Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

4 Year Old With Stomach Pain


karenhockley

Recommended Posts

karenhockley Apprentice

I'll try to make this as short as possible. My four year old started complaining about stomach pains a little while back. I thought it maybe a stress thing because his daily schedule has change. We started driving my oldest to school and picking her up everyday. Over the Christmas break the complained a little more than usual but I figured it was because we were out of town and it wasn't home (he's a home body) Now not to compare him to his sisters but his BM are looser than "normal" but I wouldn't consider them diarrhea. I still have him in pull ups because when he complains about his stomach pain he usually ends up with nasty diarrhea. I took him to the Dr's for his regular well child check up and explained everything to the Dr. And since Wyatt was getting 4 vaccination shots the Dr and I thought it would be a good idea to monitor his diet and when he gets these pains. Well I'm on the fence on getting him tested. Because I have celiac should I still get him tested or just say hey no more wheat/gluten for you? The Dr thinks it maybe a stress thing because he's not in pain all day and his growth charts aren't being affected. Is getting this confirmed worth it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

My opinion is from my experience. Get the testing done.

Our daughter only went as far as "probable" Celiac diagnoses. She later was diagnosed with Eosinophilic Esophagitis.

Have the information and a baseline to start your child's health history. Yearly check-ups to make sure the gluten free diet is working. If any other health issue develops in the future you will have a better chance at an earlier diagnoses. You will probably find a pediatrician with experience with Celiac and other disorders associated with celiac disease.

It is a very hard decision. In your mind it appears to be Celiac, and why would you put your child through testing? In the future there may be doubts and restricting the diet for a rebellious teen ager may not be easy.

OBXMom Explorer

I'm sorry about your little guy's stomach aches. Could you do a blood test at least? Then if it is positive, and based on a genetic predisposition, maybe you could choose to skip the biopsy. The only problem about just cutting out the gluten is that if his tummy still hurts (and a lot of times it does for quite a while during healing or because the celiac has caused other issues) it will be hard to figure out what to do next. Prior to my son's diagnosis, one doctor had implied that my son's tummy aches were pychological, and when I told his GI doctor, he became angry. I remember him saying, "There is no way this is all in his head." But even he was shocked when my son's bloodwork indicated celiac so strongly because he didn't fit the profile in many ways. Enterolab is another noninvasive alternative - that's what we used to diagnose my second child, who strongly (very strongly!) objected to a biopsy. Hope your son feels better soon.

karenhockley Apprentice

I'm sorry about your little guy's stomach aches. Could you do a blood test at least? Then if it is positive, and based on a genetic predisposition, maybe you could choose to skip the biopsy. The only problem about just cutting out the gluten is that if his tummy still hurts (and a lot of times it does for quite a while during healing or because the celiac has caused other issues) it will be hard to figure out what to do next. Prior to my son's diagnosis, one doctor had implied that my son's tummy aches were pychological, and when I told his GI doctor, he became angry. I remember him saying, "There is no way this is all in his head." But even he was shocked when my son's bloodwork indicated celiac so strongly because he didn't fit the profile in many ways. Enterolab is another noninvasive alternative - that's what we used to diagnose my second child, who strongly (very strongly!) objected to a biopsy. Hope your son feels better soon.

I'm leaning toward doing the test but when we were at the doc's a few days ago he got 4 vaccines and I didn't want to case him anymore pain. I thought I would wait a week or two to see if it's a stress thing. I just want to know what others would do or if they've been through this.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.