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Falling Off The Gluten-Free Wagon


kare101

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kare101 Newbie

I've been gluten free for a week, and I already slipped. I love cold cereal with milk, and I miss it so much! Last night, I ate rice krispies. I'm pretty sure it's not gluten free, but I figured since it's made from rice, it wouldn't be as bad as some others. I have terrible insomnia right now, and late at night is the hardest time to stay on the diet. I don't know how I'm going to do this the rest of my life. It's especially hard because here in Saudi Arabia there's no gluten free food available, and I haven't ordered anything online yet. I'm so frustrated. Just starting to have a reaction to what I ate last night. It's been about 18 hrs, and I'm starting to have face flushing, hives, and what I think is kidney pain. I started getting it lately when I'm sick. It's so not worth it! Please help if you have any suggestions for kicking gluten for good...

Also, I've read a lot about people having problems with corn. Last night, I ate some popcorn with just salt at the movies, and I started coughing a lot. I always do, and I always thought it was just because of the husks in the popcorn, but now I'm wondering if I have a problem with corn. Any thoughts?


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Jestgar Rising Star

I have terrible insomnia right now, .............. and I'm starting to have face flushing, hives, and what I think is kidney pain. I started getting it lately when I'm sick. It's so not worth it!

Eating gluten-free is a choice. If a bowl of cereal is worth feeling as you do, then how can any of us change your mind?

kare101 Newbie

Eating gluten-free is a choice. If a bowl of cereal is worth feeling as you do, then how can any of us change your mind?

A bowl of cereal is not worth it, that's why I was asking for some words of wisdom and support. This is a very difficult transition. I'm having a very hard time, and I feel like crying after reading your reply. I was afraid of getting unsupportive answers like yours when I posted this, but I decided to think positively. If you didn't have something kind to say, why did you even reply? Keep your mean thoughts to yourself!

AlysounRI Contributor

Hello Kare:

It sounds like you have having a hard time finding resources in Saudi.

I did a search for you and found these recipes:

Open Original Shared Link

It sounds like you will have to do most of your cooking and eating at home and then carrying food with you.

These recipes will have all of the ingredients available locally. But you will have to substitute the couscous in some of them to rice.

Many of the recipes on the above page are gluten free.

Also can you have someone who knows the area better investigate so perhaps you can get the supplies you need from Dubai or Qatar?

I even did a regular internet search on celiac disease + saudi arabia and came up with some medical papers for physicians who were at Saudi hospitals and universities. Their emails were also present. If you do that search you will find them and perhaps you can contact them and see if there are any resources in the country that they would know about.

As for corn, that can cause a problem too.

Best stick to unprocessed foods, maybe try some of the recipes on the website above and do your best.

I am almost certain that rice krispies have barley in them in the form of malt which is common to most cereals.

Just take care of yourself, don't beat yourself up and be healthy.

Your body will thank you.

~Allison

Jestgar Rising Star

A bowl of cereal is not worth it, that's why I was asking for some words of wisdom and support. This is a very difficult transition. I'm having a very hard time, and I feel like crying after reading your reply. I was afraid of getting unsupportive answers like yours when I posted this, but I decided to think positively. If you didn't have something kind to say, why did you even reply? Keep your mean thoughts to yourself!

I'm not being mean, I'm telling you that your life is under your control. You can choose to feel ill for a bowl of cereal, or you can choose to eat a handful of nuts and feel well. It's entirely up to you.

Ahorsesoul Enthusiast

This is a good lesson about falling off the wagon. It's not a problem, just get back on. Examine why you ate something that you were pretty sure was not gluten free. There are celiacs everywhere and gluten free food everywhere in the world. All unprocessed meats and veggies are gluten free.

You also may have to give up dairy (and sometimes soy) for a few months while your intestines heal. Think of it this way, every time you eat gluten you start the healing process over. The symptoms you are having because of the Rice Krispies are under your control. It's a good lesson, you suffer. When you are ready to not suffer and to take control of your life you will feel so much better. It's well worth the effort.

Yes, we all would like to give you a good shaking for eating those Rice Krispies. But only because we know how bad you suffer when eating gluten. We've all been right in the dust with you and had to haul ourselves back on the wagon. You can do this!!!

There are many companies in Europe that make gluten free yummy items (Schar and Bi-Aglut are two that I know). You can order online if you can't find products in your local stores.

Are you near King Abdul-Aziz University Hospital? They have done a study on Celiac Disease. You might find some resources there.

