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Kissing


jackay

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Ahorsesoul Enthusiast

notkuroda,

Five stars to you!!!!!!


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tarnalberry Community Regular
I asked him if he has done any research on gluten or if he'd be willing to do any. He responded "Not at this point." That pretty much says it all. He is staying ignorant so I am staying away. Not the best grounds for a marriage but than what is a marriage if it puts one health is at stake?

I say call him out on this. Literally, "If you care about me, you should care about my health. If you care about my health, you should care about me staying healthy and not harming my health. So why the refusal to learn how I can best stay healthy?" And don't take p%$#@#foot "I don't have time" answers - that means "I don't have time to prioritize you over myself". I'm not actually suggesting that he doesn't care; I'm suggesting that he's avoiding the issue and doesn't realize that he's coming across as an inconsiderate boob.*

I don't require my husband to brush his teeth, but it'll be awhile after he eats before I kiss him. (Amylase will help break down starches so they can be washed away by saliva. That's been good enough for me, but I realize it is NOT good enough for everyone.) Heck, he'll warn me *not* to kiss him if he's recently eaten something evil. At first, he also thought it was overreacting, but came to understand that even if it's a bit of paranoia that makes me worry about such "small amounts of contamination" (please note the sarcasm intended by those quotation marks), it's probably better to be paranoid and safe, than careless and sick all the time. It's the tradeoff.

I would have a serious discussion with him, trying to make sure you guys UNDERSTAND each other. Not yet agree. Not blame, not suggest, not tell, not anything but "help me understand your side" from both of you. Talk about solutions again another day, after you've both had time to ruminate on what's going on in the other person's brain.

*Side note - with a new mom and a bunch of preggies in the friend's circle, breasts have been a topic of discussion. (Dear lord, will they stop getting bigger?! Breastfeeding isn't exactly easy! Ow, stop biting me! :) ) So, the phrase "inconsiderate boob" strikes me as hilarious. Is it the one that grows way faster than the other? The one the baby keeps mauling? Do they really have minds of their own?! Sorry for the thread drift, but it's really kind of hilarious. :D

jackay Enthusiast

My dh is definitely not the nurturing type. Hasn't been in the past and I don't see it coming in the future. I always considered him hard on our kids, too, but they were able to handle it.

The night before last, I gave my dh a peck on the lips. Scared me, but I did sleep that night. Yesterday is when I said no more kissing for the time being. He has given me the cold shoulder ever since. Hopefully this will pass in time.

Anyway, I slept again last night. I can't remember when I have gotten a significant amount of sleep two nights in a row. Also no diarrhea this morning. :)

If everyone had the same reaction to gluten it would be so much easier. It is hard for others to believe that food can cause anxiety and insomnia. It goes into the stomach so the symptons should relate to that. If only it were that simple! In fact, if it were that simple, I think the last 15 years would have greatly improved. It wasn't until I started in with diarrhea that my doctor suspected gluten.

tarnalberry Community Regular
My dh is definitely not the nurturing type. Hasn't been in the past and I don't see it coming in the future. I always considered him hard on our kids, too, but they were able to handle it.

Oh, I don't mean you should be asking him to nurture you. He should just respect you. Ignoring your health needs and putting his convenience over your physical health is showing distinct DISRESPECT, regardless of "nurturing".

(Yeah, I feel kind of strongly on the issue of basic respect for other people's decisions. :D )

KikiUSA Explorer
Hi all, new around here, thought I would give the other perspective.

My wife was diagnosed about a year ago. She is also hypothyroid and has neurocardiogenic syncopy(fainting spells). The time leading up to her diagnosis was a very painful one. She had no energy, and frequently broke out in painful rashes(dh). The gluten free diet has helped her a lot, but she still gets contaminated. Our whole family has gone gluten free(I have two daughters from my previous marriage that is with us on weekends and vacations). We just don't want to take the risk of anything getting in her system. We don't eat out anymore and rarely eat as guests of friends and family.I still drink beer, but understand I definitely can't kiss her when I do, usually not until the next day and some vigarous cleaning. Her contamination cycle is heartbreaking. When she gets it, she breaks out in dh. Then she has about a week where her energy is completely sapped, and she gets depressed. Our nutritionist confirmed that when she's contaminated, she can't absorb her thyroid medicine, so she has no metabolism. Every time the dh comes back, we know we're in for a rough week.

It took me awhile to figure out the lifestyle changes that we would both have to make in order for her to get healthy. She's about to turn 40, and she's had this all her life. Her doctor told her it would take a couple of years to repair all of the damage that's been done to her system. It's difficult for me, although not nearly as difficult as it is for her. I think people need to come to the realization that this is not an allergy, or a digestive problem. This is a DISEASE, like cancer. It needs to be treated with the same kind of vigilance. It's tough, sometimes I wonder if I have the strength to deal with it the rest of my life. But she's the best thing to ever happen to me, so we keep pushing onSo please, cut your SO's a little slack. Explain what you're going through in no uncertain terms, and let them know that this is a lifestyle change. I don't know that everyone needs to live in a gluten free household, but I know that I would do everything in my power to help make sure she never gets contaminated again. But when she does, I summon all the strength that I have to help her get through it.

Hope you don't mind if I post this in the "families" section as well.

Amazing, thanks so much for sharing this. Totally has given me hope notkuroda :) I am on day 9 of trying to be gluten free but I am still in pain even though we have cleaned out the kitchen and given me seperate cupboards and pots and pan's and I wash my stuff seperatly, I'm still doing something wrong and probably still having contamination issues but reading this gives me hope!

Thanks again

jackay Enthusiast

Right now I could use both respect and nurturing!

Jean'sBrainonGluten Newbie

I know you're hurting and sick. You can hope he'll eventually come around but in the meantime could you try something like scratching his back? My husband just really likes to be touched and I found if I got a skin scrubber thing (like for exfoliating the legs or something) and scratch it over his back he's very happy and feels loved and it doesn't tire me out the way scratching or rubbing with my hands does.


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jackay Enthusiast

My DH is coming around. We talked about it last night. He listened as I quoted information from books and looked at my test results showing my food intolerances. Before this he wasn't interested in learning anything about it. He asked how he could help me. I asked him to be super careful because of gluten contamination and to be patient with me. I am hoping after a couple of months this will all be routine for the both of us. For now, no kissing. I don't want to chance it until healed. I know the toothpaste I use is gluten free but I haven't checked yet if his is. Hopefully, in the future kissing is back. :)

tarnalberry Community Regular

Whoohoo! Congrats on the first step. If he's not opposed to hugs (and other forms of physical affection), I'd vote for replacing ever temptation for a kiss (right now, until you're back on to that) with a hug or something along those lines.

As for toothpastes, I know that anything by Crest or Colgate is gluten free. Tom's of Maine is too. Sensodyne has some outsourced ingredients that they won't say are gluten free.

YoloGx Rookie
My DH is coming around. We talked about it last night. He listened as I quoted information from books and looked at my test results showing my food intolerances. Before this he wasn't interested in learning anything about it. He asked how he could help me. I asked him to be super careful because of gluten contamination and to be patient with me. I am hoping after a couple of months this will all be routine for the both of us. For now, no kissing. I don't want to chance it until healed. I know the toothpaste I use is gluten free but I haven't checked yet if his is. Hopefully, in the future kissing is back. :)

Hooray for you!!

Bea

Ahorsesoul Enthusiast
My DH is coming around.

I am so glad for you.

Jean'sBrainonGluten Newbie

Yay!

ang1e0251 Contributor

I'm glad you could talk it out. That's always the best way.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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