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Are You Glutened Symptoms Always The Same?

Coleslawcat

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Coleslawcat Contributor
Coleslawcat
Posted

I seem to have 2 completely different reactions to getting glutened. Sometimes I will get very foul gas and diarrhea. The gas is pretty uncontrollable, but mostly this reaction is more embarassing than uncomfortable. But it seems that sometimes I will get a very different reaction. Tonight I was feeling great all day, even completed a 3 mile run in record time and still felt great afterward. I went out for pizza with my family to a chain that offers gluten-free pizza where we have eaten before. Before I got home I started feeling queasy and the headache set in. I know I am in for a night of horrible nausea and possibly some vomitting. These were my initial symptoms that led to my celiac diagnosis so I assume this is also a gluten reaction. Could the gas and diarrhea not be gluten related? They seem to be such classic celiac symptoms, but maybe they aren't for me. The gas is very different than normal gas for me and it only happens rarely which is why I assumed it was related to gluten, but I know the other symptoms are gluten related. I'm confused.

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kare101 Newbie
kare101
Posted

I seem to have 2 completely different reactions to getting glutened. Sometimes I will get very foul gas and diarrhea. The gas is pretty uncontrollable, but mostly this reaction is more embarassing than uncomfortable. But it seems that sometimes I will get a very different reaction. Tonight I was feeling great all day, even completed a 3 mile run in record time and still felt great afterward. I went out for pizza with my family to a chain that offers gluten-free pizza where we have eaten before. Before I got home I started feeling queasy and the headache set in. I know I am in for a night of horrible nausea and possibly some vomitting. These were my initial symptoms that led to my celiac diagnosis so I assume this is also a gluten reaction. Could the gas and diarrhea not be gluten related? They seem to be such classic celiac symptoms, but maybe they aren't for me. The gas is very different than normal gas for me and it only happens rarely which is why I assumed it was related to gluten, but I know the other symptoms are gluten related. I'm confused.

I'm not sure, but speaking from personal experience...I often get everything at the same time. So, I wouldn't be surprised if they're all related to "getting glutened".(like that:)) I'm feeling it all today. Guess I ate something with gluten yesterday. Only thing I'm not sure was gluten free was some chocolate. Do you or anybody else know much about gluten in chocolate? I'm very new to this. Hope you feel better!

Lollie Enthusiast
Lollie
Posted

For me i get similar reactions, but they aren't from gluten... If i start to feel sick with the headache, then I know it's gluten. I get the horrible gas when I consume bean flours or sorghum flour. I don't know why. Apparently the damage done to my intestines make those flours harder to breakdown. I have found that phazyme seems to work for me on controlling the gas. Hope this helps!

Coleslawcat Contributor
Coleslawcat
Posted
  • Author

For me i get similar reactions, but they aren't from gluten... If i start to feel sick with the headache, then I know it's gluten. I get the horrible gas when I consume bean flours or sorghum flour. I don't know why. Apparently the damage done to my intestines make those flours harder to breakdown. I have found that phazyme seems to work for me on controlling the gas. Hope this helps!

This is very interesting since it's so similar to my experience. I suppose if this is true for me too than the good news is that I rarely have gotten gluten since going gluten-free. Honestly, the gassiness isn't that big a deal to deal with, I was just worried I was getting gluten and causing damage. Hmm, now to try and figure out what it is that sets off that.

jackay Enthusiast
jackay
Posted

I know gluten is what causes my diarrhea. Other foods cause headaches, gas and muscle pain. I usually don't get gas when I get diarrhea.

StacyA Enthusiast
StacyA
Posted

My glutened symptoms are GI symptoms. But when I have MSG I get a headache and sometimes nausea.

Glutin-Free Man Rookie
Glutin-Free Man
Posted

I'm still fairly new to this -- I've only had symptoms at all for about two years now, so it seems to me that they're constantly changing.

I'm also Casein intolerant, and I can mostly tell the difference between accidentally ingesting milk or wheat, but the symptoms to that have also been changing over time.

My original symptoms were more neurological than GI - I'd get kind of dizzy, slightly nauseous, and have chest pain. Those were pretty scary symptoms. Then I started to get the gas & bloating. I still get those symptoms occasionally. I also get tired and irritable. I used to get horrible heartburn for weeks at a time. Prilosec & it's newer variants only made it worse.

Now I tend to get stomach pain, which feels like another ulcer (I had one when I originally self-diagnosed), but which according to my latest tests is not.

I sometimes get diarrhea too, but not always.

If I read through a listing of possible symptoms of Gluten Intolerance (and there's a lot of them!) I can claim to have had all except the flattened cilia that Celiac is named after. Oh - and vomiting. For whatever reason, gluten has never made me vomit.

Ain't this all just a barrel of monkeys?

David

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Lynayah Enthusiast
Lynayah
Posted

I wonder if any of it has to do with just how much gluten you've eaten? The higher the level of gluten, the stronger the symptoms, perhaps?

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      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

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