive (like I said, I'm hungry a lot) cheeseburger and lots of brown rice. Or it could not occur at all. With or without digestive enzymes.

It's not nearly as strong as it was when it first came about, where at one point I actually had to lie in bed for over a half hour after eating due to how fatigued I was, so it's definitely gotten better since then.

Is this normal? Does this mean that the symptom is going away in "waves" (i.e. gets better, then worse, then better, etc. until finally gone)?

I'm thinking that may be a possibility because the "get better, then worse, then even better, then worse again" pattern is what my constant hunger has been going through (it's definitely much better than it was, say, a month ago), and what my gluten withdrawal symptoms went through (I now only occasionally have muscle spasms, and chills in my legs).

Any advice? Encouragement? Anyone else go through this? Do you think I'm still getting glutened even with the enzymes? (Though bear in mind, it occurs even when eating known gluten-free food without enzymes) Is this just a symptom that I developed from still eating gluten before, that will just go away and come and go over time?

Help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



woodnewt Rookie

Could it be blood sugar or a food allergy or intolerance?

I was having something similar to what you are describing - horrible headaches after eating. It would start 1-3 hours after eating. It didn't seem to matter what I ate. Finally connected it to rice. Cut out the rice - no more headaches. I have no allergy to rice (blood test negative), but ANY kind of rice - white rice or brown rice, rice syrup, rice noodles, rice starch - doesn't matter - headaches.

CGally81 Enthusiast
Could it be blood sugar or a food allergy or intolerance?

I was having something similar to what you are describing - horrible headaches after eating. It would start 1-3 hours after eating. It didn't seem to matter what I ate. Finally connected it to rice. Cut out the rice - no more headaches. I have no allergy to rice (blood test negative), but ANY kind of rice - white rice or brown rice, rice syrup, rice noodles, rice starch - doesn't matter - headaches.

I hope not. I'd been eating rice my whole life. The only time I have rice - brown rice - is with some dinners, unless gluten-free chocolate Chex has rice as an ingredient (it probably does), and that I'd have as a snack only on weekdays. I'd have them and not have the headaches, and sometimes I would. In fact, the headaches were less strong today than yesterday. And I ate pretty much exactly today what I did yesterday, including a dinner with brown rice.

The headaches would occur shortly after eating. I mean, 10-15 minutes or so after, or sooner than that. Sometimes while still eating if it's a big enough meal.

I'll see if they continue to get better. The reason I felt compelled to ask yesterday is because they were pretty bad then, but not nearly as bad as the day before I cut Fudgsicles out of my diet, thus removing the last gluten-containing food I was having.

EDIT: It's 9:40am right now, and I didn't feel the headache/fatigue as strongly as I did yesterday. Furthermore, I >_> had a very large BM. The headache decreased somewhat after the trip to the bathroom. There a possible relationship?

BRUMI1968 Collaborator

Dehydration can cause fatigue and headache. I don't know how much liquid you're drinking.

Also, brown rice is pretty hard to digest, or at least that's my understanding. If you're utilizing all your energy in digestion, it is hard to have any left over. Do you get the same reaction from something like banana, or other easy to digest things?

Another thing that can cause headache is too much salt, or not enough salt - or put another way, too much expansion or too much contraction. If when you get a headache you have a salty bite of something and it feels better, you might have an expansion headache. If so, you might want to eat more contractive foods. If it does not feel better, then it is probably not an expansion headache.

All gobbledy goop I'm sure, but maybe something will strike a chord.

CGally81 Enthusiast
Dehydration can cause fatigue and headache. I don't know how much liquid you're drinking.

Also, brown rice is pretty hard to digest, or at least that's my understanding. If you're utilizing all your energy in digestion, it is hard to have any left over. Do you get the same reaction from something like banana, or other easy to digest things?

Another thing that can cause headache is too much salt, or not enough salt - or put another way, too much expansion or too much contraction. If when you get a headache you have a salty bite of something and it feels better, you might have an expansion headache. If so, you might want to eat more contractive foods. If it does not feel better, then it is probably not an expansion headache.

All gobbledy goop I'm sure, but maybe something will strike a chord.

It happens no matter what I eat. Protein? Carbohydrates? Bananas? Rice? Chicken? Popcorn? Gluten-free Chex? It happens after all of them. It also happens whether I take digestive enzymes (AFP Chewables by Houston Nutraceuticals) or not.

It's been worse before, so it might get better. I don't know. I'm hoping so.

I get enough water, I think. I'm not a big salt user.

I'm going to see an immunologist/allergist next week, and hopefully get some answers there. You think they'd be able to find something?

CGally81 Enthusiast
Dehydration can cause fatigue and headache. I don't know how much liquid you're drinking.

Also, brown rice is pretty hard to digest, or at least that's my understanding. If you're utilizing all your energy in digestion, it is hard to have any left over. Do you get the same reaction from something like banana, or other easy to digest things?

Another thing that can cause headache is too much salt, or not enough salt - or put another way, too much expansion or too much contraction. If when you get a headache you have a salty bite of something and it feels better, you might have an expansion headache. If so, you might want to eat more contractive foods. If it does not feel better, then it is probably not an expansion headache.

All gobbledy goop I'm sure, but maybe something will strike a chord.

The headaches are better today than yesterday. I ate the same foods as yesterday, and right now it's 30 minutes after a big cheeseburger and brown rice dinner, and while I don't feel perfectly fine, I don't have a nasty headache, only a dull one.

What I did do differently, though, is drink a lot more water today. I think I may have found my solution. I hope so. I'll keep drinking more water, and try to put more potassium in my diet, and see if that helps.

EDIT: Had two bananas, and that's when the headache got worse. But just went to the bathroom, and it got *slightly* better after that. Maybe I could use more fiber in my diet too? But I do think that water is helping somewhat, so I'll keep drinking more water.

EDIT #2: Okay, I later went back for another banana, and wouldn't you know it? After eating THAT banana, my headache gets better. Same food. Same circumstances (as far as I can tell: no digestive enzymes, no other food eaten with it, etc.). Yet it has a different effect. Any ideas?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,065
    • Most Online (within 30 mins)
      7,748

    Hoops
    Newest Member
    Hoops
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.