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Are "gluten-free" Oats Safe?

jasonD2

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jasonD2 Experienced
jasonD2
Posted

can celiacs tolerate oats as long as they are gluten free? ive been eating Eco-Planet hot cereal for the past week. it says they are certified gluten free but my stools have been very loose and floating since i started eating it. could there be a connection? is it maybe just the fiber content?

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tarnalberry Community Regular
tarnalberry
Posted

10% of celiacs react to the protein in oats.

They may be free of wheat, barley, and rye, but you may be reacting to the oats themselves.

jasonD2 Experienced
jasonD2
Posted
  • Author

Does the reaction to oats cause villi damage? figures im in the 10%

psawyer Proficient
psawyer
Posted

Yes, for the 10% who react to oat protein, the reaction is identical to that caused by the other three gluten grains.

jasonD2 Experienced
jasonD2
Posted
  • Author

So I just destroyed my intestines for 5 days eating something that is labelled certified gluten free?

mushroom Proficient
mushroom
Posted

Jason, I don't think you can afford to be experimenting with foods right now. :( I, personally, would not risk eating oats, but especially not in your shoes.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Could you be reacting to the increase in fiber? I believe it's really important to add oats back slowly so your gut can adjust to the added fiber.

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jasonD2 Experienced
jasonD2
Posted
  • Author

I was thinking that too but not sure- thats the most frustrating thing with all of this...I dont know if its a food/gluten reaction that causes my bowel changes or if its something else. I didnt experience any other symptoms after eating the oats...didnt even have bloating and actually felt pretty good the past few days.

jasonD2 Experienced
jasonD2
Posted
  • Author

I know- but ive been limiting myself for so long, so when WILL be a good time to start trying new things?

psawyer Proficient
psawyer
Posted

Jason, for now, stick to things that are simple and do not raise questions. Give your body a chance to heal. Then, slowly, introduce new foods, one at a time. For me, oats would be the last thing I would try. I don't know if I am in the 10%. I have not eaten anything with oats in almost ten years.

I can eat most foods that are processed, as long as they do not have intentional gluten in the ingredients. There is a list of companies that will not disguise gluten, but rather will clearly disclose it. I prefer to buy their products, but will also buy from other companies when there are only ingredients that are never a source of gluten.

Even when there is a "gluten free" statement on the label, there can never be an absolute guarantee that cross contact did not occur at some stage in the processing of some ingredient. Any company that claims to guarantee gluten-free status is lying. Any company that states that they "cannot guarantee" no cross contact is just being honest.

jasonD2 Experienced
jasonD2
Posted
  • Author

how much longer do i have to wait though? theres no diversity in my diet and i have various nutritional deficiencies as a result.

Also I think the companies that are certified gluten-free can be trusted...they have dedicated facilities and batch test

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I'm one of those who can not do the oats. I've tried several times and it does not work. I figure oats are for horses and cows but not me.

Roda Rising Star
Roda
Posted

The one time I tried gluten free oats I reacted pretty strongly. I have not tried them since and that was last June. I doubt I will ever try them again.

gfbatali Newbie
gfbatali
Posted

You better stay away from oats because you cannnot guarantee that they are not cross contaminated with other grains even if labled gluten free and they contains similer protin as wheat

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      Inconclusive results

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    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
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      By deanna1ynne · Posted

      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
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