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Newly Diagnosed & Living Gluten Free


PinkFashionista

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PinkFashionista Newbie

I'm a 20something who has been newly diagnosed with Celiac Disease... I'm just now learning how to live gluten free.

For as LONG as I can remember, I've had intestinal issues. NOTHING helped control it. Not even going on a completely lactose free diet for 2 years. Finally, I suspected it may be gluten... I went gluten free for a few months and ALMOST IMMEDIATELY felt better. It's still a long and winding road, filled with lots of learning experiences. I'm just now phasing out my gluten filled makeup products and hair products... as well as laundry detergent, dish detergent, toothpaste, etc. etc.

I'm lucky, though, that my parents and my boyfriend are all willing to go gluten free with me... so, I don't have to worry so much about cross contamination! Even when we go out to eat, my boyfriend always makes sure to get a gluten-free meal so that I can pick off his plate with no worries.

I am so glad I found this forum and I've learned so much!


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VReitano Newbie

I'm a 20something newly diagnosed celiac as well, and I'm also a journalist. I just wrote this article about the additives that were hurting me and that might be hurting my friends as well. I'd love any input you might have, or really any input any college student on this forum might have. I'm trying to get the word out and help other students in our situation who don't realize that they are in fact celiacs. Here's the article, feel free to contact me via victoria at victoriareitano dot com. Thanks so much! AND best of luck being gluten-free, I'm on my first week and already see some differences, it's wonderful! Open Original Shared Link

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    • cristiana
      Thank you @knitty kitty x
    • trents
      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks.  When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did before going gluten free. They have lost all tolerance to the poison they had when consuming wheat products regularly. That is certainly the case with me. A couple of years ago I accidentally consumed a wheat biscuit my wife had made thinking it was a gluten free one and it made me violently ill. So, I mention that as I don't know if your son has started the gluten challenge yet.
    • melthebell
      Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say.    But I welcome advice from members here who have done successful gluten challenges. I know they are not always successful.    I have also read I should monitor his growth. Is that really a concern for 10 weeks of gluten consumption? He is growing and has always followed his curve but he’s no basketball player at 20-25th centile. 
    • trents
    • trents
      @melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once realized.
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