Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Annoying Friends


Chef16

Recommended Posts

Chef16 Apprentice

I have been gluten free for 2 years so I've gotten pretty good at explaining Celiac (and everything that goes with it) to people, but I have these two friends who just DO NOT get it! They are twins and they come from a household where they don't even think about what they eat. I have tried everything I know; explaining what happens to my body when I eat gluten, how I make most of my food, ect. Even after being friends for over a year, they still don't understand that I can't eat gluten, not 'flour'. Pretty much every day they offer me food, that I can't eat and don't understand why I don't take it. They think that I'm overreacting and I just need to get some pill for it (I wish! :P ). Does anyone have any ideas? No matter how hard I try, I can't make them understand and they think that I don't accept their food because I don't like them!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Someone on this forum coined the term "rat poison" for gluten, that every time we look at gluten we see a rat poison label on it, and there is no way we would consider eating rat poison. You could substitute whatever you want, arsenic, Round-Up, dog poop, whatever would completely gross you out or kill you, and give this analogy. Maybe they will get the idea if you can graphically describe the effects it will have on you if you have even one crumb of it, and that there is no antidote for it. If that doesn't get across to them, consider finding new friends. :rolleyes:

summerteeth Enthusiast
Someone on this forum coined the term "rat poison" for gluten, that every time we look at gluten we see a rat poison label on it, and there is no way we would consider eating rat poison. You could substitute whatever you want, arsenic, Round-Up, dog poop, whatever would completely gross you out or kill you, and give this analogy. Maybe they will get the idea if you can graphically describe the effects it will have on you if you have even one crumb of it, and that there is no antidote for it. If that doesn't get across to them, consider finding new friends. :rolleyes:

I use "shards of glass" and explain that that is what my stomach feels like afterwards. For people who just "don't get it" or think it would be okay for me to take "just a little bite", I get graphic. Then they get it. ;)

tarnalberry Community Regular

I would just be boringly repetitious. "Sorry, I can't have gluten. I don't want to be sick for two weeks."

  • 2 weeks later...
G-freegal12 Contributor

Think of the most vile, discusting, gastrointestinal discription of what happens to you, add a lot of exageration and tell them when they offer you something. :lol: It's acctually really, really fun to watch their faces shrivel up in that "Ohmanthatssogross" expression.. :rolleyes: Start with "when the vile thing wriggles it's way down my throat it..." then get creative.

gfp Enthusiast

Some people will not and never will 'get it'.

Quite a few people here have the same problem and the best answer I can give is "At least you choose your friends".

I lost some of my oldest friends because they just couldn't (or wouldn't) get it.

>>Someone on this forum coined the term "rat poison" for gluten,

That was probably me: However Rat poisons are usually a lot less bad for you than gluten.

Strychnine used to be given as a medical drug where the lethal dose was about 32mg and under 5mg considered safe.

My father takes more Warfarin (a strychnine deriviative) a day than I could eat gluten in a weak...

Squidge Newbie

Tell them it's like a very sensitive allergy. They wouldn't expect someone allergic to peanuts to eat even regular M&Ms because of cross-contamination. Also, make them do research on it. I'm lucky, all my friends are chemists and chemists really understand cross-contamination.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



misslexi Apprentice

I would get snippy with them at that point. Something like "would you shove peanuts at someone with a nut allergy?" obviously, they should say no (or you really need new friends!) then say something like "then stop shoving gluten at me! its the same thing!"

so many people don't get it. I haven't been gluten-free for very long, and I already know its going to be hard. people don't understand how something they eat every day of their lives can make someone else so violently ill.

  • 4 weeks later...
Martok42 Rookie

How close are you to these friends? Is it not close enough that you wouldn't mind if you stopped hanging out with them? My suggestion, find smarter friends. No offense intended, just saying. That's what I would do.

  • 3 months later...
Rebecca Madrid Newbie

Okay, I know this post is old but I wanted to comment.

I was away at school in NL and I'm from ON. After 6 months of severe illness following over a year of minor symptoms, I finally took it upon myself to find the problem. eventually I started getting better really slowly, but living off dining hall food was chalk full of cross-contamination issues. Needless to say it has been a slow recovery.

Now to the point, I lived in a house with 100 people who liked to ask questions, make funny faces, etc. This kinda got to be routine after a while, and I got accustomed to the repetitive answers we've all used. But my roommate just wouldnt get it, she was rude and ignorant. She'd get frustrated when I wouldn't split on a pizza, like i was an inconvenience to her.

Usually when I got sick I would spend the night on the bathroom floor so as not to wake her. Next time dining hall got me, I was not nearly as courteous. I stayed in the room that night, and after almost 8 hours of waking up to me being violently ill, she finally realized the severity and stopped acting so oblivious.

Obviously this is not advice in any form, I just thought I would share the hilarious way in which i helped my roommate to understand.

The advice I do have is, try to be patient, its hard to understand if you've never been there, and look for people who have more in common with you. For example, my new roommate has a peanut allergy so she is really respectful of me as I am her.

  • 3 weeks later...
stef-the-kicking-cuty Enthusiast

I've had so many "friends" in the past, that I thought, were really good friends, only to find out, that they "just don't get it". Even though at first it really hurt cutting off the connection, I am now happier and glad, I did it. I was at the point, where I thought, I'd rather have only one friend, but therefore a good friend. So I started saying good bye to some. And guess what, I got new friends, who really understood me. It really hurt at the beginning and you won't forget that fast, but it's worth doing it every time.

kareng Grand Master

It's the annoying relatives that are harder to cut out. They have a way of popping up at family gatherings. :)

poiuyanthony Newbie

they're idiot

just say you can't have it

they wont understand about the molecular breakdown in the villi anyways

so when they ask why just say i cant eat gluten

and ask them to please stop offering you food if they cant get it right

maybe one day...

  • 1 month later...
trilobitian Newbie

Oh my gosh I know what you mean!!!

I have one friend who thinks you can "cook the gluten off" on like grills and stuff. That burning it off "kills it" and that even if someone touched my food after they touched someones bun without washing their hands that it wasn't "like it's that sensitive anyway"

I feel bad that I have to say something so obvious like "you can't just kill off the gluten by raising the temperature because gluten isn't alive. The idea of sanitizing is for things that are alive. Gluten isn't alive or dead, it just is."

And "yes, it is that sensitive. It can seriously hurt me."

I get so frustrated!

  • 1 month later...
Mike7 Newbie

In a situation like this have you tried telling them that you are seriously "allergic" to gluten and that gluten is in most foods. They must understand that if someone is seriously allergic to peanut butter, they can die from eating it. Try that and hopefully it will shock them enough to never offer you gluten-packed snacks again...unless they are are incredibly twisted with understanding the human body.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,856
    • Most Online (within 30 mins)
      7,748

    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.