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Itching


Waterfall

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Waterfall Newbie

Hello!

First post :D

The doctors here in Ontario don't know exactly what they are doing when it comes to Celiac. I was tested for wheat allergies which they thought was what I had for sure and they came out negative. Then my doctor said that everyone is a little bit allergic to wheat anyway... so just don't eat it.... then I said well what about the itching? and he shrugged and said I'd have to pay for the Celiac test.

I can't afford the test for Celiac right now as it's 150. canadian. I know there is another one you can do at home but that is also 60. in my area.

So for years I've been using creams and antifungal pills to combat candida/yeast infections which give me an all over itch and especially in the groin area. Sometimes it does help for a couple of days but then I'm right back where I was. I recently found out that just using dry skin cream does the same for a few hours.

So the itiching in the groin area is my main question.... does Candida effect others this way?

I've also had bad constipation/diah probs for most of my life. They do seem to get better when I stay with a gluten free diet too.

TY!


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EJR Rookie
Hello!

First post :D

The doctors here in Ontario don't know exactly what they are doing when it comes to Celiac. I was tested for wheat allergies which they thought was what I had for sure and they came out negative. Then my doctor said that everyone is a little bit allergic to wheat anyway... so just don't eat it.... then I said well what about the itching? and he shrugged and said I'd have to pay for the Celiac test.

I can't afford the test for Celiac right now as it's 150. canadian. I know there is another one you can do at home but that is also 60. in my area.

So for years I've been using creams and antifungal pills to combat candida/yeast infections which give me an all over itch and especially in the groin area. Sometimes it does help for a couple of days but then I'm right back where I was. I recently found out that just using dry skin cream does the same for a few hours.

So the itiching in the groin area is my main question.... does Candida effect others this way?

I've also had bad constipation/diah probs for most of my life. They do seem to get better when I stay with a gluten free diet too.

TY!

Hi,

I have this problem also. Actually about 5 years ago I got it in the anal area also after

taking Ciprofloxacin for 3 days. Had to see a specialist before it would clear up (took over a year).

I still get what I think are vaginal yeast infections quite regularly and like you sometimes the creams help and sometimes they don't. I also get red, raised itchy bumps inside the buttocks. I think these are related to eating gluten and/or to other food allergies. They have stopped since I have been eating gluten free.

I have 'gluten intolerance' as diagnosed by Enterolab and also have one of the main Celiac genes and one gluten sensitivity gene. I cannot get tested here in Canada because I have been gluten free for over a year. I tried going back to eating gluten but made it less than 3 days (got very ill). Even if you wish to use the Biocard test that is

available in Canada you must be eating gluten for at least 3 months (equivalent of 3-4 pieces of toast a day). Apparently the biopsy done through endoscopy can be invalid after one or two weeks of being gluten free (which I was when I had the test). The last time I did another stupid gluten challenge my liver enzymes were elevated. I'm going back next week to be retested. I understand that this also happens with some celiacs.

I, too would be curious if other confirmed Celiacs have trouble with itching and/or yeast infections in the vaginal or buttocks area.

My biggest problem with the gluten free diet is that so far I don't seem to get 'better', but if I eat gluten I am far worse. What a bummer!

I see that you are from Ontario. I am from Saskatchewan.

Joyce

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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