Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Symptoms Other Than Gi Did You Have.....


NE Mom

Recommended Posts

NE Mom Apprentice

I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor
I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

I had all the same symptoms you listed. I was dx'd with Celiac Disease in March of this year and Fibromyalgia in October after over 20years of these symptoms worsening with no diagnosis. My first months of gluten-free brought improvement to my bloating and other digestive issues, but none of the Fibro symptoms improved until just recently - I'm 9 months gluten-free and am supplementing with vitamins B, D, Calcium, Fish Oil, Malic Acid and some Essential Aminos.

I believe that the Fibromyalgia was a result of long term malnutrition from Celiac Disease. I'm 44 and have likely been Celiac my entire life.

ciavyn Contributor
I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

I've had ongoing fatigue, joint and muscle pain, and brain fog. All of which are improved after a little over a month gluten free.

Ahorsesoul Enthusiast
I believe that the Fibromyalgia was a result of long term malnutrition from Celiac Disease. I'm 44 and have likely been Celiac my entire life.

I agree!!!

jerseyangel Proficient

I have not been diagnosed with Fibro--although I still experience muscle pain that is more or less constant.

As for the Celiac, in addition to digestive symptoms I had tingling and numbness, feelings of "burning" from the inside on my feet and face, anxiety, depression, fatigue, severe dizziness (from the anemia), brain fog, general achiness, and something that I can only describe as clumsiness/unsteady on my feet.

lizard00 Enthusiast

Overwhelming fatigue and pounding headaches were my two longest symptoms. The best we can figure, my pregnancy triggered my celiac, and I went gluten-free when my son was 2 1/2... so, I figure I caught it very early on. However, toward the end of my gluten filled journey, I was starting to have a lot of muscle aches, and somedays I felt beat up from the inside out. I think I was probably headed down a bad path, and thankfully caught a lot of stuff before it happened.

I am 2 years gluten-free, and I rarely have headaches, my fatigue is 100% better, and the unknown muscle aches are a thing of the past. I have a 4 yr old and an almost 4 month old who has just recently decided to sleep in a bed, and on some of my worst days, I still feel better than I did two years ago before I kicked the gluten. Hang in there! :)

NE Mom Apprentice

Thank you everyone for your replies.

I also think my second pregnancy may have somehow triggered my Fibro (if that is really what it is). I was unable to eat multiple during this pregnancy because they made me sick, my daughter was born with a low birth weight and a anaphylactic allergy to dairy. See now has a total of 11 food allergies that we know of with the possiblity of more. My health has never been the same since giving birth to her.

The tTg results were all normal but I'm still waiting on the AGA IgG. A week of gluten free eating has me feeling better than I have in a couple of years until the last two days. Now I have to figure out if it is the roasted almonds from Walmart or the Honey Kix than may have contibuted to the debilitating fatigue the last two days.

Sam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.