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Hello

jasonD2

By jasonD2
in Coping with Celiac Disease

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jasonD2 Experienced
jasonD2
Posted

I'm not posting to complain (imagine that). I just wanted to say hello and extend a big THANK YOU to all the folks on here who have listened to me and offered some great advice...I am truly grateful for all the kindness. I know i'm not easy to deal with sometimes, but im working on that :)

I still have bad days, but things are getting a little more tolerable. I am traveling with my boss this weak and am finally going to come clean about my gluten problem (it honestly has affected my job performance, but he hasnt been complaining) - I have kept it a secret for almost 2 years and need to spill the beans.

My mom has also agreed to get tested and im still working on my aunt and cousin, everyone was in major denial at first but now I think its starting to sink in.

I'm finally going for an endoscopy in a few weeks and am also gonna get a colonoscopy in 2010. Im a bit young but I figure with my family history it couldnt hurt

As for my mental state, ive been making an effort to not focus on myself and my problems so much but its tough and I regress very quickly, but I am trying to do things in life that I enjoy to take my mind off.

I tend to pine over old girlfriends and frequently succumb to the sadness of not being in love, but for now i'm fine being single and just focusing on getting well and doing things I like.

Anyway, thanks again and hope everyone enjoys the holidays

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mushroom Proficient
mushroom
Posted

BIG, BIG strides you've made there, Jason. :D You're on your way now, dude. The girlfriends will come later. Just concentrate on the direction you're heading and you'll be right. Coming clean is the best way to go!!

Wolicki Enthusiast
Wolicki
Posted

Jason, I agree, BIG strides! Just take it one day at a time! Since you seem to travel a lot, just be sure to take some great snacks with you in case you get into a pinch. When you're in larger cities, check out some vegan/raw restaurants. Almost no way to get CC, and you can have 99% of anything on the menu. Quite tasty, too. Keep up the great work!

Lisa Mentor
Lisa
Posted
:D:D:D
jerseyangel Proficient
jerseyangel
Posted

Ah Jason--your post just put a big 'ole smile on my face! :D

Enjoy the holiday season and look forward to a positive, fresh and happy new year to come. :)

Ahorsesoul Enthusiast
Ahorsesoul
Posted

So glad you are taking charge of your life!

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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