Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free & Multiple Sclerosis?

GFDietitian

By GFDietitian
in Related Issues & Disorders

Recommended Posts

GFDietitian Newbie
GFDietitian
Posted

So, wondering if anyone else out there is gluten free and has a diagnosis of Multiple Sclerosis??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

So, wondering if anyone else out there is gluten free and has a diagnosis of Multiple Sclerosis??

I was thought to have it for a long time but it turned out to be the celiac brain impact. All my MS symptoms resolved within a few months. The only thing that remains is balance issues, which are actually gluten ataxia, but those are still continueing to improve.

VioletBlue Contributor
VioletBlue
Posted

I am like Ravenwood. Most of the neurological symptoms have gone away. My balance and vertigo issues are better after almost 4 years gluten-free but balance is still a problem in some circumstances.

I was thought to have it for a long time but it turned out to be the celiac brain impact. All my MS symptoms resolved within a few months. The only thing that remains is balance issues, which are actually gluten ataxia, but those are still continueing to improve.

orchid1 Newbie
orchid1
Posted

So, wondering if anyone else out there is gluten free and has a diagnosis of Multiple Sclerosis??

i am a celiac but my sister and one of her friends had been diagnosed with MS over 10 years ago. several monthes ago i came accross an article in August edition of Scientic America which mentioned how rheumatoid arthritis. diabeties 1, celiac disease and MS (all being autoimmune diseases) have "leaky gut" syndrome in common. after several monthes of badgering they were convinced to try a gluten free, legume free, dairy free diet (basically that is the diet i am on because of legume, corn, rice, potatoe, sugar, red meat, poly fats, most oils and nuts intolernces) my sister's symptons stabalized and is condsidered in remission: her friend who, because of ataxia had gone from using a cane to using a walker and getting ready to use a wheelchair now walks without a cane or walker. she has also enjoyed recovery in several other areas. her pace of recovery has been nothing less than a miracle in her own words. she has also signed up as a voluteer for the CCSVI study being conducted by the local university

nutralady2001 Newbie
nutralady2001
Posted

I have just met some-one whose sister has MS. The sister is on a gluten free diet and is adament that it helps .

jackay Enthusiast
jackay
Posted

I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

ciavyn Contributor
ciavyn
Posted

I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

Find a good article to show her, make the suggestion, and don't talk about yourself and your gluten issues. I'm sure she'll appreciate anything that might help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

_______________

Send her the url of this website. Some forms of gluten intolerance have neurological symptoms that match MS. Some of us, myself included, no longer need a cane to walk and have regained feeling in our hands and feet after going on a gluten free diet. I didn't have the stuff in the spinal fluid but I did have brain lesions called bright spots. Never a formal diagnosis after being told I probably had it, by many doctors. Did intensive internet research, found some sites saying diet helped certain kinds of arthritis and sometimes MS, tried the diet, figuring I had nothing to lose and it wouldn't hurt.

It won't be a miracle for everybody, but consider that it is now thought that 1 out of 100 people are celiac or gluten intolerant, and the majority are undiagnosed- likely because they didn't waste away but are showing other, baffling symptoms. I think a large number of people with "fibro" and gut issues and brain fog could be likely candidates, that haven't deteriorated to ataxia and numbness yet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748
    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.