Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Board

Darby

Recommended Posts

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hey you two,

I don't think, you have to be ashamed of having this Emetephobia. I do not have Emetephobia (I guess) :unsure: and I panick also, when I have to throw up or if I see/hear somebody doing this. In fact, it is pretty nasty. Uuuggh!

And when I have nausea and I'm like on the couch, I'm even afraid of moving, cause I think, it could happen every minute. Never heard of that Emetephobia though. Hm...

Stef

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Darby Apprentice
Darby
Posted
  • Author
Darby, I still get nausea for no reason at all. Of course, I've only been gluten-free for 4 months, but i still get it all the time.

The stomach cramps and bloating I used to have pre diagnosis, though, are now gone. Overall I feel much better.

I wonder why you're still getting the nausea?? Unless 4 months still has not been long enough. How long do you think you've had the wheat problem overall? I wonder if you've done more damage and need longer to heal?

I woke up this am feeling extremely anxious and nervous about this whole thing. I keep trying to tell myself to just STOP IT and if I have celiac then I just make the change. If I'm still just wheat intolerant - I make the change anyway. What else is there to do - right!!

I guess I wouldn't feel as anxious if I didn't have this vacation coming up. But the Dr. said that if they don't have the results back by the time we left, she'd call me in Maui to tell me what they were.

Darby

missla3000 Rookie
missla3000
Posted

I am horrified too of being sick - but I can assure you that either way you have your endoscopy, make sure they numb your throat really well - asking for more if you can still feel yourself swallow, and of course let them know you are afraid of being sick! Once you have swallowed some of the stuff will go down and once it hits your stomach you will want to just lay down anyway - so dont worry after that its almost over! I am 27 and I was shaking from head to foot when I went in - so much so I almost passed out - but now I know its not that bad...hope that helps! And its better that you know either way as you have the rest of your life ahead of you feeling amazing!!!

KaitiUSA Enthusiast
KaitiUSA
Posted
I wonder why you're still getting the nausea??

Sometimes it takes people a longer time to heal. I did not feel alot better until month 3 and I wasn't back to normal till a few months after that. Everybody has different healing times and some can be in weeks and others months. It depends on a number of factors

jknnej-I get the spray at the Vitamin Shoppe. We usually order it via phone.

Darby Apprentice
Darby
Posted
  • Author
I am horrified too of being sick - but I can assure you that either way you have your endoscopy, make sure they numb your throat really well - asking for more if you can still feel yourself swallow, and of course let them know you are afraid of being sick! Once you have swallowed some of the stuff will go down and once it hits your stomach you will want to just lay down anyway - so dont worry after that its almost over! I am 27 and I was shaking from head to foot when I went in - so much so I almost passed out - but now I know its not that bad...hope that helps! And its better that you know either way as you have the rest of your life ahead of you feeling amazing!!!

So you can't swallow after they numb your throat?? What happens to your saliva??

tarnalberry Community Regular
tarnalberry
Posted

I would feel nausea as one of my hypoglycemic symptoms. I don't have any particularly great fear of throwing up if I'm anywhere that has a bathroom, but I really really really hate how it feels. Making sure to keep my hypoglycemic symptoms at bay, of course, helps that.

BTW, when I was in college, and there was a nasty stomach flu going around (this one actually wasn't food poisoning!), the health clinic prescribed Tygan when I couldn't keep anything down for days. It worked wonderfully, and I would expect (since the clinic prescribed it) that it isn't too expensive.

jknnej Collaborator
jknnej
Posted

Darby,

I don't know why I still get nausea. That's what I've been trying to figure out. I am taking Prevacid because my doctor thought it might be acid reflux.

I don't think I have hypoglycemia b/c eating sugar doesn't alleviate it.

They've checked my thyroid, I don't have diabetes and have checked regular blood work in general. They have no clue what's wrong. That's why I still need to get the endoscopy done.

I am 28 and have had stomach issues since childhood without being diagnosed, so maybe it will take me longer to heal; I don't know.

Or it could also be anxiety. The xanax from time to time really helps and it got me through my vacation. As long as I have my meds with me, I feel a little better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Darby Apprentice
Darby
Posted
  • Author
Darby,

I don't know why I still get nausea. That's what I've been trying to figure out. I am taking Prevacid because my doctor thought it might be acid reflux.

