Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Depression/Anxiety/Paranoia After Going Gluten Free


DownWithGluten

Recommended Posts

DownWithGluten Explorer

Hi. Not sure if this is the right section to post this in...feel free to bump it around. Also if this has been addressed, I apologize. Feel free to direct me to the already existent thread.

That said. I think I'm...I had a little realization of sorts. I'm curious, in the period shortly AFTER going gluten-free for the first time, has anyone experienced an increase in depression/anxiety/paranoia/confusion?

I had this kind of downward spiral "episode" that happened about 3 months after I began the gluten free the diet. There were several precipitating factors that I can think of...some weighing more than others. I don't want to get in to it too much, because this is a public site and who knows who might find me and I don't talk about this much to anyone. But it got to the point that it was almost, almost near psychosis. Just a lot of confusion, realizing I was somewhere and had no idea why I went there in the first place, etc. It reached a boiling point and I pulled myself out somehow without any counseling, so that's good...hindsight, I'm not sure why I didn't just take advantage of the counseling center on campus. But, I didn't. Anyway. It was like this overwhelming anxiety and depression that just came to a head, which I've till know chalked up completely just to be being alone a lot and overly stressed about certain things. Which could still be true.

BUT I was just writing on the thread about dropping out of college, and noticed a post about someone else saying they had to drop school after going on the diet, just from the stress/depression until they got their feet back on the ground, body used to the diet, right nutrition, etc.

Is it possible my little near breakdown could have been partly the fault of going gluten-free? As a newbie, maybe I wasn't getting all the food I needed. (I do remember thinking hunger was a factor that might have played in.) Or could be some weird kind of 'withdrawal' or...maybe, just such a huge, drastic change in my diet somehow screwed with my head a little?

Anyone have a similar experience? Or is this just some wishful thinking on my part. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi. Not sure if this is the right section to post this in...feel free to bump it around. Also if this has been addressed, I apologize. Feel free to direct me to the already existent thread.

That said. I think I'm...I had a little realization of sorts. I'm curious, in the period shortly AFTER going gluten-free for the first time, has anyone experienced an increase in depression/anxiety/paranoia/confusion?

I had this kind of downward spiral "episode" that happened about 3 months after I began the gluten free the diet. There were several precipitating factors that I can think of...some weighing more than others. I don't want to get in to it too much, because this is a public site and who knows who might find me and I don't talk about this much to anyone. But it got to the point that it was almost, almost near psychosis. Just a lot of confusion, realizing I was somewhere and had no idea why I went there in the first place, etc. It reached a boiling point and I pulled myself out somehow without any counseling, so that's good...hindsight, I'm not sure why I didn't just take advantage of the counseling center on campus. But, I didn't. Anyway. It was like this overwhelming anxiety and depression that just came to a head, which I've till know chalked up completely just to be being alone a lot and overly stressed about certain things. Which could still be true.

BUT I was just writing on the thread about dropping out of college, and noticed a post about someone else saying they had to drop school after going on the diet, just from the stress/depression until they got their feet back on the ground, body used to the diet, right nutrition, etc.

Is it possible my little near breakdown could have been partly the fault of going gluten-free? As a newbie, maybe I wasn't getting all the food I needed. (I do remember thinking hunger was a factor that might have played in.) Or could be some weird kind of 'withdrawal' or...maybe, just such a huge, drastic change in my diet somehow screwed with my head a little?

Anyone have a similar experience? Or is this just some wishful thinking on my part. :ph34r:

Your body is making a tremendous adjustment when withdrawing from the gluten (which is toxic to you) and many people report a withdrawal symptom for some time. There is also the issue of other nutrients your body may be lacking through improper absorption of nutrients in the gut. Have you checked that all your vitamin and mineral levels are up to snuff (and I don't mean that bottom of the range is okay, I mean near the middle of the range)--especially Vitamin D, B12 (all the B's actually, folate, zinc, magnesium. Have you had your thyroid function checked (TSH, free T4 and free T3. All these things can be contributing to feelings of depression, lethargy, confusion. Of course, the diet itself, initially, can leave one feeling a little isolated and out of it, and put all these things together you have a lot to deal with. So yes, people do have similar experiences. I went through it starting several months after I actually dquit gluten, and it was not until I got all my metabolic levels balanced again that I felt balanced myself. You are not unusual at all, sorry to say :D Of course, you seem to have had some other contributing factors that could have made it all much worse, especially if you were not eating well after going gluten free, and it can be hard to do if you are in college.

Good for you for pulling yourself out of it and I am glad you are starting to feel better, but I would still (if you haven't already) get your nutrient levels checked with blood tests to make sure. :)

DownWithGluten Explorer

Thanks for the response. In this case, I'd be glad not to be unusual lol!

