Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Psychological Impact Of Celiac


Don in Dallas

Recommended Posts

Don in Dallas Rookie

Good Day!! I am in my 4th week of Gluten Free and things are finally beginning to improve. Still have the D and nausea but not as bad as in the beginning. I assume the tummy will get back to normal in time. What I wrestled with initially that I am beginning to give less energy to now, was the fact that bread, pasteries, pizza, etc. were off limits. I loved them all (and my weight 265 lbs showed it). Now, since the 1st of the year (before diagnosis) I have lost 25 lbs. and wearing clothes I haven't worn in years. Now that really makes me feel good.

I also think I am lactose intollerent as well. Had a bowl of gluten free cereal last week and was in the bathroom for hours. I have been reading the forums and find this is not unusual at all. There is a huge learning curve with this illness that I never thought about in the beginning. I do think however, that a gluten free life style, is going to have many more positives than negatives, now that I have gotten past the initial shock of the change in food habits.

I want to thank all of you who participate in this forum. It has been a life saver to read stories from others who have "been there, done that". It is making the journey much easier. I hope in time I can help each of you in someway as well......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



freeatlast Collaborator

Don, that is a very kind thing to say. I, too, wish I had more time to post recipes, etc., and I will when I'm finished with my master's. It's always healthy to give back. I find it keeps me on the right track :) Until then, take care of you and keep up the good work. I know you will since you're already seeing the benefits.

sandsurfgirl Collaborator

Welcome and good job on the weight loss!

I'm on week 6 now of the diet and just starting to feel more "normal." I still have digestive issues but not so bad.

I'm on a pretty simple diet. Most of us find in the beiginning we need to cut diary, soy, some people cut nightshades like tomatoes and potatoes and bell peppers. I also don't eat any gluten free substitutes right now because I can't digest them either. Xanthan gum and tapioca starch are not agreeing with me at the moment.

Most people seem to be able to add back in many if not all the foods they had to cut, even if it's in moderation. It will just depend on how you heal I guess.

Arrowhead Mills has a gluten free baking mix with no tapioca or xanthan gum that I make pancakes and a bread that has the texture of cornbread out of. You do need to make sure you're getting enough carbs to have that energy sustained all day long.

Good luck and keep coming back for support. I can't live without this board right now.

Lynayah Enthusiast

Good Day!! I am in my 4th week of Gluten Free and things are finally beginning to improve. Still have the D and nausea but not as bad as in the beginning. I assume the tummy will get back to normal in time. What I wrestled with initially that I am beginning to give less energy to now, was the fact that bread, pasteries, pizza, etc. were off limits. I loved them all (and my weight 265 lbs showed it). Now, since the 1st of the year (before diagnosis) I have lost 25 lbs. and wearing clothes I haven't worn in years. Now that really makes me feel good.

I also think I am lactose intollerent as well. Had a bowl of gluten free cereal last week and was in the bathroom for hours. I have been reading the forums and find this is not unusual at all. There is a huge learning curve with this illness that I never thought about in the beginning. I do think however, that a gluten free life style, is going to have many more positives than negatives, now that I have gotten past the initial shock of the change in food habits.

I want to thank all of you who participate in this forum. It has been a life saver to read stories from others who have "been there, done that". It is making the journey much easier. I hope in time I can help each of you in someway as well......

What a great attitude. As they say, "Attitude is everything." It is going to be great to have you as part of the forum. Welcome.

VioletBlue Contributor

For me in the beginning I had to take it one day at a time. I could not let myself think "I can never eat bread again." Instead it was "I'm not having bread today." He he, there are still sometimes days like that four years later. It's a coping mechanism. Get through today and worry about tomorrow tomorrow. Don't beat yourself over the head with "I can never".

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      27

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Kathleen Mostek replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      27

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,488
    • Most Online (within 30 mins)
      7,748

    vicwit1
    Newest Member
    vicwit1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      It's much easier to correct low Vitamin D if you take high doses.  It's safe and health improvement is much faster.  This is how I corrected my severely low Vitamin D level.  I had no ill effects correcting my deficiency this way. High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee Arthroplasty https://pubmed.ncbi.nlm.nih.gov/34737019/ Therapeutic high-dose vitamin D for vitamin D-deficient severe COVID-19 disease: randomized, double-blind, placebo-controlled study (SHADE-S) https://pubmed.ncbi.nlm.nih.gov/38291897/
    • Kathleen Mostek
      I have had low Vit D for years before my Celiac diagnosis. I recommend Nature Made, it’s everywhere. GET THE TABLET, not the oil based capsule. The soy oil in the capsules give me diarrhea!
    • catnapt
      ack!! seriously???  just googled all the different things I ate Milky Way: Contains barley malt and is not gluten-free. Krackel: Contains barley malt.   good grief 
    • catnapt
      oh I forgot I also had some Doritos (those are corn chips aren't they?)
    • catnapt
      I'm not yet diagnosed, seeing a GI March 4th I'm keeping a food diary and yesterday I went to play cards at a friends house and ate things I don't ordinarily eat- mainly a bunch of those mini chocolates that ppl typically give out at Halloween (hershey kisses, mr goodbar. milkway, snickers) I ate er... too many.  also had a tiny bit of some kind of creamy salad dressing on raw veggies.  I had SOO much pain last night in my feet- burning, numbness and pain in my feet and ankles, and a bit less so in my knees. Lasted for hours, kept me up half the night at the same time, the trouble with constipation that I've had ever since being put on the chlorthalidone, has started to improve but then gets worse again...and I can't figure out what is making it worse and what is helping it   it is like my entire digestive tract just shuts down.   Before finding out that I may have a renal calcium leak, I did not use fortified plant milks and did not consume dairy. Since being told to consume 1000-1200 mgs of calcium from food per day- I switched to fortified soy and almond milk and added some non fat or low fat plain yogurt (It is very hard to get that much  calcium from other sources without eating an enormous amt of food- I'm 70 and just can't eat that much. I'm already seeing my weight creep up which is disturbing)   I am seeing that ppl with celiac can have issues with dairy- what would those issues be? Did I get glutened yesterday unknowingly or does chocolate or that tiny bit of salad dressing I had have gluten in it?   My feet are fine this morning! thank goodness but the pain was excruciating last night.   I don't know what to do.  I am thinking that I should ditch the dairy  (which I never really wanted to consume in the first place) and maybe anything with calcium carbonate in it (that is very constipating for me) not only has my GI system slowed down, my stools are strange-  round and often float. This so so different from what used to be my normal (on the Bristol stool score it was in the ideal range) I will go several times a day - these meatball sized round floaters I don't know if I'm still dealing with the after affects of the chlorthalidone (which has a very long half life- my last dose of that was Feb 9th or 11th - I'll have to look that up but I think it's been almost a week.   I just want all this pain and discomfort to stop. but I don't know where it's coming from. those 12 days on gluten have just wrecked my whole system it seems.   any ideas what I might do to help things get back to normal?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.