Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An-Pep?


infosearcher

Recommended Posts

infosearcher Newbie

My daughter was recently diagnosed with Celiac disease through bloodwork and biopsy of her small intestine. We have gone gluten free since Dec. 11th, but I'm sure that we've made mistakes along the way. I am quite puzzled by the fact that she seems to continue to have bouts of constant indigestion - a lot of deep belching, bloating, and gas even though I have been closely monitoring her diet. For example, she ate Betty Crocker gluten free chocolate chip cookies Fri. evening and started belching and becoming sick Sat. morning. I was reading about the enzyme an-pep and I was wondering if anyone else takes this? Does it work? Could it possibly be something that my daughter should be taking to help with her discomfort and indigestion? This is all new to us, and I would appreciate any information that someone could offer that's familiar with what I'm describing. We return to her GI dr. next week, and I thought that we would see more progress than this. By the way, she takes Nexium twice a day and Zantac if she needs it. I also give her probiotics - acidiphillus.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hello & Welcome-

Here is my two cents! She is very new to the gluten-free lifestlye & not all experience relief the first weeks, months or even several years. So it will take much time for many.

She could be noticing & reacting to foods that she never thought were a problem ! Once our bodies start to feel change it sometimes shares other things with us....... it is common to experience sensitivities to many things that she may have not noticed in the past. She is now becoming more aware of what the body is telling her.

Taking nexium & also Zantac at times to me is overkill. First off I feel both of these drugs deplete the good flora in the intestinal tract, they are made to do that. We need good flora to aid in digestion. Probiotics & enzymes are friendly to our intestinal tract . But I think by taking the Nezxum & then adding probiotics is " I'll kill off what good flora I have then try to replace some of the loss with a probiotic."

There are also many who do not do well with ready made , prepackaged foods... Plus there could be another ingredient in the betty crocker that isn't agreeing with her.

Has she been tested for allergies to a dairy, night shade vegetables, corn ,, soy & so on?

The protein in milk (casein) is also broken down at the tips of the villi....

Here i smy suggestion : eat very simple plain foods ie: chicken, veggies & fruit to give herself a chance to heal the gut. Then agter she finds no problem with these gluten-free food items then move on & add a new item every few days to see if she gets a reaction. This way she can find out what is the culprit.

godd luck

mamaw

Ahorsesoul Enthusiast

My dh has suffered for year with stomach acid problems. The last two he has taken acid reducing medications for his stomach. It did not fix it. He's now been gluten free over two months. Just this weekend he was saying how his stomach symptoms have reduced to almost nothing. He is also taking vinegar or orange juice instead.

Here's some interesting info on why people should not be taking stomach acid reducing medications long term:

Open Original Shared Link

orchid1 Newbie

My daughter was recently diagnosed with Celiac disease through bloodwork and biopsy of her small intestine. We have gone gluten free since Dec. 11th, but I'm sure that we've made mistakes along the way. I am quite puzzled by the fact that she seems to continue to have bouts of constant indigestion - a lot of deep belching, bloating, and gas even though I have been closely monitoring her diet. For example, she ate Betty Crocker gluten free chocolate chip cookies Fri. evening and started belching and becoming sick Sat. morning. I was reading about the enzyme an-pep and I was wondering if anyone else takes this? Does it work? Could it possibly be something that my daughter should be taking to help with her discomfort and indigestion? This is all new to us, and I would appreciate any information that someone could offer that's familiar with what I'm describing. We return to her GI dr. next week, and I thought that we would see more progress than this. By the way, she takes Nexium twice a day and Zantac if she needs it. I also give her probiotics - acidiphillus.

