Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are "gluten-free" Oats Safe?

jasonD2

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

can celiacs tolerate oats as long as they are gluten free? ive been eating Eco-Planet hot cereal for the past week. it says they are certified gluten free but my stools have been very loose and floating since i started eating it. could there be a connection? is it maybe just the fiber content?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

10% of celiacs react to the protein in oats.

They may be free of wheat, barley, and rye, but you may be reacting to the oats themselves.

jasonD2 Experienced
jasonD2
Posted
  • Author

Does the reaction to oats cause villi damage? figures im in the 10%

psawyer Proficient
psawyer
Posted

Yes, for the 10% who react to oat protein, the reaction is identical to that caused by the other three gluten grains.

jasonD2 Experienced
jasonD2
Posted
  • Author

So I just destroyed my intestines for 5 days eating something that is labelled certified gluten free?

mushroom Proficient
mushroom
Posted

Jason, I don't think you can afford to be experimenting with foods right now. :( I, personally, would not risk eating oats, but especially not in your shoes.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Could you be reacting to the increase in fiber? I believe it's really important to add oats back slowly so your gut can adjust to the added fiber.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jasonD2 Experienced
jasonD2
Posted
  • Author

I was thinking that too but not sure- thats the most frustrating thing with all of this...I dont know if its a food/gluten reaction that causes my bowel changes or if its something else. I didnt experience any other symptoms after eating the oats...didnt even have bloating and actually felt pretty good the past few days.

jasonD2 Experienced
jasonD2
Posted
  • Author

I know- but ive been limiting myself for so long, so when WILL be a good time to start trying new things?

psawyer Proficient
psawyer
Posted

Jason, for now, stick to things that are simple and do not raise questions. Give your body a chance to heal. Then, slowly, introduce new foods, one at a time. For me, oats would be the last thing I would try. I don't know if I am in the 10%. I have not eaten anything with oats in almost ten years.

I can eat most foods that are processed, as long as they do not have intentional gluten in the ingredients. There is a list of companies that will not disguise gluten, but rather will clearly disclose it. I prefer to buy their products, but will also buy from other companies when there are only ingredients that are never a source of gluten.

Even when there is a "gluten free" statement on the label, there can never be an absolute guarantee that cross contact did not occur at some stage in the processing of some ingredient. Any company that claims to guarantee gluten-free status is lying. Any company that states that they "cannot guarantee" no cross contact is just being honest.

jasonD2 Experienced
jasonD2
Posted
  • Author

how much longer do i have to wait though? theres no diversity in my diet and i have various nutritional deficiencies as a result.

Also I think the companies that are certified gluten-free can be trusted...they have dedicated facilities and batch test

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I'm one of those who can not do the oats. I've tried several times and it does not work. I figure oats are for horses and cows but not me.

Roda Rising Star
Roda
Posted

The one time I tried gluten free oats I reacted pretty strongly. I have not tried them since and that was last June. I doubt I will ever try them again.

gfbatali Newbie
gfbatali
Posted

You better stay away from oats because you cannnot guarantee that they are not cross contaminated with other grains even if labled gluten free and they contains similer protin as wheat

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,085
    • Most Online (within 30 mins)
      7,748
    M A Humphries
    Newest Member
    M A Humphries
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.