Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Congratulations To Me!


cdford

Recommended Posts

cdford Contributor

I am so excited...I am able to walk a little around my house again! As long as I am barefoot and don't try to do too much, I have been able to move around my house some. If I try to put shoes on, I can't lift that left leg enough to move it without stumbling, but maybe I will get there. Right now, just being out of that wheelchair a little is feeling pretty wonderful.

To those of you out there with neuropathy, spasticity, FMS, etc. there is hope. Now my biggest challenge may be to take it slowly enough so I don't put myself back into it full time again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Donna-

So glad to hear about your victory :) You are always in my prayers. Hopefully someone will keep you accountable on not too doing much... How's the wedding coming? What day is it?

"Give up the nonsensical and punishing quest for perfection that dogs too many of us through too much of our lives. It is a quest that causes us to doubt and denigrate ourselves, our true selves, our quirks and foibles and great leaps into the unknown, and that is bad enough." -Anna Quindlen

Emme999 Enthusiast

Congratulations Donna :) You deserve every victory you get ;)

rmmadden Contributor

Congratulations and best wishes for continued success!

Cleveland Bob B)

celiac3270 Collaborator

Yay! :D My sincere congratulations. That's such a great step! ;)

Guest BERNESES

Donna- That's so great! Now don't overdo it! Treat yourself well, but God you must feel so happy! Yeah! Beverly

KaitiUSA Enthusiast

Donna-that's wonderful news!!! Congrats!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Donna, that is such wonderful news!!!! :)

Take one day at a time, that's all we can ask ourselves to do......

Hugs.

Karen

cdford Contributor

I knew that you guys, of all people, would understand my small but important victory. I have been stuck in this wheelchair since 1998. I had just begun to move around a little last year when I got glutened by a restaurant. It has been nine months of gradual and painful effort to get back to this point. I do so want to be able to get around at least using a walker again. The docs are talking about maybe letting me get another AFO to help that left foot lift up. I could once again have the problem of needing a size 8 women's right shoe and a size 8 men's left shoe--and I could get excited about such a problem!

The wedding is June 3. I am trying right now to work out the logistics of the deli meat. Did you all know that several of Kroger's Private Selection deli meats are gluten-free if you don't get them from the deli? (Cross contamination) 60lbs of deli meat is a lot of meat! Oh yeah, I need to add this info to the other post don't I. I am so overwhelmed right now.

For those of you who pray, keep me in them this next few days. Tomorrow is home school day at Six Flags, Saturday my youngest has to be on the ball field by 9:30 a.m. and then my mom is coming in from out of town, and Sunday is another wedding shower. My fatigue levels are going to skyrocket and we are in the last few weeks of school for the year and a wedding is almost upon us. My biggest fear now is that I will overdo it and set myself back again. Needless to say my kids, husband, mom, and friends are all on my case to be careful. They would not even let me go to church Wednesday night for fear I won't make it through this weekend. The last time I took my kids to Six Flags, they remember me walking around with them. They are really excited about tomorrow. Jenn's reaction to our most recent accidental glutening has finally kicked in so she has had "loads of fun" (facetious, not sarcastic) this last week. (Look it up if you aren't sure of the difference! The teacher in me kicks in regularly around here...yesterday it was a discussion of the word genre and its appropriate usage.) She is bound and determined to make it tomorrow, so she has been extra good this week.

jenvan Collaborator

Donna-

Prayers for you... I hope you will not have a sense of dread, but be able to have a sense of joy and anticipation at what's ahead these next few days. Some verses for you...

The Sovereign LORD is my strength; he makes my feet like the feet of a deer, he enables me to go on the heights. Hab 3:19 (I would love for you to have this feeling of going on the heights!!)

O LORD, be gracious to us; we long for you. Be our strength every morning, our salvation in time of distress. Isaiah 33: 2

And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. "Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me." 2 Corinthians 12:9

cdford Contributor

Thank you, Jen, for those verses. I am halfway through the weekend. I am stuttering and jerking and tired, but am making it. Can't write more. Too hard.

celiac3270 Collaborator

Okay, go rest up! ;) We're thinking of you :)

Guest nini

Donna, glad to hear you are moving a little better. Please don't overdo it. You are in my thoughts sweets. :D

cdford Contributor

I made it through. I am tired ("that" tired, you knwo what imean). Sent eerybody else to church without me. Time for bed, biut I think i will be okay with someee sleep.

celiac3270 Collaborator

I can tell from your post... :) Rest up! ;)

YOU ==> -_- , lol

Canadian Karen Community Regular

Don't overdo it, Donna! Don't reverse all the recent new accomplishments by overdoing it. Take it easy!!!! That's an order! ;)

Karen

cdford Contributor

A 24-hour nap later...

I am back in the land of the living (and writing after seeing that last post of mine). It was a wild and hectic weekend, but it is completed now. It will probably take a few days for me to feel rested, but at least I am back in the saddle a little. Thank you all for your encouragement and support.

jenvan Collaborator

Glad to hear you are well Donna !

Guest BERNESES

You deserve it Donna- Congratulations! By the way Jen - I LOVE your photograph! It's hilarious. Beverly

celiac3270 Collaborator

Yay! Anything we can do to "help you" through it. I am sincerely thrilled for you...I can't imagine not being able to walk, so this is must be an amazing victory for you. Glad you got through the weekend ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.