Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Ideas On Stabilizing The Weight Once Going Gluten Free?


T.H.

Recommended Posts

T.H. Community Regular

I'm getting to the point where I need to stop losing weight, but so far I haven't managed to do it. :-(

I gained about 40 pounds in the 6 months before I was diagnosed celiac sprue. In the 7 months since I was diagnosed, I've lost about 55 pounds. I'm now 1 pound away from my 'as low as I wanna get' weight, and the weight loss doesn't seem to be stopping. Slowing down, but not stopping

Does anyone have any ideas on how to stabilize? Is it just as simple as 'eat more,' or something else? I have a very limited diet, and I'm reacting to foods all over the place so that sometimes makes it hard, but really...does this ever end? Argh!

It was nice at first - I don't mind the weight loss down to a good size - but now it's getting into the too thin stage. Any ideas??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

What does your doctor say? I would make sure you don't have any additional issues. If your body is normal, then it does come down on eating more calorie rich foods. Perhaps more protein? I've lost weight since going gluten free because I eat so much healthier now, but I have no trouble maintaining because I eat a lot of food (I'm training for a half marathon, so I tend to eat more). So perhaps exploring more foods you can have, and seeing what are have more calories. I don't know what your limitations are, so I can't make any suggestions. Good luck.

T.H. Community Regular

So far, the doc isn't sure. I've been fortunate to have a doctor who tests the ever-loving doo doo out of his patients, from food allergies to other auto-immune diseases - and so far, I seem to simply have celiac plus reactions to other food. If I stay away from the other foods, I seem to do okay, but the doc and dietician have me trying to find new foods, as I get almost no calcium (and a couple other things) in the diet I can currently have, and I haven't been able to find any vitamins I can safely take.

Oh, my current diet is this: buffalo meat, avocado, sweet potato, carrot, quinoa, amaranth, sea weed, and sea salt.

So I can get high calorie stuff, and a good amount of protein, I just have to cook a lot to get it.

Sigh. I suppose I keep hoping that someone knows a 'magic way' to stabilize the weight, and it probably doesn't exist. More practical to eat more calories and pause on trying new foods.

Thank you for the reply, and the good luck!

Shauna

What does your doctor say? I would make sure you don't have any additional issues. If your body is normal, then it does come down on eating more calorie rich foods. Perhaps more protein? I've lost weight since going gluten free because I eat so much healthier now, but I have no trouble maintaining because I eat a lot of food (I'm training for a half marathon, so I tend to eat more). So perhaps exploring more foods you can have, and seeing what are have more calories. I don't know what your limitations are, so I can't make any suggestions. Good luck.

burdee Enthusiast

Your very limited diet may deter you from 'stabilizing' your weight. Don't assume your symptoms are always 'food reactions' and keep limiting what you eat. If you suspect other food allergies, get a blood test to confirm your suspicions. Also consider that your reaction symptoms may actually be caused by intestinal infections from pathogenic or opportunistic bacteria, parasites or even candida. A stool test (DNA Microbial) can diagnose bad gut bugs, which may cause your 'reaction' symptoms.

SUE

I'm getting to the point where I need to stop losing weight, but so far I haven't managed to do it. :-(

I gained about 40 pounds in the 6 months before I was diagnosed celiac sprue. In the 7 months since I was diagnosed, I've lost about 55 pounds. I'm now 1 pound away from my 'as low as I wanna get' weight, and the weight loss doesn't seem to be stopping. Slowing down, but not stopping

Does anyone have any ideas on how to stabilize? Is it just as simple as 'eat more,' or something else? I have a very limited diet, and I'm reacting to foods all over the place so that sometimes makes it hard, but really...does this ever end? Argh!

It was nice at first - I don't mind the weight loss down to a good size - but now it's getting into the too thin stage. Any ideas??

T.H. Community Regular

Thanks for the reply, sue! :-)

Yeah, I'm kind of worried that the limited diet might deter the stabilizing, too. I know I could eat 'more' of my food to try and get more calories, but I just don't know if that will do it or not, or if there might be something else, you know? I suppose I kind of hope there's something else, since eating more of the foods is really a chore to force myself to eat.

I truly am very lucky with my doc - he did a HUGE series of blood tests for food allergies (and a lot of other things, as well), so we figured those ones out fairly well.

Actually, I'm curious if you know what reactions parasites/bacteria/yeast might cause? I DID have an H.Pylori infection, but that was taken care of and confirmed that the infection is gone. I would assume gut symptoms would be caused by these, and possibly full-body 'blech' kind of things? One of the reasons I haven't looked in that direction is that my own symptoms, while sometimes involving gut, more often involve my lips, tongue and/or throat swelling up on me.

I have this whole annoying two day process to try a new food to try and minimize the risk, sigh.

if you have any information on what kinds of things yeast and parasites might cause, I would love to find out about it! Again, thanks!

Shauna

Your very limited diet may deter you from 'stabilizing' your weight. Don't assume your symptoms are always 'food reactions' and keep limiting what you eat. If you suspect other food allergies, get a blood test to confirm your suspicions. Also consider that your reaction symptoms may actually be caused by intestinal infections from pathogenic or opportunistic bacteria, parasites or even candida. A stool test (DNA Microbial) can diagnose bad gut bugs, which may cause your 'reaction' symptoms.

SUE

lovegrov Collaborator

Your limited diet certainly isn't helping things. Also, do you lift weights? I know that can burn calories but muscle weighs more than fat.

richard

T.H. Community Regular

Oh, no I hadn't even considered lifting weights. Might be a good idea there, thanks.

Your limited diet certainly isn't helping things. Also, do you lift weights? I know that can burn calories but muscle weighs more than fat.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Switch2GF Rookie

Unless you have some other serious unknown problem, your body is just like anyone else's when it comes to weight. Calorie intake vs. calories burned.

Your current diet looks really healthy and depending on your portions, you could be at a calorie deficit.

It seems a lot of people lose weight when going gluten free, 'cause they don't know what to eat and consciously watch everything they are eating carefully. Once I figured out exactly what I could eat again, I kept my weight or gained some.

I'd try tracking your calories for a week and see where you really are. Maybe add in some brown rice to get some more carbs.

T.H. Community Regular

Thanks. :-) I have to do a foodlog right now anyway, so tracking the calories sounds like a good idea, and not too much extra work, compared to what i have to do. Can't do the rice, though, sadly. Makes my throat swell up at the moment. :-(

Unless you have some other serious unknown problem, your body is just like anyone else's when it comes to weight. Calorie intake vs. calories burned.

Your current diet looks really healthy and depending on your portions, you could be at a calorie deficit.

It seems a lot of people lose weight when going gluten free, 'cause they don't know what to eat and consciously watch everything they are eating carefully. Once I figured out exactly what I could eat again, I kept my weight or gained some.

I'd try tracking your calories for a week and see where you really are. Maybe add in some brown rice to get some more carbs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.