I don't think I have hypoglycemia b/c eating sugar doesn't alleviate it.

They've checked my thyroid, I don't have diabetes and have checked regular blood work in general. They have no clue what's wrong. That's why I still need to get the endoscopy done.

I am 28 and have had stomach issues since childhood without being diagnosed, so maybe it will take me longer to heal; I don't know.

Or it could also be anxiety. The xanax from time to time really helps and it got me through my vacation. As long as I have my meds with me, I feel a little better.

Again, we are so alike - its scary :) I spent the day today laying around on the couch and have been having a hard time eating because I'm nauseaus. Why.... because of anxiety over that stupid endoscopy!! I'm so scared of it. And I have to wait til Thurs. I'm going to call Monday am and see if they can't possibly get me in sooner. Not that I want to go thru with it BUT, it will be over with sooner. I'm afraid I'm going to make myself real sick over the worrying.

My husband finally said, "come on - get your dog and lets go for a walk in the foothills." It's only a couple of miles away. I feel better now - it really helped.

They told me to continue eating breads etc. so the test will be accurate and I've had some french bread and some graham crackers and I feel fine.

Shouldn't I be feeling sick after eating those type of foods??

I too have had stomach problems ever since childhood. My mom took me to Dr.'s when I was a kid and they did the barium x-rays etc... they finally just said that it was just a nervous stomach. No diagnosis.

I've always had some anxiety and that causes stomach upset and then the emet rears its ugly head - you know...

And I too feel better knowing I have meds on hand just in case.

I'm afraid that I will be sick or get sick in Maui but at least I'll have my meds with me. But still....

Today my husband said, "if you're too worried about going on vacation, we don't have to go." He's such a good guy- I don't know what I'd do without him.

But this vacation is a no-cancellation, no postpones. We would loose it all. I'll go. Maybe I'll just be fine. I remember we went to Oahu 2 years ago and I was terrified. That was our first trip in over 7 years. I was so nauseaus, I didn't think I would be able to go. I took my valium and I was like a zombie getting on the plane - LOL. Once we got there I was fine and I had never felt better while there. I didn't want to leave.

Last year we went to Maui and I was on my meds almost every other day BUT, that was because we were with my husband's brother and he is a very stressful person to be around - he's an old cranky fart. I wasn't comfortable around him.

Well, I've rattled on....

Darby

jknnej Collaborator
jknnej
Posted

Foothills? Where do you live? I live in Arizona and we have foothills here, too.

You and I could be identical twins. My husband is the SAME way. He is so wonderful and takes care of me when I don't feel well.

Your test will be fine! If I can make it through a colonoscopy and I am a HUGE baby and emet, you can make it through, too. I promise when you get home you will say it wasn't bad. I was SO out of it during my test I didn't even know I had had a test at all. The demerol acts as an amnesiac so you won't even remember anything.

Until you go off gluten, you don't get an immediate sick reaction. It's more like feeling crappy all of the time. That's why eating bread doesn't make you feel bad. I used to eat English muffins whenever I was sick to my stomach and I swear they made me feel better...ironic, huh? Now I wouldn't touch one with a ten foot pole!

When I was a kid they told my mom the EXACT same thing; she just has a nervous stomach! We really could be twins!

Last night I had the mother of all migraines. I was SO sick I thought I would die, literally. Thank GOD for Imitrex. today I feel like a truck ran over me. I think these migraines are hereditary, my mother always had them, too. I didn't get them until 26; I'm 28 now. My mom said it was the same for her.

DONT cancel your vacation. I won't say don't stress about it because let's face it: we don't have that ability not to!! If you're anything like me you know that! you will have a wonderful time. It will be so relaxing and beautiful there and you will feel great. Even if you didn't, do what I do. I say to myself: no condition will stop me from living my life. Look at all of the people who have terminal illnesses that manage to carry on and live life to the fullest. I can do this!!! You can, too. I am glad I found you! We can really help each other get through things.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,555
    • Most Online (within 30 mins)
      7,748
    JMF
    Newest Member
    JMF
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.