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Question About Gluten Enzymes And Gluten Intolerance.

rueyn

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rueyn Apprentice
rueyn
Posted

I tested negative (blood and gene) for Celiac, but I definitely have gluten intolerance. I've been gluten free for a year now and am doing 100% better. I've been seeing and hearing about gluten enzymes, and I know they can't be used in the case of true Celiac patients, but has anyone ever used them as with non-Celiac gluten intolerance? I don't get stomach aches when I eat gluten; my symptoms are things like brain fog, the need to sleep, et cetera. I'm not convinced an enzyme would make a difference with those kind of symptoms...unless the enzymes got rid of all the gluten before it could be absorbed or something like that?

Any personal experiences would be appreciated.

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Lynayah Enthusiast
Lynayah
Posted

I tested negative (blood and gene) for Celiac, but I definitely have gluten intolerance. I've been gluten free for a year now and am doing 100% better. I've been seeing and hearing about gluten enzymes, and I know they can't be used in the case of true Celiac patients, but has anyone ever used them as with non-Celiac gluten intolerance? I don't get stomach aches when I eat gluten; my symptoms are things like brain fog, the need to sleep, et cetera. I'm not convinced an enzyme would make a difference with those kind of symptoms...unless the enzymes got rid of all the gluten before it could be absorbed or something like that?

Any personal experiences would be appreciated.

I found this article . . . is this the enzyme you are talking about?

Open Original Shared Link

rueyn Apprentice
rueyn
Posted
  • Author

I found this article . . . is this the enzyme you are talking about?

Open Original Shared Link

Yes, I'm specifically talking about GlutenEase and/or Peptizyde :)

RiceGuy Collaborator
RiceGuy
Posted

I actually tried one such product (not the ones specifically mentioned). Ironically, even though it claims to be gluten-free, it apparently has an enzyme derived from barley, and I had a gluten reaction to it. Hopefully the ones you're looking at don't have this.

Lynayah Enthusiast
Lynayah
Posted

I actually tried one such product (not the ones specifically mentioned). Ironically, even though it claims to be gluten-free, it apparently has an enzyme derived from barley, and I had a gluten reaction to it. Hopefully the ones you're looking at don't have this.

Me, too. We had a few different digestive enzymes in the house -- all of them appeared to be gluten-free, but when I called the various companies and spoke with them, they were not gluten-free.

I have used Digest Gold and GlutenEase with no problem. My jury is still out as to whether or not GlutenEase helps, but I think it very well may. At least it can't hurt! I use it to help combat cross-contamination only and not as something that might allow me to eat gluten -- that would be like death waiting to happen.

rueyn Apprentice
rueyn
Posted
  • Author

Me, too. We had a few different digestive enzymes in the house -- all of them appeared to be gluten-free, but when I called the various companies and spoke with them, they were not gluten-free.

I have used Digest Gold and GlutenEase with no problem. My jury is still out as to whether or not GlutenEase helps, but I think it very well may. At least it can't hurt! I use it to help combat cross-contamination only and not as something that might allow me to eat gluten -- that would be like death waiting to happen.

Do you know if it's helped in a specific case of cross-contamination? If so, do you normally just get stomachache-type symptoms with CC or do you also get neurological? Did it just "ease" your symptoms, or did it keep you from getting sick all together?

Lynayah Enthusiast
Lynayah
Posted

Do you know if it's helped in a specific case of cross-contamination? If so, do you normally just get stomachache-type symptoms with CC or do you also get neurological? Did it just "ease" your symptoms, or did it keep you from getting sick all together?

Ease. I get both neurological as well as stomach reactions.

I get numbness like crazy -- hands in particular, but also legs if it is really bad and now, shoulders and back of neck.

I also get stabbing pains in my hips and kidney area along with the usual bloating, body aches, etc.

Sometimes the pain is constant; other times it comes in waves -- like a few minutes on; a few minutes off -- like labor pains.

The pain might be best be described as having an abcessed tooth, but in a muscle or on my skin (yes, my skin hurts) instead of a tooth.

Sleeping can be particularly painful. Hips - ouch!

I'm still new to the product. Time will tell if my assumption that it helps is correct. Right now, it seems as though when I know I've been cc'd (bowel leakage is usually the first sign), it helps ease the symptoms if I take it right away.

The problem is, I just don't know for sure. I'm still new to my diagnosis. Sometimes the symptoms are intense, other times they are not-so-intense, but the not-so-intense reactions could also be from my being sensitive to other foods.

There is also the issue of my body absorbing enough Vitamin D.

Nothing is easy!

That said, I do have to say that when I take GlutenEase upon the first signs of being glutened, I seem to not get as intensely ill as if I had not taken it. It is not a cure (how I wish it were), but rather a cushion that helps me though the whole thing. My body aches are not as intense (even though I still hurt), and loss of bowel control not as intense. I also think that my bloating may subside a little sooner.

As I said, my jury is still out. In the meantime, it is comforting to carry GlutenEase with me, along with Digest Gold.

Gawd, how I wish they weren't so darn expensive.

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rueyn Apprentice
rueyn
Posted
  • Author

Ease. I get both neurological as well as stomach reactions.

I get numbness like crazy -- hands in particular, but also legs if it is really bad and now, shoulders and back of neck.

I also get stabbing pains in my hips and kidney area along with the usual bloating, body aches, etc.

Sometimes the pain is constant; other times it comes in waves -- like a few minutes on; a few minutes off -- like labor pains.

The pain might be best be described as having an abcessed tooth, but in a muscle or on my skin (yes, my skin hurts) instead of a tooth.

Sleeping can be particularly painful. Hips - ouch!

I'm still new to the product. Time will tell if my assumption that it helps is correct. Right now, it seems as though when I know I've been cc'd (bowel leakage is usually the first sign), it helps ease the symptoms if I take it right away.

The problem is, I just don't know for sure. I'm still new to my diagnosis. Sometimes the symptoms are intense, other times they are not-so-intense, but the not-so-intense reactions could also be from my being sensitive to other foods.

There is also the issue of my body absorbing enough Vitamin D.

Nothing is easy!

That said, I do have to say that when I take GlutenEase upon the first signs of being glutened, I seem to not get as intensely ill as if I had not taken it. It is not a cure (how I wish it were), but rather a cushion that helps me though the whole thing. My body aches are not as intense (even though I still hurt), and loss of bowel control not as intense. I also think that my bloating may subside a little sooner.

As I said, my jury is still out. In the meantime, it is comforting to carry GlutenEase with me, along with Digest Gold.

Gawd, how I wish they weren't so darn expensive.

Thanks so much for taking the time to let me know how it works for you! It sounds like you and I have similar reactions to gluten, and I'd been thinking since I "only" have gluten intolerance I could use it to eat gluten once in awhile, to help side-step the intolerance, but it doesn't sound like it's worth it (I was thinking of it as Lactaid...doesn't sound like that's exactly how it works).

When I eat gluten I am sick for two weeks - body aches, brain fog, bloating, et cetera. Probably no magic pill to help that =)

Lynayah Enthusiast
Lynayah
Posted

Thanks so much for taking the time to let me know how it works for you! It sounds like you and I have similar reactions to gluten, and I'd been thinking since I "only" have gluten intolerance I could use it to eat gluten once in awhile, to help side-step the intolerance, but it doesn't sound like it's worth it (I was thinking of it as Lactaid...doesn't sound like that's exactly how it works).

When I eat gluten I am sick for two weeks - body aches, brain fog, bloating, et cetera. Probably no magic pill to help that =)

You are right. From what I have been told, anyone with gluten-intolerance should absolutely not use it to side-step gluten.

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