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Gluten Free For 8 Months, Starting To Feel Sick Again

lissm

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lissm Newbie
lissm
Posted

So I was sick for about three years before someone suggested I go gluten free and started feeling better immediately, so I've been on a strict gluten free diet. But for the last month or so I've been feeling nauseas when I eat (which I used to get before going gluten free), and also have had fairly unpredictable bowel movements and cramps occasionally since I went gluten free. Is there a chance that there is something different wrong with me, or that I have more than one problem?

How much better did you feel once you went gluten free?

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txplowgirl Enthusiast
txplowgirl
Posted

So I was sick for about three years before someone suggested I go gluten free and started feeling better immediately, so I've been on a strict gluten free diet. But for the last month or so I've been feeling nauseas when I eat (which I used to get before going gluten free), and also have had fairly unpredictable bowel movements and cramps occasionally since I went gluten free. Is there a chance that there is something different wrong with me, or that I have more than one problem?

How much better did you feel once you went gluten free?

Hi Lissm,

I've been gluten-free for almost 11 months now. Are you eating any gluten-free processed foods? Could be cross contamination, check to see if it says processed in a wheat facility or something to that effect. Have you checked your shampoos, meds soaps?

Also, you might have a problem with dairy or soy. Try an elimination diet and see what happens. Hang in there, i'm sure you will figure this out in time.

I have been where you are. I had to cut out the dairy, soy and aspartame. I started feeling kind of sick about 3 months ago and finally figured out after being sick for almost 6 weeks that it was because I was getting cross contaminated from the steering wheel, door latch and knobs. I'm a truck driver teaming with my boyfriend. He still eats gluten. Once I started cleaning the steering wheel and everything he was touching during the night I started feeling a lot better. I have to clean every single morning before driving because if I don't I'll be sick to my stomach by evening.

Good luck

Vicky

lissm Newbie
lissm
Posted
  • Author

Hi Lissm,

I've been gluten-free for almost 11 months now. Are you eating any gluten-free processed foods? Could be cross contamination, check to see if it says processed in a wheat facility or something to that effect. Have you checked your shampoos, meds soaps?

Also, you might have a problem with dairy or soy. Try an elimination diet and see what happens. Hang in there, i'm sure you will figure this out in time.

I have been where you are. I had to cut out the dairy, soy and aspartame. I started feeling kind of sick about 3 months ago and finally figured out after being sick for almost 6 weeks that it was because I was getting cross contaminated from the steering wheel, door latch and knobs. I'm a truck driver teaming with my boyfriend. He still eats gluten. Once I started cleaning the steering wheel and everything he was touching during the night I started feeling a lot better. I have to clean every single morning before driving because if I don't I'll be sick to my stomach by evening.

Good luck

Vicky

Interesting that you say that, because my whole family went gluten free with me, except my sister, who wasn't living at home at the time. She moved back in Jan so there's been a whole lot more gluten in the house.

In terms of other products, could I really be getting sick from shampoo etc?

Thanks

Lollie Enthusiast
Lollie
Posted

Just thought I would add my two cents! I've been gluten-free for 5 years. In the first year I had to stay away from soy as the protein was too similar to gluten. I also had to really watch what was coming in the house, my family did not go gluten-free. If someone makes a sandwich on the counter, and you come in later and make a gluten-free one, then some of the crumbs can easily get on your food. i know from experience, that any thing cosmetic can make you sick if it has wheat in it. You really have to check everything. It seems like when you first go gluten-free that there is a grace period, perhaps it's the shock to the system not having to deal directly with the gluten... But usually, a few months in, the body is able to detect the smaller amounts of gluten in things. I now react very quickly to cross contamination, where in the beginning, I did not at all. Hang in there. It gets much easier!

mommida Enthusiast
mommida
Posted

It could be a reaction to another food intolerance. (I react to sorghum.)

I was happily gluten free at least 5 years and recently started getting nauseas, pains, and vomitting. I was tested for some different things, but it was my gallbladder. I had it removed 2 and half weeks ago.

tarnalberry Community Regular
tarnalberry
Posted

Interesting that you say that, because my whole family went gluten free with me, except my sister, who wasn't living at home at the time. She moved back in Jan so there's been a whole lot more gluten in the house.

In terms of other products, could I really be getting sick from shampoo etc?

Thanks

I would look very closely at cross contamination. Hopefully you've got your own dedicated toaster and she's not cooking gluten in your dedicated cookware with your dedicated utensils, but you also should look for crumbs and flour dust and all the other possible sources of contamination.

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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