Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Baby With Symptoms

floweringdawn

Recommended Posts

floweringdawn Newbie
floweringdawn
Posted

Hi, just a few questions to all of you smart informed parents out there :) I was diagnosed with celiac in 1983, when I was 11 months old. I now have 3 children, one 5 one 3 and a 6 month old. My two older children both have been tested, with negative results. I never had any concern, but my pediatrician tested due to my having the disease. My question is about my baby, I recently had surgery and left my kids in the care of family. He was fed gluten containing crackers and baby food, this was about 6 weeks ago. He came home with a rash all over his face, and head, and EXTREMELY fussy. I just assumed it was from him starting on formula, because he was breast-fed exclusively before my surgery. So I started breastfeeding him again, and he got better, rash cleared up, and he was again a happy baby. 3 weeks ago, I started giving him biter biscuits (gluten containing) and here is this rash again and fussiness is back. So is there anything I should do now to get a diagnoses for him? I know any testing under age 5 is inconclusive, but I don't want him to suffer if he is hurting from this...I sure know how much it hurts! His Dr says its eczema, and gave us some steroids, he SCREAMS his head off when I put it on like its burning. He is constantly scratching his head even to a point that its bleeding in places now. GRRR! Any ideas where I should go from here?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenny-ann Rookie
jenny-ann
Posted

I think the antibody testing will be inconclusive for multiple reasons - he doesn't get enough gluten and he is so young.

With his reactions (eczema included!) I would choose to do the DNA testing. If he has the genetic coding and such obvious reactions to gluten I would label him celiac and keep him gluten free.

HTH,

Jenn

elle's mom Contributor
elle's mom
Posted

It's so hard to see our little ones suffering. For this reason, I put all my kids on a gluten free diet regardless that only one of them is actually diagnosed. Two of the other ones have had symptoms and it sounds like so does your little guy. With such an intense reaction, I would at least try the blood test, you never know, it may be positive. But in any case I would just try the gluten free diet anyway. This is me, I have no desire for an official diagnosis. I know others have made other choices. It boils down to a personal decision. The genetic test would be interesting to know (if he has the same as you) but really it would neither diagnose him (although it could be a piece to the puzzle along with dietary response) nor rule him out for celiac........there are lots of gluten intolerants who do not have the DQ2 &/or DQ8 genes. Good luck to you, let us know what happens.

nmlove Contributor
nmlove
Posted

Just a thought, not discounting gluten reaction but don't the biter biscuits have more than just gluten that he may not have had before? And therefore could be reacting to, aside from the gluten. And another thought and may not be applicable. If you are also dairy and/or soy free and he went on formula he could react to that (and still be reacting) as it can take up to a month to clear his body.

mommida Enthusiast
mommida
Posted

It sounds like your child might have some results from allergy testing. There is a skin reaction for the scratch test or the delayed reaction test were the food sources are taped to the back.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.