Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Info On T3 For Hypothyroidism


kimis

Recommended Posts

kimis Collaborator

I just got a scrip for Cytomel and I don't know if I should spring for the brand. I don't mind spending extra if the brand is really better. Also, if you have any inspirational stories about how much better you felt after adding t3....I would love to hear them!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

I just got a scrip for Cytomel and I don't know if I should spring for the brand. I don't mind spending extra if the brand is really better. Also, if you have any inspirational stories about how much better you felt after adding t3....I would love to hear them!!!!!!!

I've been taking 5 mcg of cytomel twice a day since around 2007 in addition to my levothyroxine(I'm currently taking 112 mcg/day). I couldn't believe the difference it made for me. There is a generic form made by paddock labs. I checked when my insurance wanted me to switch. I believe both brands are gluten free and I take the generic without any problems. Of course I have not checked with them in awhile but all you have to do is call the company to reverify. My endocrinologist put me on it because, despite adequate t4 supplementation, my free T3 was still on the low side. Since adding it I tend to feel better with a slightly lower TSH and slightly elevated free T3. However, it is a very individual thing and your doctor and you need to find your balance

Gemini Experienced

I've been taking 5 mcg of cytomel twice a day since around 2007 in addition to my levothyroxine(I'm currently taking 112 mcg/day). I couldn't believe the difference it made for me. There is a generic form made by paddock labs. I checked when my insurance wanted me to switch. I believe both brands are gluten free and I take the generic without any problems. Of course I have not checked with them in awhile but all you have to do is call the company to reverify. My endocrinologist put me on it because, despite adequate t4 supplementation, my free T3 was still on the low side. Since adding it I tend to feel better with a slightly lower TSH and slightly elevated free T3. However, it is a very individual thing and your doctor and you need to find your balance

I couldn't agree with this post more! Many people need to take T3, along with T4 and I am one of them. Like yourself, I try to keep my TSH suppressed and the T3/T4 in the upper ranges, otherwise I feel like I'm in slow motion.

Generic brands work just as well for many people. It's the same med as the brand name. You just have to make sure it's gluten-free but, generally, one doesn't work better than another. I have never used Cytomel but have used generics in the past with great success.

kimis Collaborator

I have been looking for a Dr. to prescribe t3 to me for a year. When I finally gave up one feel right in my lap. She seems great and she spent alot of time with me. I was so happy when I left her office...I felt like I was finally going to feel like me again. I filled my script right away, but something is holding me back from starting it. I think I am afraid to be let down. The possibility of feeling better is wonderful....but what if it dosen't work? Or what if I start getting heart palps and I just freak out? Why am I being such a baby about this...I want to smack myself! It's only 5mcg I will be adding to 25mcg of synthroid.....WTF is my problem?

Roda Rising Star

I have been looking for a Dr. to prescribe t3 to me for a year. When I finally gave up one feel right in my lap. She seems great and she spent alot of time with me. I was so happy when I left her office...I felt like I was finally going to feel like me again. I filled my script right away, but something is holding me back from starting it. I think I am afraid to be let down. The possibility of feeling better is wonderful....but what if it dosen't work? Or what if I start getting heart palps and I just freak out? Why am I being such a baby about this...I want to smack myself! It's only 5mcg I will be adding to 25mcg of synthroid.....WTF is my problem?

T3 has a relative short half life. My endocrinologist told me that the dose divided would keep the levels in the blood more stable. It is very fast acting, so if you have symptoms of overmedication, the dose can be tweeked very easily and quickly unlike the t4 meds which can take anywhere from 4 - 6 weeks to level.

  • 2 weeks later...
kimis Collaborator

Has anyone lost weight after adding t3?

georgie Enthusiast

I love my T3. I take 20mcg 2 x day and feel the best I have felt in ages. I started slowly with 10mcg and now just take 20mcg. I have started to lose weight that didn't budge with Armour or T4 meds. My eyes look like I have had eye lift surgery :D Years younger :) I noticed my ankles were less puffy as well yesterday... Love it , love it, love it !!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kimis Collaborator

I love my T3. I take 20mcg 2 x day and feel the best I have felt in ages. I started slowly with 10mcg and now just take 20mcg. I have started to lose weight that didn't budge with Armour or T4 meds. My eyes look like I have had eye lift surgery :D Years younger :) I noticed my ankles were less puffy as well yesterday... Love it , love it, love it !!!!

Do you take a total of 40mcg or 20mcg per day? How far apart do you space them? When it's almost time for your next dose do you feel like you need it? How long before you noticed the weight loss? How much levo do you take and is it brand? Sorry I have so many questions. How long did you try armour for? LASTLY...Where do you like your TSH to be?

Thanks

mamaw Community Regular

I'm moving to the eastern part of the state! I was on cytomel for about ten months & never felt so well in my whole life. The I went into a thyroid storm & they would not give it to me again. I now have no thyroid function as I had no choice but to swallow the ra . I was in intensive care for two weeks - almost didn't make it. Now I go into A-Fib every so often for no rhyme or reason so no cytomel.

The heart doc thinks my thyroid needs a new med besides synthroid but thyroid doc will not budge. I'm on my second thyroid doc...no one will listen.

I lost weight & went back to my normal weight. Now, I'm 20# over weight & I can't drop it.

georgie Enthusiast

Yes - a total of 40mcg. I started at 10 then 20 then 30 over weeks ... 40 seems to be the best. I have a great thyroid Dr who I can discuss all this with. I take one in the morning and can feel when it is time for the next - usually midday or early afternoon. I haven't lost 'much' weight but just look different. Not as puffy / eyes bright/ hair glossy etc. I have been gaining weight steadily for 3 years on Armour and nothing could slow it down. The T3 has stopped any weight gain and seems to be reversing it slowly. I have taken 100mcg T4 ,then was up to 4 grains of Armour at one stage... . Nothing seemed to work until I got T3 meds and lowered the T4 meds.

We don't look at my TSH. I have Pituitary low Thyroid so the TSH is meaningless. My levels of Free T4 and Free T3 are midrange to high midrange. Could be a touch higher but we are going slowly with this last change of meds.

Do you take a total of 40mcg or 20mcg per day? How far apart do you space them? When it's almost time for your next dose do you feel like you need it? How long before you noticed the weight loss? How much levo do you take and is it brand? Sorry I have so many questions. How long did you try armour for? LASTLY...Where do you like your TSH to be?

Thanks

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.