Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Ideas On Stabilizing The Weight Once Going Gluten Free?


T.H.

Recommended Posts

T.H. Community Regular

I'm getting to the point where I need to stop losing weight, but so far I haven't managed to do it. :-(

I gained about 40 pounds in the 6 months before I was diagnosed celiac sprue. In the 7 months since I was diagnosed, I've lost about 55 pounds. I'm now 1 pound away from my 'as low as I wanna get' weight, and the weight loss doesn't seem to be stopping. Slowing down, but not stopping

Does anyone have any ideas on how to stabilize? Is it just as simple as 'eat more,' or something else? I have a very limited diet, and I'm reacting to foods all over the place so that sometimes makes it hard, but really...does this ever end? Argh!

It was nice at first - I don't mind the weight loss down to a good size - but now it's getting into the too thin stage. Any ideas??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

What does your doctor say? I would make sure you don't have any additional issues. If your body is normal, then it does come down on eating more calorie rich foods. Perhaps more protein? I've lost weight since going gluten free because I eat so much healthier now, but I have no trouble maintaining because I eat a lot of food (I'm training for a half marathon, so I tend to eat more). So perhaps exploring more foods you can have, and seeing what are have more calories. I don't know what your limitations are, so I can't make any suggestions. Good luck.

T.H. Community Regular

So far, the doc isn't sure. I've been fortunate to have a doctor who tests the ever-loving doo doo out of his patients, from food allergies to other auto-immune diseases - and so far, I seem to simply have celiac plus reactions to other food. If I stay away from the other foods, I seem to do okay, but the doc and dietician have me trying to find new foods, as I get almost no calcium (and a couple other things) in the diet I can currently have, and I haven't been able to find any vitamins I can safely take.

Oh, my current diet is this: buffalo meat, avocado, sweet potato, carrot, quinoa, amaranth, sea weed, and sea salt.

So I can get high calorie stuff, and a good amount of protein, I just have to cook a lot to get it.

Sigh. I suppose I keep hoping that someone knows a 'magic way' to stabilize the weight, and it probably doesn't exist. More practical to eat more calories and pause on trying new foods.

Thank you for the reply, and the good luck!

Shauna

What does your doctor say? I would make sure you don't have any additional issues. If your body is normal, then it does come down on eating more calorie rich foods. Perhaps more protein? I've lost weight since going gluten free because I eat so much healthier now, but I have no trouble maintaining because I eat a lot of food (I'm training for a half marathon, so I tend to eat more). So perhaps exploring more foods you can have, and seeing what are have more calories. I don't know what your limitations are, so I can't make any suggestions. Good luck.

burdee Enthusiast

Your very limited diet may deter you from 'stabilizing' your weight. Don't assume your symptoms are always 'food reactions' and keep limiting what you eat. If you suspect other food allergies, get a blood test to confirm your suspicions. Also consider that your reaction symptoms may actually be caused by intestinal infections from pathogenic or opportunistic bacteria, parasites or even candida. A stool test (DNA Microbial) can diagnose bad gut bugs, which may cause your 'reaction' symptoms.

SUE

I'm getting to the point where I need to stop losing weight, but so far I haven't managed to do it. :-(

I gained about 40 pounds in the 6 months before I was diagnosed celiac sprue. In the 7 months since I was diagnosed, I've lost about 55 pounds. I'm now 1 pound away from my 'as low as I wanna get' weight, and the weight loss doesn't seem to be stopping. Slowing down, but not stopping

Does anyone have any ideas on how to stabilize? Is it just as simple as 'eat more,' or something else? I have a very limited diet, and I'm reacting to foods all over the place so that sometimes makes it hard, but really...does this ever end? Argh!

It was nice at first - I don't mind the weight loss down to a good size - but now it's getting into the too thin stage. Any ideas??

T.H. Community Regular

Thanks for the reply, sue! :-)

Yeah, I'm kind of worried that the limited diet might deter the stabilizing, too. I know I could eat 'more' of my food to try and get more calories, but I just don't know if that will do it or not, or if there might be something else, you know? I suppose I kind of hope there's something else, since eating more of the foods is really a chore to force myself to eat.

I truly am very lucky with my doc - he did a HUGE series of blood tests for food allergies (and a lot of other things, as well), so we figured those ones out fairly well.

Actually, I'm curious if you know what reactions parasites/bacteria/yeast might cause? I DID have an H.Pylori infection, but that was taken care of and confirmed that the infection is gone. I would assume gut symptoms would be caused by these, and possibly full-body 'blech' kind of things? One of the reasons I haven't looked in that direction is that my own symptoms, while sometimes involving gut, more often involve my lips, tongue and/or throat swelling up on me.

I have this whole annoying two day process to try a new food to try and minimize the risk, sigh.

if you have any information on what kinds of things yeast and parasites might cause, I would love to find out about it! Again, thanks!

Shauna

Your very limited diet may deter you from 'stabilizing' your weight. Don't assume your symptoms are always 'food reactions' and keep limiting what you eat. If you suspect other food allergies, get a blood test to confirm your suspicions. Also consider that your reaction symptoms may actually be caused by intestinal infections from pathogenic or opportunistic bacteria, parasites or even candida. A stool test (DNA Microbial) can diagnose bad gut bugs, which may cause your 'reaction' symptoms.

SUE

lovegrov Collaborator

Your limited diet certainly isn't helping things. Also, do you lift weights? I know that can burn calories but muscle weighs more than fat.

richard

T.H. Community Regular

Oh, no I hadn't even considered lifting weights. Might be a good idea there, thanks.

Your limited diet certainly isn't helping things. Also, do you lift weights? I know that can burn calories but muscle weighs more than fat.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Switch2GF Rookie

Unless you have some other serious unknown problem, your body is just like anyone else's when it comes to weight. Calorie intake vs. calories burned.

Your current diet looks really healthy and depending on your portions, you could be at a calorie deficit.

It seems a lot of people lose weight when going gluten free, 'cause they don't know what to eat and consciously watch everything they are eating carefully. Once I figured out exactly what I could eat again, I kept my weight or gained some.

I'd try tracking your calories for a week and see where you really are. Maybe add in some brown rice to get some more carbs.

T.H. Community Regular

Thanks. :-) I have to do a foodlog right now anyway, so tracking the calories sounds like a good idea, and not too much extra work, compared to what i have to do. Can't do the rice, though, sadly. Makes my throat swell up at the moment. :-(

Unless you have some other serious unknown problem, your body is just like anyone else's when it comes to weight. Calorie intake vs. calories burned.

Your current diet looks really healthy and depending on your portions, you could be at a calorie deficit.

It seems a lot of people lose weight when going gluten free, 'cause they don't know what to eat and consciously watch everything they are eating carefully. Once I figured out exactly what I could eat again, I kept my weight or gained some.

I'd try tracking your calories for a week and see where you really are. Maybe add in some brown rice to get some more carbs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.