Keep us informed about how you are doing.

Shannonlass Apprentice

I've been gluten free for a week, and I already slipped. I love cold cereal with milk, and I miss it so much! Last night, I ate rice krispies. I'm pretty sure it's not gluten free, but I figured since it's made from rice, it wouldn't be as bad as some others. I have terrible insomnia right now, and late at night is the hardest time to stay on the diet. I don't know how I'm going to do this the rest of my life. It's especially hard because here in Saudi Arabia there's no gluten free food available, and I haven't ordered anything online yet. I'm so frustrated. Just starting to have a reaction to what I ate last night. It's been about 18 hrs, and I'm starting to have face flushing, hives, and what I think is kidney pain. I started getting it lately when I'm sick. It's so not worth it! Please help if you have any suggestions for kicking gluten for good...

Also, I've read a lot about people having problems with corn. Last night, I ate some popcorn with just salt at the movies, and I started coughing a lot. I always do, and I always thought it was just because of the husks in the popcorn, but now I'm wondering if I have a problem with corn. Any thoughts?

I feel your pain. I live next door to you (UAE)and am finding it tough too due to the lack of gluten-free food but even worse the labeling of the food is DIRE :angry: . I haven't deliberately eaten gluten yet but I have toyed with the idea, bad I know. Going gluten free is a MAJOR change of lifestyle. You can't be expected to get it right straight away. I have read so much since going gluten-free and lots of stories by people who knew they needed to be on a gluten-free diet but either didn't/couldn't/or tried half-heartedly! One week in I burst into tears because I wanted toast so badly. I was feeling withdrawals something awful. All you can go is get back in the saddle again. I am reliably informed that once we get the hang of the diet and get accidentally or purposefully glutened, our bodies will react in such a way that we will not want to do it again!! I think I had my first glutening at the weekend. I am not right yet. Lots of trips to the loo :(


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Shannonlass Apprentice

I'm not being mean, I'm telling you that your life is under your control. You can choose to feel ill for a bowl of cereal, or you can choose to eat a handful of nuts and feel well. It's entirely up to you.

I felt your comment was very unsympathetic and derisive. Very surprising given that you are a moderator. It must be nice to have forgotten what it was like at the start of a gluten free diet.

Jestgar Rising Star

It really does get easier. Many people find that eating whole foods (meat, veggies, fruit) is the best option for them. Try to just avoid packaged food for a while, if you can, and maybe try one packaged food a week. You will find out which convenience foods work for you and which don't. Once you have your 'go-to' list shopping becomes much less stressful.

Sorry about the toast :( . If there are no good substitutes (and they are expensive and not so good for you anyway.....) maybe you can come up with something that will help the craving, like toasted sesame seeds, or maybe baked cheese or something.

Jestgar Rising Star

I felt your comment was very unsympathetic and derisive. Very surprising given that you are a moderator. It must be nice to have forgotten what it was like at the start of a gluten free diet.

I have not forgotten. What I have learned is that people respond differently to different suggestions, and for some, stating the simple truth is what finally convinces them that their health is under their control.

You choose what to eat. Period. You can choose to be ill or not. Period.

Gemini Experienced

I have not forgotten. What I have learned is that people respond differently to different suggestions, and for some, stating the simple truth is what finally convinces them that their health is under their control.

You choose what to eat. Period. You can choose to be ill or not. Period.

I agree with you completely, Jestgar. I know this transition can be hard for those living in area's where gluten-free food may not be falling off the grocery shelves but people have a choice of whether or not they want to be sick. If they keep cheating, they are choosing to be sick. I see this in my family all the time and yes, I get the same reaction as you did when I tell them it's their choice to be well or not.

I am not trying to be rude to the original poster BUT if you are that easily offended, life is going to one long, difficult ride. It doesn't have to be.

luvs2eat Collaborator

I have not forgotten. What I have learned is that people respond differently to different suggestions, and for some, stating the simple truth is what finally convinces them that their health is under their control.

You choose what to eat. Period. You can choose to be ill or not. Period.

I kind of do forget what it was like to be just starting out. And I find myself losing patience w/ those who ask questions like, "Is this gluten-free?" and I want to say, "HALLOOOO... read the ingredients!!!" Or people who eat gluten KNOWING they're eating gluten and then are surprised that they get sick!

But I loved to cook before I was diagnosed. I was a label reader from way back so learning to cook gluten free hasn't been that difficult for me. For those who don't cook... I understand how completely daunting it can be!

