Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My Poor Baby


mommaofthreebeans

Recommended Posts

mommaofthreebeans Rookie

Hi I am new here.

My 11 month old soon is allergic to wheat ( and soy, and rice, and eggs, oh joy) lol

My 4 yr old son had a biopsy done when he was 2, they said there was damage to his intestines but couldnt conclusively say it was celiac. ( which I am still confused about). But anyway, with my youngest's obvious reaction to all things wheat I have decided to just make the leap and have at least the kids and I go completely gluten free.

the baby was diagnosed with the allergies when i was breastfeeding, I was told that I was no longer able to breastfeed and adhere to his diet with us both staying healthy, so we switched to Alimentum (which he reacted to), and then we switched him to goat's milk, and with a more serious food screening we discovered he was not allergic to lactose so we switched to cows milk around 7 months coupled with iron drops.

The poor boy's excema is awful and so are his reactive rashes. Just glad to have found a place to learn from and get support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Momma and Welcome!

I always marvel at the strength of mothers, when their children have special diet needs.

We have many moms who will share their experience with you. How long has your family been totally gluten free? Do your or the father, or grandparents have digestive issues? Twenty percent of first degree relatives can develop Celiac Disease.

Blunted villi is not conclusive for Celiac, but coupled with the rest of the family history, it may be likely.

I would put the entire family on a 100% gluten free diet for several months. I bet you would be surprised at the improvement.

C.com is full of useful information, with hundreds of moms who have walked in your shoes to guide you along. You have come to a great place.

mommaofthreebeans Rookie

thanks for the warm welcome I appreciate it!

My husband thought that I was overly worried about my oldest son, but now with the baby's allergies he is coming around. But of course he worried about cost.

nmlove Contributor

Welcome! If there's something positive to be said for kids on special diets, it's that they quickly adapt to it and also what great stuff there is out there now (products and info). Though I'll be the first to admit that some days I just want to throw in the towel...

I hope that your littlest one outgrows his allergies. And hopefully his eczema clears up soon. That's so hard for little ones. I'm nervous to introduce food to my baby as she's definitely reacting to some of what I eat through breastmilk. Just wondering though why they said you couldn't still breastfeed? I've had to cut out dairy/soy and doing well without it. And joy of joys, I was able to have chocolate for the first time since June a few weeks ago. Heaven!

taweavmo3 Enthusiast

If your husband is worried about cost, the diet can be done frugally with planning and organization. I'm a stay at home mom of four kids, and I feed us all gluten/dairy free for about $120 a week or less. And that includes a 10 year old who is quickly becoming and endless pit : )

I cook everything from scratch, and scour gluten free blogs for simple recipes. My gluten-free flour essentials are brown rice flour, white rice flour, potato starch, tapioca starch, and sorghum. Also, I try to sub guar gum (it's half the price) for xanthan gum in my baked goods....but not bread! You need Xanthan in bread I have found.

Is corn a problem for your kiddos? We do alot with corn tortillas, and I also make different things out of Maseca masa harina..it's dirt cheap, and I only mix it with water to make a dough. My kids favorite is to roll out the dough really thin, fry it up, then slather it with a butter sub and some cinnamon sugar. Tastes almost like a cinnamon roll!

Lunches are the hardest I have found....kids usually have a sandwich and fruit, or leftovers. Also, Angel Food ministries has an allergen box filled with kid friendly food like chicken nuggets, chicken tenders, etc. that is free of the top eight allergens.

I hope that helps some! If you need menu planning ideas or anything, just send me a message and I'd be happy to help. This board is a great resource, especially when you are just getting started. Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,199
    • Most Online (within 30 mins)
      7,748

    Stacy M
    Newest Member
    Stacy M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...