Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Congratulations To Me!

cdford

Recommended Posts

cdford Contributor
cdford
Posted

I am so excited...I am able to walk a little around my house again! As long as I am barefoot and don't try to do too much, I have been able to move around my house some. If I try to put shoes on, I can't lift that left leg enough to move it without stumbling, but maybe I will get there. Right now, just being out of that wheelchair a little is feeling pretty wonderful.

To those of you out there with neuropathy, spasticity, FMS, etc. there is hope. Now my biggest challenge may be to take it slowly enough so I don't put myself back into it full time again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

Donna-

So glad to hear about your victory :) You are always in my prayers. Hopefully someone will keep you accountable on not too doing much... How's the wedding coming? What day is it?

"Give up the nonsensical and punishing quest for perfection that dogs too many of us through too much of our lives. It is a quest that causes us to doubt and denigrate ourselves, our true selves, our quirks and foibles and great leaps into the unknown, and that is bad enough." -Anna Quindlen

Emme999 Enthusiast
Emme999
Posted

Congratulations Donna :) You deserve every victory you get ;)

rmmadden Contributor
rmmadden
Posted

Congratulations and best wishes for continued success!

Cleveland Bob B)

celiac3270 Collaborator
celiac3270
Posted

Yay! :D My sincere congratulations. That's such a great step! ;)

Guest BERNESES
Guest BERNESES
Posted

Donna- That's so great! Now don't overdo it! Treat yourself well, but God you must feel so happy! Yeah! Beverly

KaitiUSA Enthusiast
KaitiUSA
Posted

Donna-that's wonderful news!!! Congrats!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Donna, that is such wonderful news!!!! :)

Take one day at a time, that's all we can ask ourselves to do......

Hugs.

Karen

cdford Contributor
cdford
Posted
  • Author

I knew that you guys, of all people, would understand my small but important victory. I have been stuck in this wheelchair since 1998. I had just begun to move around a little last year when I got glutened by a restaurant. It has been nine months of gradual and painful effort to get back to this point. I do so want to be able to get around at least using a walker again. The docs are talking about maybe letting me get another AFO to help that left foot lift up. I could once again have the problem of needing a size 8 women's right shoe and a size 8 men's left shoe--and I could get excited about such a problem!

The wedding is June 3. I am trying right now to work out the logistics of the deli meat. Did you all know that several of Kroger's Private Selection deli meats are gluten-free if you don't get them from the deli? (Cross contamination) 60lbs of deli meat is a lot of meat! Oh yeah, I need to add this info to the other post don't I. I am so overwhelmed right now.

For those of you who pray, keep me in them this next few days. Tomorrow is home school day at Six Flags, Saturday my youngest has to be on the ball field by 9:30 a.m. and then my mom is coming in from out of town, and Sunday is another wedding shower. My fatigue levels are going to skyrocket and we are in the last few weeks of school for the year and a wedding is almost upon us. My biggest fear now is that I will overdo it and set myself back again. Needless to say my kids, husband, mom, and friends are all on my case to be careful. They would not even let me go to church Wednesday night for fear I won't make it through this weekend. The last time I took my kids to Six Flags, they remember me walking around with them. They are really excited about tomorrow. Jenn's reaction to our most recent accidental glutening has finally kicked in so she has had "loads of fun" (facetious, not sarcastic) this last week. (Look it up if you aren't sure of the difference! The teacher in me kicks in regularly around here...yesterday it was a discussion of the word genre and its appropriate usage.) She is bound and determined to make it tomorrow, so she has been extra good this week.

jenvan Collaborator
jenvan
Posted

Donna-

Prayers for you... I hope you will not have a sense of dread, but be able to have a sense of joy and anticipation at what's ahead these next few days. Some verses for you...

The Sovereign LORD is my strength; he makes my feet like the feet of a deer, he enables me to go on the heights. Hab 3:19 (I would love for you to have this feeling of going on the heights!!)

O LORD, be gracious to us; we long for you. Be our strength every morning, our salvation in time of distress. Isaiah 33: 2

And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. "Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me." 2 Corinthians 12:9

cdford Contributor
cdford
Posted
  • Author

Thank you, Jen, for those verses. I am halfway through the weekend. I am stuttering and jerking and tired, but am making it. Can't write more. Too hard.

celiac3270 Collaborator
celiac3270
Posted

Okay, go rest up! ;) We're thinking of you :)

Guest nini
Guest nini
Posted

Donna, glad to hear you are moving a little better. Please don't overdo it. You are in my thoughts sweets. :D

cdford Contributor
cdford
Posted
  • Author

I made it through. I am tired ("that" tired, you knwo what imean). Sent eerybody else to church without me. Time for bed, biut I think i will be okay with someee sleep.

celiac3270 Collaborator
celiac3270
Posted

I can tell from your post... :) Rest up! ;)

YOU ==> -_- , lol

Canadian Karen Community Regular
Canadian Karen
Posted

Don't overdo it, Donna! Don't reverse all the recent new accomplishments by overdoing it. Take it easy!!!! That's an order! ;)

Karen

cdford Contributor
cdford
Posted
  • Author

A 24-hour nap later...

I am back in the land of the living (and writing after seeing that last post of mine). It was a wild and hectic weekend, but it is completed now. It will probably take a few days for me to feel rested, but at least I am back in the saddle a little. Thank you all for your encouragement and support.

jenvan Collaborator
jenvan
Posted

Glad to hear you are well Donna !

Guest BERNESES
Guest BERNESES
Posted

You deserve it Donna- Congratulations! By the way Jen - I LOVE your photograph! It's hilarious. Beverly

celiac3270 Collaborator
celiac3270
Posted

Yay! Anything we can do to "help you" through it. I am sincerely thrilled for you...I can't imagine not being able to walk, so this is must be an amazing victory for you. Glad you got through the weekend ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MicG
      - MicG replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol.
    2. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated...
    3. MicG
      - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    4. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      how long does it take for the genetic blood test for celiac to come back?

      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood...
    5. DebD5
      - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

      Interestingly enough, while I hear you. I completely disagree. Gluten has not been 100% removed. There’s still trace amounts under the regulated amount per millions allowed. I gave only figured out in the last year, while reading chats on this site, of other celiacs still having issues and how they figured it out. If enough companies allow slight amounts o...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,655
    • Most Online (within 30 mins)
      7,748
    Murdy3
    Newest Member
    Murdy3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test interpretations

      By MicG · Posted

      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back?

      By catnapt · Posted

      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      Second chance

      By Scott Adams · Posted

      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.