It's going to be 3 years in January that I've been on the diet. My mom is always egging me to go see a nutritionist or something and I'm like "ehh" because all that stuff bores me. I only pay attention to what I eat now because I have to, lol.

but what I really need to do, like you mentioned, is check my thyroid. I was diagnosed with Hashimoto's when I was 10. At some point that doctor retired, and I haven't been to an endocrinologist since. I'd continue with synthroid and get my levels checked just with physicals, but it's been at least 3 years with that. My mom also mentioned that some say gluten intolerance/hashimotos are connected, and the levels might change once on the diet. That could really be a contributing factor too. So you know what, now that I'm putting all this together in my mind, I think first thing monday I'm going to make an appointment with a thyroid doctor somewhere and see what's going on. Wouldn't it be great if all it took was some thyroid readjusting and I become this joyous, happy person! :P Too good to be true, but, at least if I know my levels are right that would be good. But yeah...that really could have been a factor.

I may have been uber stressed anyway, and then adding all that health stuff on top just pushed it over the edge.

Thanks!

T.H. Community Regular

You might want to check out food allergies, as well.

I was getting very sick after going gluten free, and then was off and on depressed/angry/stressed.

Turns out, I'm reacting to most of the other grasses, like corn, rice and sugar cane (which is less processed in a lot of gluten-free foods, so I was reacting more than I had in the past when I didn't even know I was allergic!).

After dropping a whole horde of foods in my diet, everything feels ten times better.

I know that a lot of people report a gluten withdrawal kind of reaction after going gluten free, but after hearing a couple facts from my GI and my dietician, I have to admit, I wonder if a lot of us are suffering from something else. Because 1) (according to GI doc)genetically, people with the gene for celiac sprue are also more likely to suffer from food allergies, sensitivities, and intolerances. Even if the celiac never 'triggers.' 2) according to dietician, a lot of people who have been eating gluten for some time will be more sensitive to other related grasses at first, but then that sensitivities often ebb after we've been away for a while.

I sometimes wonder if we drop all the grasses for a couple months after going gluten free, if we'd feel better. No idea, really, just a thought!

Thanks for the response. In this case, I'd be glad not to be unusual lol!

It's going to be 3 years in January that I've been on the diet. My mom is always egging me to go see a nutritionist or something and I'm like "ehh" because all that stuff bores me. I only pay attention to what I eat now because I have to, lol.

but what I really need to do, like you mentioned, is check my thyroid. I was diagnosed with Hashimoto's when I was 10. At some point that doctor retired, and I haven't been to an endocrinologist since. I'd continue with synthroid and get my levels checked just with physicals, but it's been at least 3 years with that. My mom also mentioned that some say gluten intolerance/hashimotos are connected, and the levels might change once on the diet. That could really be a contributing factor too. So you know what, now that I'm putting all this together in my mind, I think first thing monday I'm going to make an appointment with a thyroid doctor somewhere and see what's going on. Wouldn't it be great if all it took was some thyroid readjusting and I become this joyous, happy person! :P Too good to be true, but, at least if I know my levels are right that would be good. But yeah...that really could have been a factor.

I may have been uber stressed anyway, and then adding all that health stuff on top just pushed it over the edge.

Thanks!

  • 2 weeks later...
sandsurfgirl Collaborator

If your thyroid dose is too high it will make you feel like you are jumping out of your skin. You must monitor your thyroid and see a doc regularly about that. The thyroid regulates so many things in your body. Check that first. I won't use synthroid. It left me with "normal" labs and tons of symptoms for years. I got way , better when I switched to a dessicated natural thyroid. It's still a prescription, but it comes from a pig thyroid not chemicals. It was life changing. I used to use Armour brand but they changed the formula and I got major symptoms back. Now I use West throid. It's not easy to come by right now because there is a shortage but if you google it and call the manufacturer they can tell you where to find it. It's not easy getting a doc who will prescribe it because many of them only know about Synthroid and the like.

DownWithGluten Explorer

If your thyroid dose is too high it will make you feel like you are jumping out of your skin. You must monitor your thyroid and see a doc regularly about that. The thyroid regulates so many things in your body. Check that first. I won't use synthroid. It left me with "normal" labs and tons of symptoms for years. I got way , better when I switched to a dessicated natural thyroid. It's still a prescription, but it comes from a pig thyroid not chemicals. It was life changing. I used to use Armour brand but they changed the formula and I got major symptoms back. Now I use West throid. It's not easy to come by right now because there is a shortage but if you google it and call the manufacturer they can tell you where to find it. It's not easy getting a doc who will prescribe it because many of them only know about Synthroid and the like.