I also remember being jumped all over when I mentioned very early in my gluten-free adventure years ago that I wasn't so sensitive that I couldn't pick croutons off of salads and blow off any crumbs. People blasted me telling me that I was NOT gluten free if I thought I could do that! They were right, of course... but I was so angry over the responses that I deleted celiac.com from my faves list and vowed never to return! A week later, I came back and thanked the people who blasted me... they were right and I was completely wrong.

So... I try hard to remember how it was starting out and not to be so short w/ my observations so as not to make people already feeling crappy feel even crappier.

Jestgar Rising Star

I also remember being jumped all over when I mentioned very early in my gluten-free adventure years ago that I wasn't so sensitive that I couldn't pick croutons off of salads and blow off any crumbs.

I think this is hard for a number of reasons, all of them having to do with this being a screen of typing and not face to face contact. It's difficult to know if someone is meaning to be harsh, or just trying to be firm.

I think it's also hard to accept that we have to take responsibility for ourselves, and someone telling you this may just make you angry, until you are ready for it.

tarnalberry Community Regular

I felt your comment was very unsympathetic and derisive. Very surprising given that you are a moderator. It must be nice to have forgotten what it was like at the start of a gluten free diet.

Most of us do remember. Most of us still have some wishful fantasy that we could "eat normally" without having any problems.

But jestgar's advice was similar to what I would write: Know that these choices are in your control. There's no secret to not succumbing to a desire for food. There's no special method for making sure you don't fall to a craving. It's a choice each and every time we make food more accessible - from buying that box of cereal, to opening it, to pouring it in the bowl, to picking it up with a spoon. Four times to look at your choices and decide if that's really what you want to do.

Again, this isn't mean "you should have known better", this is "all of this is your choice". A number of us phrase it that way because some people - especially those going through the struggle of transitioning to gluten free - say things like "fall off the wagon" and "couldn't help myself". That implies that you're a passive party to your food consumption. And, you know, a lot of cultures don't encourage people to be present and active in eating, aware of what they're eating, when they're eating, why they're eating, and how they're eating. But that's habit, and all of those things, whether we've been trained out of it or not, are our choices.

There's a zen-like "be present in each moment" aspect to going gluten free - you need to be active in the moment, not in the past (but I've always ate this for comfort) or future (scared of every last bit of food for fear of reaction - the other end of the spectrum ;) ). For some, it's a practice that takes longer to develop than others, but we all have to do it. I wish everyone (regardless of dietary issues) would do it; we'd be healthier!

It really does boil down to "it was your choice to do something you knew would make you sick. if you don't want to be sick, choose not to", but that doesn't mean that it's that simple to get to in real life. only you can figure out how YOU can get there, though.

OK, and potential for flaming me, I'll grant, but here's the truth from my perspective:

It may also be helpful to know, in general, after a number of years on the diet, a lot of us see the "ugh, I chose to eat gluten and now I feel awful. support!" as similar to "ugh, I chose to see what it feels like to put a nail gun to my foot and press the trigger! support!" The latter just doesn't make sense. Not because we think the diet is easy, but because we've made that choice - pick up the nail gun or not - so often that we can more easily see it as a choice, even if we sympathize with your desire (ok, maybe not so much on the nail gun case... except the closet masochists :P). We only want to help you realize the truth of that sooner, since we don't tend to think of food as a nail gun. :) It becomes all the more important to understand the truth of "this is a choice" when you go to your parents 50th wedding anniversary and everyone is pressuring you to eat the fabulous cake that honors your parents, or whatever intense social event tries to convince you to make something other than what you know to be the correct choice.

At the end of the day, the only thing you can do is move on to the next day: forgive yourself - completely - for that choice, and be aware of your choices in the future, making the ones you want. You'll get there; it takes time, but you will get there if you try to, mistakes along the way and all.

kayo Explorer

When starting out that tough love kind of response can be hard to swallow!

Instead of dwelling on what went wrong why not take this moment and do something positive - order items from the gluten free mall.

They even have a rice crispy like cereal:

Open Original Shared Link

Amazon is also a great resource.

Also, do you have a market where you shop regularly? Talk to the owner, maybe they have resources as well.

Yes, it can be expensive to order these things but if you fill your diet with natural items that you can get locally then the cost won't be so bad. Fill up on fruits, veggies, meats, dairy, rice, quinoa.... whatever you can tolerate as I'm not sure what your other food intolerances are, if any.

