Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis.....Question On Eliminating

madiva87

By madiva87
in Coping with Celiac Disease

Recommended Posts

madiva87 Rookie
madiva87
Posted

I just got diagnosed last week and I'm devastated with the changes I'll have to make as I love my food! My question is, is it better to slowly back off on the gluten or should I do a "cold turkey"?

5 years ago I lost 60 lbs and had to change my way of eating, but that seems like a piece of cake next to this. Although this would explain my health "issues" over the years. My Anti thyroglubin level was off the charts several years ago and I had a positive ANA. How the diagnosis came out is that my bone density has decreased significally over the last test 18 mo ago. And I always thought I just had IBS for my odd bathroom habits. But still I'm devastated. I actually called the Doctor's office today and asked to have the results faxed to me so I could see it for myself. I know the lady answering the phone probably thought I was a nut! But she said she would give the message to the Doctor.

Any advice with dealing is greatly appreciated. Thanks!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

I just got diagnosed last week and I'm devastated with the changes I'll have to make as I love my food! My question is, is it better to slowly back off on the gluten or should I do a "cold turkey"?

5 years ago I lost 60 lbs and had to change my way of eating, but that seems like a piece of cake next to this. Although this would explain my health "issues" over the years. My Anti thyroglubin level was off the charts several years ago and I had a positive ANA. How the diagnosis came out is that my bone density has decreased significally over the last test 18 mo ago. And I always thought I just had IBS for my odd bathroom habits. But still I'm devastated. I actually called the Doctor's office today and asked to have the results faxed to me so I could see it for myself. I know the lady answering the phone probably thought I was a nut! But she said she would give the message to the Doctor.

Any advice with dealing is greatly appreciated. Thanks!!!

Cold turkey. It's easier. Otherwise, it's like backing into cold water. Every step is painful, and your system will continue to be screwed up until you are finally off.

And just wait until you are! This is a wonderful world of healthy, whole foods! As someone who has done an awesome job already making him/herself healthier by shedding pounds, you will love all the healthy foods. And believe me - your tastebuds will adapt. I crave my gluten free breads, my healthy snacks, even my amazing dinners. Believe me, with the right attitude and a willingness to open up to a whole new world of cooking and baking, you will be making things that taste even better, simply because you started trying things you never would have bothered with before.

The adjustment is hard...but trust me, over time, it truly is rewarding, you will eat healthier and your family will think you've become a cooking genius (my MIL just called me today to tell me my gluten free dinner that I made them last night was the best meal they've ever had...even my FIL said so, which he NEVER says to anyone. ;)). And feel free to post all over this board about your questions, concerns, and curiosities. People on here have so much experience and are willing to help you every step of the way.

Welcome!!

Reba32 Rookie
Reba32
Posted

Cold turkey is the best way to go. The ONLY way to treat Celiac disease is by totally avoiding gluten products. If you continue to eat products with gluten in them, then you will never get healthy.

For every gluten containing product, there is a gluten free alternative. There's really nothing to miss!

ravenwoodglass Mentor
ravenwoodglass
Posted

You need to go cold turkey. You want to stop the antibodies and even a little bit will keep that antibody reaction active. It is hard at first but you can do it. Ask any questions you need to, read as much as you can and feel free to vent if needed.

sandsurfgirl Collaborator
sandsurfgirl
Posted

I am new to this, only 2 weeks into the diet. I have definitely gone through the stages of grieving. You need to give yourself time to process all those emotions, because there will be many of them.

Feeling better and seeing the results of the diet on my health are big motivators. I have my sadness over some things, but I've found great gluten free versions. Pretty much anything I want to eat I can make at home.

Let yourself feel all those emotions and journal about them. Talk to friends, post here. Those things have been really helpful for me. This board has been great.

I'm Italian and the pasta and pizza thing has really been a hard one for me. I found a great brown rice pasta, but haven't tried a pizza yet because I'm dairy free during this healing time. But I think there will always be sadness when friends want to hit an Italian restaurant and I either can't eat there or have to have salad or whatever. But my health is so much more important than any restaurant.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,167
    • Most Online (within 30 mins)
      7,748
    jill.p.liken
    Newest Member
    jill.p.liken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...