Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Strange Symptoms


flowerpower12

Recommended Posts

flowerpower12 Rookie

I've been reading about symptoms from various places online and have also found I have even MORE symptoms than I thought before..just wondering if anyone else has had these maybe?

1. Dry skin

2. Mouth sores(I have only had one,it lasted about two days and my tongue swelled up)

3.Padding on feet?(I have noticed on the heel of my right foot when I press on it it's very tingly, is this a symptom?)

4. Although I do not really want to eat, I've noticed that I get random cravings for no reason..

5. My stomach also makes very strange noises anytime I eat or drink.

These are just some symptoms I'm not sure about, I've had many others that are much more common than these but I'm wondering if these may also add to that list?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I had 2 and 4. Both are definitely symptoms. My mouth sores ended as soon as I went gluten-free. The random cravings are because your body is not getting the nutrients it needs. In fact, some malnourished people, including those with celiac, eat dirt or soft rocks because of those cravings for certain minerals. I did when I was a kid but I had no idea why.

richard

flowerpower12 Rookie

Also is left side pain a symptom?

or even kidney/liver area soreness?

newgfcali Rookie

...and I had 1, 3 and 5. There. That's the whole list.

Number 3 sounds like peripheral neuropathy, which is nerve damage. It can manifest as a numbness, tingling or even electric shock-like shooting pains. It typically attacks feet and hands, thus the "peripheral" name.

I think we probably all had number 5. The "grumblies" I call them. I used to dread being in a meeting after lunch (a whole wheat bread sandwich, of course) and my tummy would be playing a very loud tune for all to hear. Now after being gluten free for months, it's as quiet as a mouse. Quite a relief.

flowerpower12 Rookie

Yes it's quite embarrassing when your stomach decides to have its "grumblies"...

Number 3 isn't so much a numbness or pain, it just feels strange to me..

David in Seattle Explorer

Yes it's quite embarrassing when your stomach decides to have its "grumblies"...

Number 3 isn't so much a numbness or pain, it just feels strange to me..

I'm in a similar situation, recent onset (little over a year) trying to figure out if it's celiac, IBD, etc. I have #3 to an extent. The bottom of my right big toe feels as if there's a layer of padding permanently attached to it when I walk, compared to the sensations of the other digits. Just slightly numb. Oddly, it's only like this in response to pressure, if you touch it in other ways, it feels normal/like the other toes.

flowerpower12 Rookie

This sounds gross but are bloody noses a symptom?

I read that earlier..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newgfcali Rookie

Number 3 isn't so much a numbness or pain, it just feels strange to me..

Some people experience PN differently and describe it as feeling like you have a sock on your foot when you don't. You can feel your foot, but it's kinda "removed", not a direct sensation. Hard to describe -- does that make sense?

flowerpower12 Rookie

Some people experience PN differently and describe it as feeling like you have a sock on your foot when you don't. You can feel your foot, but it's kinda "removed", not a direct sensation. Hard to describe -- does that make sense?

Yes. Thank you that sort of helps me.

:)

txplowgirl Enthusiast

Hi Moemoe,

I had the belly rumbles also and bloody noses when I was a kid. I could be sound asleep and wake up with my nose bleeding, reading a book, watching tv. Didn't matter what I was doing my nose would bleed. Sometimes upwards of 3 to 4 times a day, then it might skip a few days. Always was anemic, no matter how much iron they would give me. It made me sick, no matter how much iron or in what form. After 6 months of being gluten free I am no longer anemic after 38 years.

Also had the mouth sores as well as open sores on the top of my head for about 22 years, that would not go away no matter what kind of meds or medical shampoos the dr's gave me. 6 weeks after going gluten free they were gone and they stay gone unless I seriously gluten myself.

Do what testing you need to do, but if they come back negative, which they do about half the time, go gluten free anyway and I bet you will see a world of differnce.

Good luck to you.

Vicky

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.