Hang in there!

kare101 Newbie

I feel your pain. I live next door to you (UAE)and am finding it tough too due to the lack of gluten-free food but even worse the labeling of the food is DIRE :angry: . I haven't deliberately eaten gluten yet but I have toyed with the idea, bad I know. Going gluten free is a MAJOR change of lifestyle. You can't be expected to get it right straight away. I have read so much since going gluten-free and lots of stories by people who knew they needed to be on a gluten-free diet but either didn't/couldn't/or tried half-heartedly! One week in I burst into tears because I wanted toast so badly. I was feeling withdrawals something awful. All you can go is get back in the saddle again. I am reliably informed that once we get the hang of the diet and get accidentally or purposefully glutened, our bodies will react in such a way that we will not want to do it again!! I think I had my first glutening at the weekend. I am not right yet. Lots of trips to the loo :(

This is the kind of support I needed. Just someone to understand what I am going through, and offer some advice. Thank you so much!! It's nice to feel like somebody out there understands. I don't intend to deliberately eat something with gluten again, but it's nice to know at least 1 person out there besides me misses some of the food, and thinks about eating the wrong thing once in awhile. I actually finally had a good cry myself today, and it helped some to get out the frustration, etc. I should have tried it sooner. :) It's also nice to hear you are in the UAE, and understand the difficulty of getting gluten free food over here. We should stay in touch and let each other know when we find any kind of resources/food available in this area. Thanks again and take care.

kare101 Newbie

When starting out that tough love kind of response can be hard to swallow!

Instead of dwelling on what went wrong why not take this moment and do something positive - order items from the gluten free mall.

They even have a rice crispy like cereal:

Open Original Shared Link

Amazon is also a great resource.

Also, do you have a market where you shop regularly? Talk to the owner, maybe they have resources as well.

Yes, it can be expensive to order these things but if you fill your diet with natural items that you can get locally then the cost won't be so bad. Fill up on fruits, veggies, meats, dairy, rice, quinoa.... whatever you can tolerate as I'm not sure what your other food intolerances are, if any.

Hang in there!

Thanks! I should make something positive out of this experience. I have been wanting to order from the gluten free mall, and should go ahead and make an order.

GFinDC Veteran

... It's so not worth it! Please help if you have any suggestions for kicking gluten for good...

Also, I've read a lot about people having problems with corn. Last night, I ate some popcorn with just salt at the movies, and I started coughing a lot. I always do, and I always thought it was just because of the husks in the popcorn, but now I'm wondering if I have a problem with corn. Any thoughts?

If you are used to buying your breakfast in boxes, or your dinner in little frozen blocks, or eating out a lot, then it can be quite a change doing the gluten-free diet. It was for me. No More Marie Calendar's quick nuke pot pies for dinner. No more bread, no more beer! I really think eating conveniance foods are just a habit we get into. And habits can be broken and re-directed or remolded into something more healthy. Once you learn to eat more healthy, whole foods, you won't miss your gluten filled foods so much. There are tons of gluten-free recipes on this site, including snacks and candy and such, if you like that kind of thing.

Not eating any processed foods for the first few months will let you skip label reading. And you will get used to making foods from scratch that are good for you.

Mistakes are a great teacher. And we all make them, so just try and learn from yours when they happen. It does seem like many people get more sensitive after they have been off gluten for a while. So you may find yourself having stronger reactions to small amounts of gluten after a while.

Rice, quinoa, beans veggies, fruits, nuts, and meats are a good diet. Just keep reading this site and you will learn lots in a short time. As far as the corn goes, why not just stop eating it for awhile if you think it is a problem? Then challenge it by eating corn for several days. Another thing you can do is an elimination diet, there are plenty of threads here about them. You also might want to search on cross contamination, so you can get familiar with that issue.

sandsurfgirl Collaborator

I agree with you completely, Jestgar. I know this transition can be hard for those living in area's where gluten-free food may not be falling off the grocery shelves but people have a choice of whether or not they want to be sick. If they keep cheating, they are choosing to be sick. I see this in my family all the time and yes, I get the same reaction as you did when I tell them it's their choice to be well or not.

I am not trying to be rude to the original poster BUT if you are that easily offended, life is going to one long, difficult ride. It doesn't have to be.

So.... if somebody is overweight is it okay to say "You know fatso you might get more dates if you lose 50 pounds."? Or if somebody has a big nose, is it okay to say "Hey if you got some work done on that nose maybe you wouldn't be so ugly."? The "simple truth" is inappropriate in all sorts of situations. I'm sure there are all sorts of things about you that you'd rather not have others use "simple truth" logic to comment upon, especially when you are emotionally fragile and needing support from HELLO a SUPPORT board.

