Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


iffy

Recommended Posts

iffy Rookie

My 4 year old granddaughter gets stomach pain often. She's always been a picky eater and

she's skinny as a twig though strong and active. They eat very healthy, and I don't think

there's any psychological problems. She was checked for celiac, I don't know what they did

exactly but it was pretty unpleasant, and turned out negative. I'm going to ask for more

specifics, now that I've learned more about celiac for myself.

I've looked at Enterolab's website since so many of you talk about it, and I'm wondering,

would it be good for them to do a stool sample study?

This child was a Terrible Two and an even worse Three, with crazy meltdowns over nothing,

but now she's pretty nice. But when I see a website saying that up to 25% of kids have

'functional belly pain' with no explanation that they just outgrow, I wonder if they are

incipient undiagnosed celiacs. I thought this child was just wired tighter than some,

but I suspect food. She eats lots of pasta, and cheese, and fruit.

iffy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lvanderb Newbie

Now are you sure you're not talking about my daughter? Oh, she was that way, she was born a terrible two (oy, the melt downs.. I remember one she had when she was nine, in a grocery store...)... sigh... and frequent belly pain, since she could talk.

Well, we thought that she was just too tightly wound too, and other people mentioned that... ok, she is, but, putting her on a gluten free diet (finally, at the age of 14, only after DH went on a gluten free diet) has cleared up the belly pain (and the constipation and diarrhea and most of the headaches...).

Her dr. pretty well treated her stomach pain like that too, it'll probably clear up.. well, it didn't, poor thing!

She is skinny as a twig, and loves fruit and misses her subs and pizza (well, I make it, but it's not quite the same - she's very good about it though)

Maybe Enterolab would be an idea - we just decided to go gluten free and see if it helped, and it did, phew!

Linda

Welda Johnson Newbie

I LOVE Enterolab! My youngest grandson started projectile vomiting his formula shortly after birth, and had 14 diarrhea diapers in one night. The pediatrician said he just had a "healthy system". Eeks. Then it dawned on me that he probably had allergies to milk, as I do (and grains of course). I spent $350 on a full spectrum test kit from Enterolab, and, sure enough, he was intolerant of all grains, and all milk & dairy. Next I got the sensitivity to grains test for my 3 grown children, and my brother & sister, at $100 per test kit. My 3 kids never used the tests, but my sister & brother did. My sister has it, my brother doesn't. I am intolerant of all grains, all milk & dairy, egg whites, yeast, casein, whey, msg, and maltodextrin & modified food starches that are not derived from corn. Being on the diet is the difference between good health and illness. I highly recommend the Enterolab test kits. Best wishes to you. Let us know if you need any more information on Celiac or any other topic. By the way, my grandson would have crying meltdowns and severe rashes when he would accidentally get glutened or have milk products. It was the difference between a sweet blessing of a child, and someone who was suffering drastically. It's up to all of us to take care of these precious gifts. Good luck. Welda

iffy Rookie

Thank you SO much, Welda and Ivanderb. I'll pass all this on to that family.

iffy

quote name='Welda Johnson' date='15 January 2010 - 12:11 PM' timestamp='1263586278' post='586820']

I LOVE Enterolab! My youngest grandson started projectile vomiting his formula shortly after birth, and had 14 diarrhea diapers in one night. The pediatrician said he just had a "healthy system". Eeks. Then it dawned on me that he probably had allergies to milk, as I do (and grains of course). I spent $350 on a full spectrum test kit from Enterolab, and, sure enough, he was intolerant of all grains, and all milk & dairy. Next I got the sensitivity to grains test for my 3 grown children, and my brother & sister, at $100 per test kit. My 3 kids never used the tests, but my sister & brother did. My sister has it, my brother doesn't. I am intolerant of all grains, all milk & dairy, egg whites, yeast, casein, whey, msg, and maltodextrin & modified food starches that are now derived from corn. Being on the diet is the difference between good health and illness. I highly recommend the Enterolab test kits. Best wishes to you. Let us know if you need any more information on Celiac or any other topic. By the way, my grandson would have crying meltdowns and severe rashes when he would accidentally get glutened or have milk products. It was the difference between a sweet blessing of a child, and someone who was suffering drastically. It's all up to us to take care of these precious gifts. Good luck. Welda

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748

    Stacy W
    Newest Member
    Stacy W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.