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Newly Diagnosed & Living Gluten Free


PinkFashionista

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PinkFashionista Newbie

I'm a 20something who has been newly diagnosed with Celiac Disease... I'm just now learning how to live gluten free.

For as LONG as I can remember, I've had intestinal issues. NOTHING helped control it. Not even going on a completely lactose free diet for 2 years. Finally, I suspected it may be gluten... I went gluten free for a few months and ALMOST IMMEDIATELY felt better. It's still a long and winding road, filled with lots of learning experiences. I'm just now phasing out my gluten filled makeup products and hair products... as well as laundry detergent, dish detergent, toothpaste, etc. etc.

I'm lucky, though, that my parents and my boyfriend are all willing to go gluten free with me... so, I don't have to worry so much about cross contamination! Even when we go out to eat, my boyfriend always makes sure to get a gluten-free meal so that I can pick off his plate with no worries.

I am so glad I found this forum and I've learned so much!


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VReitano Newbie

I'm a 20something newly diagnosed celiac as well, and I'm also a journalist. I just wrote this article about the additives that were hurting me and that might be hurting my friends as well. I'd love any input you might have, or really any input any college student on this forum might have. I'm trying to get the word out and help other students in our situation who don't realize that they are in fact celiacs. Here's the article, feel free to contact me via victoria at victoriareitano dot com. Thanks so much! AND best of luck being gluten-free, I'm on my first week and already see some differences, it's wonderful! Open Original Shared Link

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    • trents
      But you haven't yet answered my question about how sensitive to you are to minor amounts of gluten.
    • Healthierbody2026
      @trents my apologies my doctor has been saying that I’m pre-diabetic for years now sorry I didn’t include that information 
    • trents
      @Healthierbody2026, as I said above, there is not a separate forum within this community for NCGS people and I do not know of one anywhere else. You sound uncertain whether your physician ordered blood tests for celiac disease or for diabetes. Do you have access online to your medical records and test results?
    • Healthierbody2026
      @trents first response: can you direct me to that particular section of this site for NCGS or and are there any groups I can join for people with NCGS? second response: I can’t really remember due to it was some or a few years back but I believe she did blood tests or work on me or I think she did a glucose test on me.
    • trents
      There is not a distinct section in this particular online resource and community devoted to those with NCGS. And I cannot say with any certainty whether or not such a thing exists elsewhere online. But your question makes me think celiac.com might entertain the idea of starting a forum within our community for that purpose. I should explain that celiac.com is divided into a number of separate forums, each devoted to a different topic or concern within the gluten intolerant/gluten sensitive population. Having said that, the main is on those with celiac disease (or their support systems) rather than those with NCGS because it has more serious long-term health implications. I see. Can you elaborate on how you were tested to arrive at this diagnosis?
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