People are hurting when they first start out on this diet. You lose A LOT when you first find out you have celiac and the grieving process is like a death.

Your post was not kind, not helpful and not necessary and yes as a moderator it's surprising to say the least.

It's not about being easily offended. There are times in life when you can take that sort of treatment and being a newly diagnosed celiac is NOT NOT NOT NOT NOT one of them. If somebody had talked to me like that on here in my first few weeks I would have had a nervous breakdown and I'm one TOUGH Italian girl, just ask my husband. At that time I was a wreck and needed support, from a SUPPORT board.

sandsurfgirl Collaborator

This is the kind of support I needed. Just someone to understand what I am going through, and offer some advice. Thank you so much!! It's nice to feel like somebody out there understands. I don't intend to deliberately eat something with gluten again, but it's nice to know at least 1 person out there besides me misses some of the food, and thinks about eating the wrong thing once in awhile. I actually finally had a good cry myself today, and it helped some to get out the frustration, etc. I should have tried it sooner. :) It's also nice to hear you are in the UAE, and understand the difficulty of getting gluten free food over here. We should stay in touch and let each other know when we find any kind of resources/food available in this area. Thanks again and take care.

I sobbed like a baby over never having Guinness again and I don't even drink beer very often. It was just the thought that it's forbidden if I ever get to Ireland and go to an Irish pub. I've cried over lots of foods. Food is culture. Food is family. You can get a PhD in Anthropology and focus on food and culture!

You need to honor your grieving process and let yourself grieve. Make sure you have your "must haves" at home. For me it was pasta so I make sure there is always rice pasta around. Love tinkyada brand. I also keep Betty Crocker gluten free mixes in the pantry for cravings and I always have gluten free rice krispies around. I microwave a few marshmallows and mix them up for an instant rice krispie treat when I have a craving. I buy my gluten free rice krispies at Sprouts, but you probably have to order them. The ones I buy taste the same as the "real" ones.

Don't beat yourself up for cheating, but don't do it again. There isn't much you can't find gluten free. Give yourself what you need to succeed by ordering some foods you have to have around.

kare101 Newbie

I sobbed like a baby over never having Guinness again and I don't even drink beer very often. It was just the thought that it's forbidden if I ever get to Ireland and go to an Irish pub. I've cried over lots of foods. Food is culture. Food is family. You can get a PhD in Anthropology and focus on food and culture!

You need to honor your grieving process and let yourself grieve. Make sure you have your "must haves" at home. For me it was pasta so I make sure there is always rice pasta around. Love tinkyada brand. I also keep Betty Crocker gluten free mixes in the pantry for cravings and I always have gluten free rice krispies around. I microwave a few marshmallows and mix them up for an instant rice krispie treat when I have a craving. I buy my gluten free rice krispies at Sprouts, but you probably have to order them. The ones I buy taste the same as the "real" ones.

Don't beat yourself up for cheating, but don't do it again. There isn't much you can't find gluten free. Give yourself what you need to succeed by ordering some foods you have to have around.

Thanks so much for ALL your support! It's nice to hear that it was also extremely difficult for you in the beginning. It's not just me. I'm feeling like I'm grieving, but I thought maybe I was being too dramatic or something. Hearing you describe it as that also is really helpful and validating. It seems like people who don't have this don't really get what a big deal it is. ... It's just a change in diet, right?... I don't really blame them, though. How can they understand something they haven't gone through? Thanks again to you and the others on this board who've shared with me their experiences, and given me their support. Also, thanks for the snack suggestions! :) I'm missing those.

Gemini Experienced

So.... if somebody is overweight is it okay to say "You know fatso you might get more dates if you lose 50 pounds."? Or if somebody has a big nose, is it okay to say "Hey if you got some work done on that nose maybe you wouldn't be so ugly."? The "simple truth" is inappropriate in all sorts of situations. I'm sure there are all sorts of things about you that you'd rather not have others use "simple truth" logic to comment upon, especially when you are emotionally fragile and needing support from HELLO a SUPPORT board.

People are hurting when they first start out on this diet. You lose A LOT when you first find out you have celiac and the grieving process is like a death.

Your post was not kind, not helpful and not necessary and yes as a moderator it's surprising to say the least.