Hi, i would like to relate to your daughter's situation thru my experience with celiac disease. i had celiac disease for many years before it was diagnosed with it. as a result my small intestine became so damaged that i became intolerant to: all dairy products (lactose intolerance is very common amongst celiacs), legumes, nuts, fats, most oils, potatoes, corn, rice, sugar, red meats and several starches. i would experience bloating, gas and diahrea if i ate any of the things mentioned. i found out about these food intolerances by keeping a food diary and constantly

recording any symptons after eating various gluten free foods. it is not an easy thing to do and it takes alot of time. she could have intolerances to other foods-not just gluten containing foods.

infosearcher Newbie

Hello & Welcome-

Here is my two cents! She is very new to the gluten-free lifestlye & not all experience relief the first weeks, months or even several years. So it will take much time for many.

She could be noticing & reacting to foods that she never thought were a problem ! Once our bodies start to feel change it sometimes shares other things with us....... it is common to experience sensitivities to many things that she may have not noticed in the past. She is now becoming more aware of what the body is telling her.

Taking nexium & also Zantac at times to me is overkill. First off I feel both of these drugs deplete the good flora in the intestinal tract, they are made to do that. We need good flora to aid in digestion. Probiotics & enzymes are friendly to our intestinal tract . But I think by taking the Nezxum & then adding probiotics is " I'll kill off what good flora I have then try to replace some of the loss with a probiotic."

There are also many who do not do well with ready made , prepackaged foods... Plus there could be another ingredient in the betty crocker that isn't agreeing with her.

Has she been tested for allergies to a dairy, night shade vegetables, corn ,, soy & so on?

The protein in milk (casein) is also broken down at the tips of the villi....

Here i smy suggestion : eat very simple plain foods ie: chicken, veggies & fruit to give herself a chance to heal the gut. Then agter she finds no problem with these gluten-free food items then move on & add a new item every few days to see if she gets a reaction. This way she can find out what is the culprit.

godd luck

mamaw

No, she hasn't been tested for other allergies to foods but I have wondered about the dairy products. I didn't realize that a prepackaged gluten free food (such as the Betty Crocker mix) may cause her problems, but I probably won't buy it again until I can rule out what has made her ill. The reason she takes the Nexium is because she has esophagitis and duodenitis (sp?) that was found through an upper GI series done in Nov.'09. I like your advice about eating a bland diet. I'm sure that her gut is hurting and is a mess. I wished it was me that could have this instead of her.... Thanks for your advice:)

mamaw Community Regular

You are very welcome. I hope she gets to feeling better soon... sorry there are no quick fixes with celiac.

blessings

mamaw

CMCM Rising Star

After going gluten free, I started trying all the various gluten free goodies out there....mixes, cookies, cakes, etc. What I found was that my system was unable to handle all those OTHER grains and starches, and I had problems with sugar as well. Also dairy. I had to eat very carefully for a long time....many months....and even now nearly 4 years later I have to be careful and eat small amounts of these things. In the beginning, though, your system is a mess and just can't deal with things that are hard to digest.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

No, she hasn't been tested for other allergies to foods but I have wondered about the dairy products. I didn't realize that a prepackaged gluten free food (such as the Betty Crocker mix) may cause her problems, but I probably won't buy it again until I can rule out what has made her ill. The reason she takes the Nexium is because she has esophagitis and duodenitis (sp?) that was found through an upper GI series done in Nov.'09. I like your advice about eating a bland diet. I'm sure that her gut is hurting and is a mess. I wished it was me that could have this instead of her.... Thanks for your advice:)

Was she still on gluten or doing a gluten challenge before the endo? The gluten reaction can cause the inflammation of the esophagus and duodenum. If that was the case then she needed the diet and perhaps a short term on the script meds not a long term dosage. My GI found this inflammation on my tests also, in my case it was a reaction from the stuff I had to drink as they scoped both ends. A very short course of Pepto Bismal took care of it. I had been handed both the scripts she was but choose to try the pepto first. It worked and didn't mess with the natural production of acid in the stomach that we need to digest our food.

Also make sure to check that the drugs she was given are gluten free. The pharm should be checking with each script or refill but some need to be reminded.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      9

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    2. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    5. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,241
    • Most Online (within 30 mins)
      7,748

    Lectinfreetxn
    Newest Member
    Lectinfreetxn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.