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Guest Doct.Giggles

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celiac3270 Collaborator

Oh, I see, cool. I thought there would be some simple meaning behind it, but I didn't know what it was . Thanx for answering.

Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol

:mellow::huh:^_^:o;):P:D:lol:B):rolleyes:-_-<_<:):wub::angry::(:unsure::wacko::blink::ph34r:


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  • Replies 86
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jazzyjess Newbie

hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

celiac3270 Collaborator
hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

Yea...soy lecthin (spelling?) is fine...gluten-free.

jazzyjess Newbie

thanks

im so bad at reading the labels i usually just end up not eating things cos im not sure wether there ok or not and its safer so its great that i can find out some things i didnt know :lol:

celiac3270 Collaborator

When in doubt, check the forbidden list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

or the safe list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

and if you are searching for something, do ctrl and f, pulling up a "find" box. Then you can type in the word you're looking for and if you're not sure of the spelling, just do, for example, "soy L"

jazzyjess Newbie

thats reli good i just visited it thanks so much when ever labels have long ingredients i never know whether there all right or not thats going to be very useful

im jess btw im 14 i became coeliacs around easter :P

Carriefaith Enthusiast
Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol
I don't have all those smilies as an option, like the bashful one with hearts above its head and the sleepy one. Do you have to do something special to get those?

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gf4life Enthusiast

Carrie, at the bottom of the emoticon box there is a Show All option. Click on that and it will open up the whole box in a separate window. :)

God bless,

Mariann

celiac3270 Collaborator

Yes...I anticipated I would get that question :lol:

melly Rookie

hello my name is melly I technicaly wont be a teenager till the sixtenth of october i found out that i had celiac disease 2 weeks a go im still not felling well and still getting used to it some times it makes me sad seeing all i cant have and i think it would be really nice to talk to someone my age thats going through the same thing if you are please message me

ps is everyone here named tifany

celiac3270 Collaborator

no I responded to your other topic.

melly Rookie
I feel really young!!!! I am still 13 and won't be 14 untill October!!!!! :( But it is nice to find people close to my age!!! :huh:

-Tiffany

lol tiffany I am still 12 and i wont be 13 till october and i feel really young

PrincessLEah Rookie

turned 13 a month ago :D

PrincessLEah Rookie

I need some candy. BRB

Guest gliX

I'm too old for this section B)

  • 1 month later...
Thyraxeon Newbie

Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

KaitiUSA Enthusiast
Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

<{POST_SNAPBACK}>

Hey I am also 18. You can email me anytime to chat.

petlover Newbie

I am 11 and very new to this whole thing. Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back. My mom tested negative but can't eat anything with gluten in it. I feel the same way she does when I eat it. So I will probably never eat it again even if the test is negative. It is nice to know there are other kids like me. :P . Most kids dont understand. It is hard when someone offers me something I can't eat but want to :(

Asia

KaitiUSA Enthusiast
I am 11 and very new to this whole thing.  Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back.  My mom tested negative but can't eat anything with gluten in it.  I feel the same way she does when I eat it.  So I will probably never eat it again even if the test is negative.  It is nice to know there are other kids like me. :P  . Most kids dont understand.  It is hard when someone offers me something I can't eat but want to :(

Asia

<{POST_SNAPBACK}>

Were you gluten free at the time of testing? If you were not on gluten then the results may not come back right. I am glad that you feel better on the diet so you should continue to stick to it. There is so much stuff that you can have that your friends can have too so it won't be as hard when you get used to it and find things :D

2Boys4Me Enthusiast

Not a teenager ( :o since too long to mention) and my son Ty who was just diagnosed with celiac disease won't be a teenager for almost 7 years!

I'm just posting to say there are young celiac disease kids out there, we don't know any of them though ;)

Linda, mom to Ty my 5.5 year old Celiac kid.

petlover Newbie

I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

dragonzzz Newbie

I'm 10 but i'm almost 11. My mom can't have gluten and neither can my sister. I got tested and the results haven't come back yet but i can't eat anything with gluten in it for the time being :( . i hate it cause half the things i eat have gluten in them and i luv them soo much. I have been feeling better since ive stopped eating it. One of my symtoms was gas. Sometimes it was so painful i had to stay home from school. I had diarrhea with it and was doubled over when it was really bad. But since i went gluten-free i havent had any gas! I ws wondering do any of u guys have the same symptoms as me? Or any other symptoms...

dragonzzz Newbie
I have not eaten gluten for only 2-3 weeks but have had a few accidents.  Some how now when I have an accident it hurts so much more

<{POST_SNAPBACK}>

I luv your avatar!!! Is it u? :D

celiac3270 Collaborator
    I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

Absolutely. As your intestines heal they become more sensitive to gluten...and are less accustomed to it, yielding a more painful reaction when you do accidentally ingest gluten.

dragonzzz Newbie

I know ur not talking to me but that is really cool!

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    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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