It's not about being easily offended. There are times in life when you can take that sort of treatment and being a newly diagnosed celiac is NOT NOT NOT NOT NOT one of them. If somebody had talked to me like that on here in my first few weeks I would have had a nervous breakdown and I'm one TOUGH Italian girl, just ask my husband. At that time I was a wreck and needed support, from a SUPPORT board.

The simple truth is very appropriate in life today, as it always has been. Your references to fat people was nonsense....you are comparing apples to oranges. Anyone who willingly eats gluten, no matter how new to the game they are, has made a choice and if they don't like a realistic answer when they post on line to a support group, they need to grow up and act like an adult. No one was rude to anyone in this post and under no circumstances do I have to engage in the "hug it out" attitude that is so nauseatingly present today.

Jestgar's answer was appropriate and in no way offensive, even in this overly sensitive world we live in. I agreed with it and stand by my opinion.....which you do not have to like, either. However, my answer was totally appropriate and I will repeat....if you are that easily offended, good luck with life. It throws you all kinds of curve balls and Celiac happens to be one of the easiest. There are far worse diseases to have and many that will kill you a lot faster than undiagnosed celiac disease. Fault me for being direct and looking at the glass half full.....I have just seen too much in my 50 years to get hung up on what I cannot eat.

I was one of the "overjoyed to be diagnosed" ones and I was one week away from a feeding tube at time of diagnosis. There was never one moment when I craved anything with gluten. Does everyone have to be like that? Absolutely not, BUT like others have said, you can re-direct your thoughts to the more positive side of things and then you'll realize that just about anything with gluten can be made without. You can have any gluten-free product you want, with a touch of the keyboard and a mailing address.

Just remember that when you write to a support group, you cannot guarantee that you'll only hear opinions that please you. People were just being honest here and I'm sorry you are having a hard time with that.

GFinDC Veteran

This is really getting to be one of those "interesting" threads. :lol: I am very sure Jestgar didn't mean anything rude or unpleasant in her response. She is very helpful to people on this board and has been for years. A short simple statement can be misinterpreted just a like a long winded response can be. It is just the internet thing, it's hard to determine a person's feelings from a thousand miles away when all you have to go by is typed words.

I suggest we all grab a gluten free beer and chill out. :D Here is a site with a list of gluten-free beers we might be able to find locally or order online. gluten-free doesn't have to be all work and no fun!

Kare101, I know it seems tough at first, I felt less than happy myself at first. Took me quite a while to figure things out and get used to eating differently. But it is so worth it to stick with the diet and learn how to adjust. We ain't bad peeps here, and you are very welcome to be here and rant or vent as needed. If you stick around and read you will find plenty of rants here about the gluten-free diet and all sorts of other things. You will also find lots of people that are willing to help and who have been there before. And basically we are all there now, cause celiac doesn't go away.

Open Original Shared Link

babygirl1234 Rookie

i fall of the gluten-free diet every now and then and boy do i pay for it later lol so yeah it does happen from time to time

AKcollegestudent Apprentice

I have massive, terrible, debilitating reactions to gluten, soy, and dairy. And yet. And yet, during Christmas which was a full six months after being gluten free, when my father forbid my sisters and I from cooking and didn't make anything I could eat, I ate things that made me sick. They tasted good at the time--and then the vomiting started two hours later. The joint issues that I'm having months later are either directly related, or indirectly, since the current doctor's thought process is that another autoimmune issue's popped up.

I paid for my choices and when I go home in a couple days (the first time since then), I'm not going to forget that. At this point, I can't forget that. It's okay to screw up, but it's going to hurt. It's going to suck balls. That said, there's always food that you can find, somewhere. Even if it's meat and vegetables. Rice, in its many incarnations. And so on.

That said, I've found a lot of foods that I don't think I would have thought twice about a year ago. Quinoa is really good; there are plenty of gluten free desserts that I've made that utilize things that can be easily found in grocery stores in the US--for instance, peanut butter no-flour cookies, six recipes for which can be found in the recipes section. GFE, glutenfreeeasily, has a bunch of easy recipes. She doesn't believe in using specialty ingredients, which can be quite helpful. (Her pizza recipe, for instance, looks fantastic. I just can't bring myself to eat that much dairy when I know it'll cause hives.)

(And if you're ordering from the gluten free mall, try to buy the Cravings Place Chocolate Chunk cookie mix. All the gluten eaters I make taste test agree that the resultant cookies--or cookie bars--are really, really good.)

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      My only proof

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      Supplements for those Diagnosed with Celiac Disease

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      My only proof

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    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
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