Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance / Celiac And Liver Problems


jarsmith

Recommended Posts

jarsmith Newbie

Hi,

I've been off gluten since last October. My blood tests were inconclusive and my biopsies negative (I've had three over the last 9 years). After years and years of unexplained flair ups of joint pain, chronic fatigue, diahrea, mouth sores, and severe abdominal pain my GI doc told me to try a gluten free diet. The difference is super - no more joint pain, chronic fatigue, unexplained fever, or severe abdominal pain. However, my liver enzymes are still elevated, I have tenderness under the right ribs, and diahrea. I was just wondering if anyone else knew much about the interactions between celiac's and autoimmune hepetitis or other liver conditions. I'd be greful for any input!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

I was one of those whose liver enzymes were mildly elevated for years before discovering I had celiac disease. The enzymes normalized within 3 or 4 months after going gluten free however. One expert estimates that the incidence of elevated liver enzymes among Celiacs is 18-40%. You may need more time for your liver to heal. If your enzymes continue to be elevated much longer, however, I would have some in depth testing done as there are other liver diseases that could cause this that may or may not be related to celiac disease. Your liver is important, don't ignore this ongoing problem. What are the numbers for your enzymens, anyway?

The other thing I would look at is gluten free compliance. A lot of Celiacs think they are gluten free but are getting contamination through unexpected sources such as oral hygiene products or medications or they simply are disciplined. It's all about totally eliminating gluten, not just cutting back.

mopsiecat Rookie

Hi,

I've been off gluten since last October. My blood tests were inconclusive and my biopsies negative (I've had three over the last 9 years). After years and years of unexplained flair ups of joint pain, chronic fatigue, diahrea, mouth sores, and severe abdominal pain my GI doc told me to try a gluten free diet. The difference is super - no more joint pain, chronic fatigue, unexplained fever, or severe abdominal pain. However, my liver enzymes are still elevated, I have tenderness under the right ribs, and diahrea. I was just wondering if anyone else knew much about the interactions between celiac's and autoimmune hepetitis or other liver conditions. I'd be greful for any input!

Thanks!

My sister who was often sloppy with her gluten free diet was diagnosed with autoimmune hepetitis several years ago. She's doing OK now, but has to be very careful with most medications; for instance, Tylenol and other pain medications which she would like to take for arthritis will cause liver pain.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.