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Guest Doct.Giggles

By Guest Doct.Giggles
in Introduce Yourself / Share Stuff

Recommended Posts

celiac3270 Collaborator
celiac3270
Posted

Oh, I see, cool. I thought there would be some simple meaning behind it, but I didn't know what it was . Thanx for answering.

Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol

:mellow::huh:^_^:o;):P:D:lol:B):rolleyes:-_-<_<:):wub::angry::(:unsure::wacko::blink::ph34r:

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  • Replies 86
  • Created
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jazzyjess Newbie
jazzyjess
Posted

hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

celiac3270 Collaborator
celiac3270
Posted
hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

Yea...soy lecthin (spelling?) is fine...gluten-free.

jazzyjess Newbie
jazzyjess
Posted

thanks

im so bad at reading the labels i usually just end up not eating things cos im not sure wether there ok or not and its safer so its great that i can find out some things i didnt know :lol:

celiac3270 Collaborator
celiac3270
Posted

When in doubt, check the forbidden list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

or the safe list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

and if you are searching for something, do ctrl and f, pulling up a "find" box. Then you can type in the word you're looking for and if you're not sure of the spelling, just do, for example, "soy L"

jazzyjess Newbie
jazzyjess
Posted

thats reli good i just visited it thanks so much when ever labels have long ingredients i never know whether there all right or not thats going to be very useful

im jess btw im 14 i became coeliacs around easter :P

Carriefaith Enthusiast
Carriefaith
Posted
Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol
I don't have all those smilies as an option, like the bashful one with hearts above its head and the sleepy one. Do you have to do something special to get those?
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gf4life Enthusiast
gf4life
Posted

Carrie, at the bottom of the emoticon box there is a Show All option. Click on that and it will open up the whole box in a separate window. :)

God bless,

Mariann

celiac3270 Collaborator
celiac3270
Posted

Yes...I anticipated I would get that question :lol:

melly Rookie
melly
Posted

hello my name is melly I technicaly wont be a teenager till the sixtenth of october i found out that i had celiac disease 2 weeks a go im still not felling well and still getting used to it some times it makes me sad seeing all i cant have and i think it would be really nice to talk to someone my age thats going through the same thing if you are please message me

ps is everyone here named tifany

celiac3270 Collaborator
celiac3270
Posted

no I responded to your other topic.

melly Rookie
melly
Posted
I feel really young!!!! I am still 13 and won't be 14 untill October!!!!! :( But it is nice to find people close to my age!!! :huh:

-Tiffany

lol tiffany I am still 12 and i wont be 13 till october and i feel really young

PrincessLEah Rookie
PrincessLEah
Posted

turned 13 a month ago :D

PrincessLEah Rookie
PrincessLEah
Posted

I need some candy. BRB

Guest gliX
Guest gliX
Posted

I'm too old for this section B)

  • 1 month later...
Thyraxeon Newbie
Thyraxeon
Posted

Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

KaitiUSA Enthusiast
KaitiUSA
Posted
Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

<{POST_SNAPBACK}>

Hey I am also 18. You can email me anytime to chat.

petlover Newbie
petlover
Posted

I am 11 and very new to this whole thing. Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back. My mom tested negative but can't eat anything with gluten in it. I feel the same way she does when I eat it. So I will probably never eat it again even if the test is negative. It is nice to know there are other kids like me. :P . Most kids dont understand. It is hard when someone offers me something I can't eat but want to :(

Asia

KaitiUSA Enthusiast
KaitiUSA
Posted
I am 11 and very new to this whole thing.  Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back.  My mom tested negative but can't eat anything with gluten in it.  I feel the same way she does when I eat it.  So I will probably never eat it again even if the test is negative.  It is nice to know there are other kids like me. :P  . Most kids dont understand.  It is hard when someone offers me something I can't eat but want to :(

Asia

<{POST_SNAPBACK}>

Were you gluten free at the time of testing? If you were not on gluten then the results may not come back right. I am glad that you feel better on the diet so you should continue to stick to it. There is so much stuff that you can have that your friends can have too so it won't be as hard when you get used to it and find things :D

2Boys4Me Enthusiast
2Boys4Me
Posted

Not a teenager ( :o since too long to mention) and my son Ty who was just diagnosed with celiac disease won't be a teenager for almost 7 years!

I'm just posting to say there are young celiac disease kids out there, we don't know any of them though ;)

Linda, mom to Ty my 5.5 year old Celiac kid.

petlover Newbie
petlover
Posted

I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

dragonzzz Newbie
dragonzzz
Posted

I'm 10 but i'm almost 11. My mom can't have gluten and neither can my sister. I got tested and the results haven't come back yet but i can't eat anything with gluten in it for the time being :( . i hate it cause half the things i eat have gluten in them and i luv them soo much. I have been feeling better since ive stopped eating it. One of my symtoms was gas. Sometimes it was so painful i had to stay home from school. I had diarrhea with it and was doubled over when it was really bad. But since i went gluten-free i havent had any gas! I ws wondering do any of u guys have the same symptoms as me? Or any other symptoms...

dragonzzz Newbie
dragonzzz
Posted
I have not eaten gluten for only 2-3 weeks but have had a few accidents.  Some how now when I have an accident it hurts so much more

<{POST_SNAPBACK}>

I luv your avatar!!! Is it u? :D

celiac3270 Collaborator
celiac3270
Posted
    I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

Absolutely. As your intestines heal they become more sensitive to gluten...and are less accustomed to it, yielding a more painful reaction when you do accidentally ingest gluten.

dragonzzz Newbie
dragonzzz
Posted

I know ur not talking to me but that is really cool!

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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