Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

'normal' Thyroid Levels

Brittany2

Recommended Posts

Brittany2 Apprentice
Brittany2
Posted

Hello I hope everyone's well and excited for Christmas!

Anyways, I have never been diagnosed with Celiac disease, but the gluten free diet has been an amazing change. Auto immune diseases do run in my family so that is why I suspected it with the symptoms I had. They've since luckily gone away, but I'm worried about my persistently low thyroid levels.

In late August I went to a dermatologist for a number of reasons, one of which was hair loss. They said it was telgium effluvium which is caused by stress, malnutrition and low thyroid. So they tested my iron and thyroid levels to find my iron was low but so too was my thyroid.

Ferritin lvls: 11

range 10-143

TSH 1.4

Range .53-4.30

T4 Free: .8

Range .9-1.4

After that I went to my personal care doctor where he tested my blood for overall nutritional levels, Free T3 and Anti endomysial AB IGA, everything was fine in the normal mid range.

Free T3 355

Range 287-455

TTG AB IGA: 8

Just this week I had the three month review that my doctor wished for, a month into being gluten free. My iron levels have luckily improved

Iron: 84

Range 27-164

Ferritin 31

Range 10-143

TSH: 1.38

Range .50-4.30

T4 Free: .6

Range .8-1.8

It worries me since they dropped from .8 in August to .6 now. My doctor assures me I'm fine since my TSH levels have not increased, but he plans on checking in three months again.

Also, before I went gluten free my body temp was usually around 95, now since I've been gluten free its been at 98. I have always had an intolerance to cold, and need for adequate sleep, as well as dry skin (hands and heels) They've improved slightly but still linger.

Any advice or opinions would be greatly appreciated, especially from those who are more knowledgeable to thyroid diseases. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mindwiped Rookie
mindwiped
Posted

Truthfully the numbers I've always been told to watch the closest are the TSH #'s. The 'normal' rage they have listed is outdated, the newest range says that normal should be between 0.3 and 3.0, which both of your TSH #'s were. The fact that your regular body temp went up while gluten-free is a good sign! That means that you maybe self correcting with the gluten-free diet. I found a very technical link, published by doctors, that has good info if you need to take some with you to your next appt. Open Original Shared Link

maile Newbie
maile
Posted

"It worries me since they dropped from .8 in August to .6 now. My doctor assures me I'm fine since my TSH levels have not increased, but he plans on checking in three months again.

"

first off your doctor is wrong, TSH is simply a test for pituitary function what you need to look at are your Free t4 and Free T3 levels.

Your Free T4 is VERY low, are you on any thyroid meds at all?

your T3 is also a bit low, it should be at about 3/4 to the top of the range.

try posting your results over at lowcarbfriends dot com in the thyroid section and Pam will be able to comment (she's a thyroid advocate and knows her stuff)

Roda Rising Star
Roda
Posted
"It worries me since they dropped from .8 in August to .6 now. My doctor assures me I'm fine since my TSH levels have not increased, but he plans on checking in three months again.

"

first off your doctor is wrong, TSH is simply a test for pituitary function what you need to look at are your Free t4 and Free T3 levels.

Your Free T4 is VERY low, are you on any thyroid meds at all?

your T3 is also a bit low, it should be at about 3/4 to the top of the range.

try posting your results over at lowcarbfriends dot com in the thyroid section and Pam will be able to comment (she's a thyroid advocate and knows her stuff)

I agree with maile on this one.

Brittany2 Apprentice
Brittany2
Posted
  • Author

Thanks, yeah I really don't trust my doctors opinion that its fine as per what my TSH levels are, I've already read a ton of things and I'm worried as to what is causing it. I've come to be really skeptical with most doctors, they do know a lot but they cant know everything. One needs to be their own advocate! Many have just pushed me under the rug because I'm a busy 19yr old college student.

I did not realize my T3 levels were lower either, huh. But no I'm not on any medication at this point, my doctor did not see the need to prescribe anything yet, I suppose he's waiting to make his call three months from now... ugh I don't want to wait that long. I'll be in touch with an endocrinologist soon so I'll see what they say and if I cant make an appointment.

What I'm really worried about is the fact that auto immune diseases run in my family it could be Hash's.

I just want all of my issues gone! They almost all are, save for some tired feelings (luckily a great portion of my energy has come back), hair loss and dry skin.

nomad4life Rookie
nomad4life
Posted

Hi Brittany,

Try posting your questions on Open Original Shared Link They are an incredibly knowledgeable and supportive group of people. I was diagnosed with hashi's a year ago and have found that board to be a great help.

All the best.

RollingAlong Explorer
RollingAlong
Posted

Not an expert, still trying various meds and dosages to get my thyroid straight.

I have found some of the postings at the Heartscan blog to be helpful. As I understand it, he aims for about 1.0 TSH for his patients.

Open Original Shared Link

Your #'s look good to me; but the important thing is - how do you feel?

Congrats on getting that ferritin up!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Looking for answers Contributor
Looking for answers
Posted

Hey there,

I'm no expert either, but I had just about the same scores you have when I was tested four months ago. I do not want to be put on medication, so I've been seeing a naturopathic doctor. He suggested I have problems with adrenal exhaustion, which can led to immune system dysfunction, low thyroid, etc. Anyways, he ran a test and it turned out that I'm in a stage 2 adrenal exhaustion, which he attributed to my nearly decade battle with gluten intolerance before I was diagnosed. He put me on his regime and I'm feeling a million times better. I will get my blood tests retested in Janaury and would be happy to share them with you, if you're interested. This would follow six months of his treatment program (which is just taking some pre-cursor hormones and a metabolic-type diet - mainly organic meats and veggies).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back u...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,870
    • Most Online (within 30 mins)
      7,748
    KRISTENE
    Newest Member
    KRISTENE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.