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Newly Celiac, Questioning Diagnosis

Caniac

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Caniac Newbie
Caniac
Posted

Hi,

I am a newly diagnosed Celiac (about 2 months ago). Just this week, I have discovered I have gallstones as well as had an attack of very severe pain. Is it just coincidence that the two health issues arrived at basically the same time in my life, or is it something else? Could the celiac disease actually just be symptom of the gall bladder disease, and maybe I am not celiac at all? Before being diagnosed as celiac, I was having no symptoms. No pain, bloating, indigestion, etc., so it was a real stunner when I was told I am celiac.

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Roda Rising Star
Roda
Posted

How were you diagnosed? There are plenty of people that are suprised by the diagnosis because they say they did not have symptoms. Alot of those people also, after being gluten free for some time, realize that some of the everyday things that they thought were normal have improved. Sure it could be a coincidence that both gave you problems at the same time, or not, but at least you know.

mushroom Proficient
mushroom
Posted

Often it comes the other way around. People have problems with their gall bladder, some even have the gall bladder removed (unnecessarily sometimes) and they they are diagnosed with celiac. The two conditions often go in tandem.

JillianLindsay Enthusiast
JillianLindsay
Posted

How were you diagnosed? I didn't present with typical celiac disease symptoms, aside from anemia. I had vaso-vagal syncope episodes (fainting) and even seizures. There are many people who have few or no symptoms, but ingesting gluten damages their body just like anyone else with celiac disease.

lizard00 Enthusiast
lizard00
Posted
How were you diagnosed? I didn't present with typical celiac disease symptoms, aside from anemia. I had vaso-vagal syncope episodes (fainting) and even seizures. There are many people who have few or no symptoms, but ingesting gluten damages their body just like anyone else with celiac disease.

Sorry to hijack, but I just have to ask: Is vaso-vagal syncope a symptom? My mom has this, and has been tested for celiac. Negative so far, but her vitamin D level just came back low (19), despite the fact the she LOVES the sun! Just curious.

Thanks :)

mushroom Proficient
mushroom
Posted

I have these fainting episodes when I get an extreme gas attack causing severe pain below the breastbone. This is the only link I am aware of to my gluten intolerance. My doctors told me it is due to pressure on the vagus nerve. I get all the typical pre-warnings of sweating, ringing in the ears, visual disturbance, etc.

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      how much gluten do I need to eat before blood tests?

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