A dessicated pig thyroid? Sounds interesting. And yeah I do feel like I really need to get my thyroid checked. I should stop slacking. And so you say that synthroid made your bloodwork come back good, but you were still irritable/lethargic whatever comes with it? I am definitely those things, and I know those are common symptoms of hypothyroidism, so it would be glorious to have that finally go away. And if it's a dried pig organ that'll do it...thanks for the suggestion. I should go to a thyroid doc soon, I'll mention the pig thing. Especially since I saw another thread somewhere saying some people have felt they were 'glutened' by synthroid, recently. That's the last thing I need.

Anyway, thanks for the tip :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,996
    • Most Online (within 30 mins)
      7,748

    MyDudeHasCeliac
    Newest Member
    MyDudeHasCeliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mettedkny
      Thank you for your response. I'd love to read more about your suggestion, everything I find online speaks to the opposite. Unfortunately I need the HRT due to many other factors (post menopause symptoms and osteoporosis) so stopping the estrogen would be very unfortunate. Vitamin D is pretty good, not great, but now below the norm at 36
    • Sarawiththeceliac
      I take a vitamin called 21 century it has everything magnesium potassium b12 and it's just a full supplement for the day ,then I have one that my mom brought which are gummies and then I tried centrum ,I also have range of different irons (iron sulphate,iron glyciatnate and others . My problem is that I live with my aunt and due to the circumstances in my home country ( war ) we live all in a small house and they don't cook food that is rich in food and I am not comfortable in cooking for my self like meat or something like that they get mad ,that I ate everything.so I mostly eat what they eat in the day which is just a big meal and then I make small snacks that i could eat I wanted to buy moringa powder or things that I can mix easily and put them in a water bottle.my family don't take things serious about celiac they just believe I am small because I eat rice which doesn't make you get fat as they believe.they also make fun of me when I say I am gonna eat alone due to your contamination I really struggle with them.also I have vitamin D ( it was the most absorbable vitamin for me ) my blood test went from 21 to 34 after i took 50000um I guess every week and that's it .can you recommend me vitamins I can buy from Amazon or anywhere 
    • Wheatwacked
      Elevated estrogen or fluctuations in estrogen can contribute to leaky gut and cause elevated anti-gliadin IgG in people with celiac disease who are on a gluten-free diet,  High levels of progesterone have been shown to decrease gut permeability. Talk to your doctor about a vacation from the estrogen, from your decription it looks to be the culpret.  How is your vitamin D?
    • Wheatwacked
      The very reason you take supplements is because you absorb poorly due to the villi inflammation.  You need these vitamins to heal and get stronger.  Could you give us a list of what you are taking and quantity? Iron supplements cause a lot of people discomfort.  Better to get iron and folate from food.  Heme iron sources rom animal products like red meat, poultry, and seafood with raise your iron. Some blood tests like magnesium, potassium, the body has a homeostasis level that they must be in the nomal range.  So don't worry about the ones in normal range. As an example from myself.  I started taking 10,000 IU of vitamin D in 2014.  It only took a few weeks until I really felt the benefit.  I was very deficient.  In 2019 my blood level of 25(OH)D was one 47 ng/ml (=117 nmol/L).  Two more years to get to 80ng/ml (=200 nmol/L) the homeostasis level for vitamin D. Whuch ones make your side hurt?  Perhaps there is an alternate.   What vitamins are you concerned about?
    • Treen
      Hello. My younger sister was just diagnosed with Celiac disease. My older sister is type 1 diabetic. I suspect my mother had Celiac. I have suffered with gastrointestinal problems my entire life. I want to get tested, but I’m self employed and I purchase my insurance through the ACA marketplace. Thanks to the Big Beautiful (Terrible) Bill, the enhanced subsidies are set to expire at the end of 2025. The Republican legislature did not renew the enhanced subsidies. I will lose my health insurance at the end of 2025. I’m concerned that if I test positive for Celiac, I will not be able to find insurance coverage due to this pre-existing condition. So, I’m hoping to purchase my own test through WalkInLab (they offer the complete screen for $159). This way I’ll at least know if I have the disease. I won’t tell my doctor since there’s nothing he can do to help me anyway. Then I’ll cut gluten from my diet entirely, which will be easy. I hardly eat at all anymore. I just hope my insurance can’t somehow find out about the results of this screen, if it comes back positive. I’d be paying in full with a credit card.    Do any of you have any thoughts or advice?  Thanks for reading either way. 
×
×
  • Create New...