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Newly Diagnosed & Living Gluten Free


PinkFashionista

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PinkFashionista Newbie

I'm a 20something who has been newly diagnosed with Celiac Disease... I'm just now learning how to live gluten free.

For as LONG as I can remember, I've had intestinal issues. NOTHING helped control it. Not even going on a completely lactose free diet for 2 years. Finally, I suspected it may be gluten... I went gluten free for a few months and ALMOST IMMEDIATELY felt better. It's still a long and winding road, filled with lots of learning experiences. I'm just now phasing out my gluten filled makeup products and hair products... as well as laundry detergent, dish detergent, toothpaste, etc. etc.

I'm lucky, though, that my parents and my boyfriend are all willing to go gluten free with me... so, I don't have to worry so much about cross contamination! Even when we go out to eat, my boyfriend always makes sure to get a gluten-free meal so that I can pick off his plate with no worries.

I am so glad I found this forum and I've learned so much!


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VReitano Newbie

I'm a 20something newly diagnosed celiac as well, and I'm also a journalist. I just wrote this article about the additives that were hurting me and that might be hurting my friends as well. I'd love any input you might have, or really any input any college student on this forum might have. I'm trying to get the word out and help other students in our situation who don't realize that they are in fact celiacs. Here's the article, feel free to contact me via victoria at victoriareitano dot com. Thanks so much! AND best of luck being gluten-free, I'm on my first week and already see some differences, it's wonderful! Open Original Shared Link

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    • Aretaeus Cappadocia
      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour 1 cup sugar 1 ½ teaspoon baking powder 1 teaspoon baking soda 3/4 teaspoon salt 1/4 teaspoon ground nutmeg 6 tablespoons cold butter 3 large eggs, room temperature 3/8 cup buttermilk (1 tsp white vinegar + 3/8 cup milk) 2 teaspoon vanilla extract 1 ½ cup finely chopped ripe pears (1-2 med/large pears. You could peel them but I don't) Directions (optional) cut butter into pats, place on saucer in the refrigerator while prepping other ingredients In large bowl, combine flour, sugar, baking powder, baking soda, salt and nutmeg. (I use a whisk to mix) Cut in butter until mixture resembles coarse crumbs. (I use pastry blender) Combine eggs, buttermilk and vanilla (I use same whisk); stir into flour mixture just until moistened. (I use a mixing spoon) Fold in pears. (mixing spoon) Spoon into 2 greased 5 x 8 inch loaf pans Bake at 350° for 35-40 minutes or until toothpick inserted in center comes out clean. Cool for 10 minutes before removing from pans on to wire rack. Allow to cool completely. Not sure how long you can keep this at room temperature because it gets eaten quickly
    • knitty kitty
      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
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