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Does Anyone With Celiac Disease Hear Their Pulse?

jackay

By jackay
in Coping with Celiac Disease

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jackay Enthusiast
jackay
Posted

I would like to know if anyone else with gluten intolerance hears their pulse (vascular/pulsitile tinnitus)?

I have been hearing my pulse for about four years. It started after a long spell with severe headaches. The pain caused my blood pressure to spike which started the noise. It sounds like a clock ticking in my head and is very annoying. I do have my headaches somewhat under control and my blood pressure is now normal. For a while about a year ago the pulsing noise went away but has come back. I am hoping that being off gluten for a while will stop it.

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jerseyangel Proficient
jerseyangel
Posted

Yes, I have it and it's very annoying. It seems to have started when I woke up with vertigo a few years ago. I also have blood pressure issues, but it's under control with a combination of diet and medication. That doesn't seem to have any bearing on it for me.

I also have allergies and chronic allergic rhinitis--I always feel that if my ear would just "pop", I would get relief. I've had cardiac testing to rule out anything there, and am currently seeing an ENT specialist. He prescribed Nasacort AQ, which does seem to help if I take it religiously (which I don't always). The ENT also suggested Afrin, but just for three days before bed. (people with high blood pressure need to speak with their doctors before using a decongestant)

One interesting thing was that the ENT told me that he does see these sorts of problems more often with his Celiac patients.

Wolicki Enthusiast
Wolicki
Posted

I have it too but I have low blood pressure :huh:

codetalker Contributor
codetalker
Posted

I've experienced that when I would eat too much salt or when I would let work get to me and my blood pressure would spike (similar to what you mentioned in your post).

In my case at least, gluten probably wasn't a factor. However, if you are on a gluten-free diet, your celiac-related symptoms/problems should subside. That should reduce stress levels which in turn should reduce blood pressure.

Have you tried activities like swimming or jogging? Repetitive, mind-numbing exercise is good for reducing stress.

mushroom Proficient
mushroom
Posted

I have it too, but it usually only bothers me at night. My head is too "busy" during the day, and I have tinnitus in one ear also. But I have had it for so long now it doesn't really get to me. When I have pressure from gas I can "hear" my whole body throbbing and pulsing :huh: I do take hypertensive medications which control my blood pressure; I remember the first time a took a beta blocker it had such a profound effect--my whole body was quiet and still; I thought I had died!! :lol: Wish that effect had lasted--it was so restful and calm. :)

nascentes morimur Newbie
nascentes morimur
Posted

I have it too, not sure what causes it..think most of your 'quirks' you could attribute to Celiac

brigala Explorer
brigala
Posted

I didn't know that wasn't normal. My husband says he can't hear his pulse. I often hear my pulse if it's not being drowned out by a louder noise. I only really find it annoying when I'm trying to get to sleep at night. It's worse when I lay on my side but doesn't go away in any position. It doesn't happen ALL the time, but most of the time.

I have no idea when it started. I think maybe it's always been like that.

For the record, my blood pressure is on the low end of normal. Before I went gluten-free it was below normal. Doctors always said it was "great" but when it would get down to like 92 over 55 I really didn't feel good. It doesn't do that any more, thank goodness, and I feel much better and it's now within a realistic normal range.

-Elizabeth

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jackay Enthusiast
jackay
Posted
  • Author

I have tried swimming but am sensitive to the chemicals in the water and break out in hives. It was hard giving it up but I feel for the time being it is the thing to do. My doctor is hoping I can get over this sensitivity and eventually go back to swimming. I cannot jog because I have bad feet. Walking isn't a problem for my feet if I don't walk for too long. I do not hear my pulse when I walk or when driving. The car and traffic noises mask it. I usually hear my pulse when doing anything else including watching tv. I did find that crocheting calms me down and brings the pulse noise to a tolerable level.

My doctor has me taking the amino acid L-Theanine which sometimes quiets it down. If it is going to work, I can notice it almost right away. Unfortunately, it doesn't always help. I have tried both 100 mg and 200 mg. Lately I am getting no more relief from 200 mg than 100 so I am sticking with 100.

I am also taking a Vitamin B5B6 complex which is supppose to support the production of adrenal hormones. My doctor also feels my adrenal glands are creating havoc. (Tests have confirmed this.) One tablet provides 5000% of each. The first time I took it, I crashed. I cut down to about 1/8 of a tablet and built up from that. I do feel more relaxed and my pulse is not nearly as loud as it use to be. I am now taking 1/4 of a tablet. I was up to 3/8 but my sleep, which is very little, seemed affected.

I have tried other supplements for my adrenal stress and they have all made it worse. I am hoping that getting off gluten will bring adrenal relief.

I realize this noise is associatd with anxiety but I don't think that is the only issue. Some nights it has been so loud and annoying yet I have been able to get some decent sleep. Other nights, it is quieted down and I lay awake the whole night hearing it. It definitely makes me anxious so it is a vicious circle. It is so frustrating :(

Nancym Enthusiast
Nancym
Posted

That can be a symptom of thyroid issues. When I was hyperthyroid I heard my heart beating at night. Very unsettling.

jackay Enthusiast
jackay
Posted
  • Author

I had my thyroid checked a few months ago and that was normal. Also, most recent bloodwork for parathyroid was almost all normal. One calcium test was a little low but is continuing to get closer to the normal range.

Hopefully my stomach will repair itself by eliminating gluten and the pulsing will go away. I know I'm not absorbing all my nutrients so it could possibly be some deficiency.

SGWhiskers Collaborator
SGWhiskers
Posted

add one more to that list. Low blood pressure here. I notice it more when I'm having a fibro flare or a migraine. It has become intermittant the longer I'n gluten-free.

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