Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did It Again! Question!


Lexi

Recommended Posts

Lexi Enthusiast

Gosh, this lifestyle is just so frustrating!!! I spent my whole summer sick because I was drinking Rice Dream milk, and finally started to get better a few months ago. Now I spent my whole Christmas Holiday sick again. I was so excited when I ordered some Hot Chocolate with mint from The Endangered Species Website. I was drinking it every afternoon as a treat to keep warm. I thought it was gluten free because all of their choocalte is gluten free. I drank it with coconut milk, and it was so good! However, I have been sick for the last month. I decided to call today just to double-check the product, and the lady told me that it was the only product on their website that wasn't gluten free. My first thought was to go get a Chick-fil-a sandwich since I had already been making myself sick for the last month anyway.....LOL! I still don't understand the whole concept.....do trace amounts of gluten do just as much as a whole chick-fil-a sandwich? Does it do the same amount of damage?? If that is the case, would it really matter if I went ahead and ate the sandwhich and then started fresh again?????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

I was drinking Rice Dream too until I read on here that it has traces of gluten. There are people who drink it with no problem though. It has like 20 parts per million, so it's a trace amount, but there are people who are sensitive to that.

It's hard to have to read everything and investigate it all. We just have to learn from setbacks and move forward.

You were drinking it everyday and the Rice Dream too, so it's tough for you to know how sensitive you will be when you aren't doing that. It might be that drinking it once or twice wouldn't have bothered you that much, but everyday was too much.

Personally I wouldn't go eat the chik fil a. It's not worth it.

ciavyn Contributor

I was drinking Rice Dream too until I read on here that it has traces of gluten. There are people who drink it with no problem though. It has like 20 parts per million, so it's a trace amount, but there are people who are sensitive to that.

It's hard to have to read everything and investigate it all. We just have to learn from setbacks and move forward.

You were drinking it everyday and the Rice Dream too, so it's tough for you to know how sensitive you will be when you aren't doing that. It might be that drinking it once or twice wouldn't have bothered you that much, but everyday was too much.

Personally I wouldn't go eat the chik fil a. It's not worth it.

Don't be hard on yourself - we've all done it. I sit here still miserable from two weeks ago, and some ill-chosen beans (who knew?!) the other night.

But I wouldn't make it worse by compounding yet more gluten into your system. I don't know if you've had the opportunity yet to feel better - really better - but that is so worth it. And Chik-fil-a isn't as good as you think it is. ;) Promise.

Hang in there. We all learning this one day at a time.

bluebonnet Explorer

the smallest amount can make you sick. take a for instance with hand lotion ingredients- they are to be scrutinized because while we aren't drinking them if we are eating, the residual lotion could easily cross contaminate the food.

chic fi la sounds awesome - but after you are feeling noticably *better* nothing sounds good if you know after you eat it you are gonna be sorry for days.

you also don't want to flip flop back and forth ... eating some every now and then can and will hurt you. hang in there!! ... (to me) its a blessing to be able to cure yourself just by eliminating 1 thing from you diet. after the learning curve you will be on your way to feeling well and being healthy! good luck! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Anne G posted a topic in Related Issues & Disorders
      0

      celiac disease and braces

    2. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748

    Malia Ana
    Newest Member
    Malia Ana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Anne G
      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.